I spent 4 days 3 nights in the hospital...for symptoms i believe are
the MShug or muscular comtractions of the chest muscles...my chest
gets so tight i can hardly breathe...its like i got brick on the
chest or a squeeze....it comes and goes...lasts from minutes to
hours at times...its uncomfortable...Im spinal negative for MS and
no brain lesions...yet i have all the MS symptoms...Ive since had a
positive ANA of 1:1280 but no other positive Antibodies so they said
I cannot have lupus etc...and i had a negative test for myasthenia
gravis...and they refuse to do the musk antibody....I was put on
steroids of 80 miligrams...i felt somewhat better...especially
around 40 milligrams...now Im down to 10mg...and Im hurting more in
the legs and lower arms...spasticity is worse...and I fell again
last week...they just say myapothy...and no reason for my
symptoms...yet im positive babinski both legs...clonus in legs arms
and face...myotonic in the hands...hyperreflexes...cognitive
problems that are alot better...the neuropsych a year ago said i had
organic brain syndrome...but from what did I get it?...I have
definite relapses of symptoms and I get somewhat better but never
completely...hotwater and heat makes me worse...Im alot better on
the steroids..which now Im on a lower dose and i see symptoms
returning....Ive been on steroids since January....put on 25
pounds...moon faced and pot bellied now....not sure if the disease,
meds, or what gets me depressed...think the not knowing what took my
life and the person I once was away is what depresses me...if I knew
I could deal with it...thanks for listening to me...I also get the
MShug around my lower abdomen, groin...a very tight band
feeling...uncomfortable...and I hope this makes sense what I
typed...thank you so much....Michelle M,


--- In UNdiagnosedMS@yahoogroups.com, "undiagnosedms" <dclary@c...>
wrote:
>
> Hey guys!  How is everyone???
>
> I've been looking for victims of this so called "MS Hug" to share
> descriptions with.  Anyone get this:
>
> I have had this really horrible cramping, tight, burning
> pain...almost like my ribs are growing or something, just under my
> bust line.  I have found nothing to relieve the pain.
>
> Apparently, there is something called the "MS Hug" that is similar
> to this.  I'm going back to the neuro on the 13th so we'll see
what
> she says.
>
> If anyone knows what I'm talking about, please let me know how you
> deal with/dealt with this pain.  The only way I have found to get
> rid of it is just to wait it out.
>
> I thought that maybe it was the Baclofen causing it, but I took
the
> Baclofen in the day today with no problems.  Tongiht I'm feeling
it
> again.
>
> So...if anyone has any info for me, let me know.  I can't really
> find any websites with solid information on this hug, so if you've
> got one, send it on over.
>
> Thanks guys!
> ~Dana