Hi Jan

        If your test is a CPK ,CK a high reading means muscle degeneration .My problem is i have been 4-5 yrs. with first a diagnoses of ALS then Cortico Basal Ganglionic Degeneration then Probable PLS Primary Lateral Sclerosis then that was taken off then probable MS now that i had the spinal tap thats gone and we're back t PLS .Ive had all kinds of tests.Mine started with Slurred speech then falling when running ,right knee folds up .It sounds alot like MS where the signal from the brain is slow to get to  the muscle .M MRI,s Brain and brain stem are normal ive had EMG,s normal .Im beginning to think i 'm Pshyicotic .Im truly undiagnosed i was 55 when it started im 60 Feb 16 .I was a Plumber 37 yrs. had to retire .Got a part time job giving change out at a car wash and they decide i was a liability and let me go so i got on Disability SS.what ever you do dont let your employer know if you continue to have to repeatedly have to go back to the Doc. with no answers or they'll find a reason to let you go .At first i fought it my attny made them take me back so they just cut my hours back to 4 hrs. per week so i quit .Having a group means alot to me to vent or find people you have something in common with .There is nothing worse than thinking your alone .George

Jan <jangarrett@...> wrote: