Dana,
I also have the pain, spasticity, pressure around the chest...spent
4 dqays in hospital for the chest pressure, shortness of breath...i
think it is muscle spasticity now around the chest...I have the
stutter, its like the words dont get to my mouth so I repeat the
beginnings of words a few times..and my thinking is slow...i have
cognitive problems also...so much of what yo have I also do...I am
beginning to wonder...how do they not know there is not this disease
they dont know about yet...too many of us have the same
symptoms..are you diagnosed with anything yet?....I go tomorrow for
the lip biopsy for sjogrens...my life has been turned upside down
and inside out by this weird diesase without a name...its just like
MS...yet my MRIs and spinals are normal...doctors think I have MS
until they see i had normal MRIs and spinals...its
frustrating...cuase then they think you are some whiner or mental
case...its great to read the same things going on with others...Im
frustrated with tests and doctors...i will now wait another year to
see if I get better or continue to get worse...it scares me, i fear
being in a wheel chair...each flare lets me worse in one way or
another ....I also have tremors real bad during a flareup and not as
bad inbetween...and the fatigue is terrible which the provigil helps
some...zanaflex helps but makes me tired i use it at night
only....thanks for allowing me to read your postings on this
forum...forums do help as do new friends whom share many
things...take care...Michelle M.

--- In UNdiagnosedMS@yahoogroups.com, "undiagnosedms" <dclary@c...>
wrote:
> Here are some blips from some reading I've been doing about PAIN.
I
> have been hurting a lot lately and keep on wondering why.
>
> "There are many different types of pain that a person with
multiple
> sclerosis sufferers. The list includes pain caused by plaque
lesions
> seen in the brains of people with multiple sclerosis called
central
> pain. These lesions may cause pain by altering chemicals which
> transmit pain signals or they may cause changes in the way signals
> are transmitted to pain regions in the brain." I took this from
an
> article on WebMD discussing the use of a cannabis extract helping
> people with MS related pain.
>
> I was also reading one article that said that when the damage
> happens to pain nerves in the brain, they can freak out and start
> sending out pain signals--more along the lines of aching or
burning
> and with altered sensation in the area--touch and temperature, for
> example.
>
> I think that most of my pain is coming from the spasticity right
> now. My legs are just kickin' my butt right now. I am still
taking
> the Baclofen and it seems to help a little, shortly after I take
it,
> but it doesn't have any long-term effects, which is kind of what I
> was looking for. Maybe once I get my dosage up some more I'll
have
> better luck.
>
> I've also noticed this really weird pressure feeling. I get it in
> my nose. I can't tell if it feels like something is smashing my
> nose in or if my nose is going to explode out. It's the weirdest
> darned thing. I don't think it's sinuses because it only lasts a
> few minutes at a time and goes away without anything. I wouldn't
> really say it's painful, just pressure. Anyone else get this???
>
> I have also felt the pressure around my ribs. Well, it's not
really
> around my rib cage, but on each side. It just feels like there's
a
> lot of pressure. It's not really too painful, but it does cause a
> lot of discomfort.
>
> It's so hard because I don't know if these are all separate things
> or if they are all one big fat mess. Hmmm...I have been keeping a
> list to take with me, I go to the neurologist on Friday. I'm kind
> of skiddish about talking to her about ALL of them because I think
> she's going to think I'm being a big whiner or something.
>
> I was kind of bummed out this weekend because I realized that
there
> is no part of my life that this stuff doesn't effect. Walking,
> talking, using my hands, thinking...energy...coordination...The
real
> kicker is that if you saw me shopping for groceries, you would
have
> no idea.
>
> I have picked up this little stutter somehow and it really bothers
> me. I have never had a problem with talking. I was trying to get
a
> sentence out and I kept repeating "I..I...I...." My husband
didn't
> realize that I was having trouble and he started poking fun at
me.
> I was so embarrassed.
>
> Let me know what you guys think. Curious to see if anyone else
has
> the same things goin' on.
>
> ~Dana