I can't believe you have been dealing with this for 10 years! Wow,
Deb...I cannot imagine how frustrated and "Grrrrr" you must be
feeling!

Have you had any MRI's or spinal taps or anything?

I have the tremor, too. I get it in both hands but it's worse in
the right. Also have it in my tongue and head. I've noticed the
tremor gets worse when I'm emotional, stressed, or tired. And
sometimes it's just plain bad. Since it started in October 2002
it's gotten worse.

It used to be really fine and now I would describe it as "course."
The neuro does a test where they put their index finger about a foot
or so away from you and you have to go back and forth from touching
your nose and the tip of their finger (you can try it yourself with
a helper or an object in front of you).

My hand used to just slightly tremor during this test but now I'm
off a couple inches and my hand really gets going. I've seen a
video online where one woman's hand was shaking a good 10" back and
forth by the time she got her hand to the finger tip. I don't want
to get that bad.

Is your tremor like this? Makes for a lot fun when doing things
like spoon feeding my baby! I think I make more of a mess than she
does! =)

I really hate the "wait and see" approach to things, too. I am
pretty much there at the moment, too. I've basically been told I'm
waiting for a significant exacerbation or for more change to the
lesions on the MRI. Which, in my head means "Get significantly
worse and we'll help you." It sucks.

I'm scared to think of what "worse" means to them.

At least my neuro is trying to bring some relief by treating the
symptoms I'm having now. Are you being treated for anyhting?

Anyhow, Deb....good to hear from you. Please feel free to post
whenever you want. Whether it's to rant, rave, aska question, or
just say hi...it's always welcome.

Love,
Dana


--- In UNdiagnosedMS@yahoogroups.com, Debra Sigler
<miracle6801@y...> wrote:
> Dana,
> The first Dr diagnosed by my reflexes, intense history taking
and the way I walk. I have known something was not right for about
10 years now, first being tested for arthritis, thyroid lupus
ect..... I ignored as much as I could for years knowing it would go
away soon. Then about 2 years ago I developed a tremor in my right
hand, incredible joint pain not being able to stand or walk for much
more than 20 min. at a time. I'm tired now of all this even have eye
problems for about 2 years. The Drs have a wait and see attitude
now, I'm just frustrated.
> Sounds like we are going through much of the same thing.
> Hugs,
> Deb
>
>
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