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Hi everyone...just checking in...   Message List  
Reply | Forward Message #613 of 1042 |
DEB!


Hi Deb!

I'm so glad that you posted so sorry it's taken so long for a
reply. How are you feeling? Hope this message finds you feelin'
well.

There are some members in the group who have been diagnosed. But,
most are just like you, stuck in limboland.

How long have you had your symptoms? There had to have been
something significant to prompt the first doctor to diagnose you. I
am so sorry that you are going through this.

I have done a lot of reading on personal MS stories looking for
basic rules of thumb when it comes to the length of time for a
diagnosis. My only conclusion is that there are absolutely no rules
with MS!

Some people seem to be diagnosed suddenly...others take years and
years. I am going on 2.5 years since my symptoms started. My
neurologist has me in the "possible" multiple sclerosis
category...it's a very odd place!

I hope that you find your way back to the group soon and keep us
updated!

~Dana


--- In UNdiagnosedMS@yahoogroups.com, Debra Sigler
<miracle6801@y...> wrote:
> Hi, I'm Debbie, was told a year ago I had ms, was told to start
Rebif, I wanted 2nd opinion. Now Drs are saying not ms even though
reflexes and all symptoms fit ms. Mri and lumbar neg., just totally
frustrated trying to find out what is wrong with me. Has anyone
here finally got a diagnosis for ms? How long did it take or was it
a diagnosis for something else?
> Deb
>
>
> ---------------------------------
> Do you Yahoo!?
> Yahoo! Mail - You care about security. So do we.






Wed Jan 5, 2005 7:31 am

undiagnosedms
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Message #613 of 1042 |
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Hey everyone! How goes it??? Welcome to our new members! Please feel free to post anytime...we need to get this forum back up and running. Need lots of...
undiagnosedms
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Dec 10, 2004
5:17 pm

Hi, I'm Debbie, was told a year ago I had ms, was told to start Rebif, I wanted 2nd opinion. Now Drs are saying not ms even though reflexes and all symptoms...
Debra Sigler
miracle6801
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Dec 15, 2004
1:13 am

Hi Deb! I'm so glad that you posted so sorry it's taken so long for a reply. How are you feeling? Hope this message finds you feelin' well. There are some...
undiagnosedms
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Jan 5, 2005
7:32 am

Dana, The first Dr diagnosed by my reflexes, intense history taking and the way I walk. I have known something was not right for about 10 years now, first...
Debra Sigler
miracle6801
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Jan 14, 2005
12:41 pm

I can't believe you have been dealing with this for 10 years! Wow, Deb...I cannot imagine how frustrated and "Grrrrr" you must be feeling! Have you had any...
undiagnosedms
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Jan 17, 2005
6:19 pm

Dana, So sorry for the late reply, my computer crashed and I just got back online. Yes, I had all the tests everything came back neg., the eye test was...
Debra Sigler
miracle6801
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Jan 27, 2005
1:26 pm

Hi Deb... The anemia you were talking about--is that the one caused by low B- 12??? My B-12 levels were low from the get go, too. I was on injections for...
undiagnosedms
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Jan 27, 2005
8:10 pm

Dana, Yes, pernicious anemia is low B12. I had the Schillings test and my body will not absorb the B12. I have to take B12 shots once a month for life, my...
Debra Sigler
miracle6801
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Feb 2, 2005
12:16 am

Deb, I loved this post of yours. I'm sorry it has taken me so long to reply. I have had family in town and seem to be going through some type of flair. ...
undiagnosedms
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Feb 8, 2005
10:59 pm
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