Search the web
Sign In
New User? Sign Up
UNdiagnosedMS · UNDiagnosed MS
? Already a member? Sign in to Yahoo!

Yahoo! Groups Tips

Did you know...
Show off your group to the world. Share a photo of your group with us.

Best of Y! Groups

   Check them out and nominate your group.
Having problems with message search? Fill out this form to ensure your group is one of the first to be migrated to the new message search system.

Messages

  Messages Help
Advanced
Hi everyone...just checking in...   Message List  
Reply | Forward Message #603 of 1042 |

Hey everyone! How goes it???

Welcome to our new members! Please feel free to post anytime...we
need to get this forum back up and running. Need lots of discussion.

I have been a little strung out lately. I'm supposed to have
already gone back to the neuro, but I haven't. I know that is sooo
bad, but they wanna put me on some more pills and frankly, I'm a
little sick of pills at the moment. I'm making due with the
residual effects of the Steroid treatment and my Baclofen.

The other day I spoke with my Aunt in California...had a lot of
catching up to do. I told her that even though I wasn't diagnosed,
I was being treated for Multiple Sclerosis. That's the first time
that I've realized that.

Do any of you get Spasticity in your back? What's it feel like to
you? I wake up int he morning with a stiff sore back. Sometimes my
legs are actually curled up to my chest while I'm laying flat on my
back.

A few weeks ago, during the Thanksgiving holiday, I needed a refill
on my Baclofen and the pharmacy wouldn't give it to me because it
had been to recent since my last refill. The doctor's office was
closed and they weren't able to get the fax that the pharmacy
needed. I went about 5 days without the Baclofen. I htink by day
3, I couldn't even tilt my chin down to my chest.

Massage feels really great, but it doesn't seem to fix the
problem...just, covers it up for awhile.

Does the back thing sound MS'ish? I'm too young to have any other
back problems, I think.

Sometimes I still try to convince myself of reasons why it is or
could not be MS. I don't know why I'm in denial...keep thinking one
day I'm gonna wake up and it's gonna be normal again.

I actually asked the neurologist last time I was there if she
thought I needed to see a shrink. She asurred me that my problems
were not mental...I wish they were, they would be easier to fix. =)

On a positive note, my baby girl is getting so big and it's such a
wonderful time to watch her grow. This last week we noticed her two
bottom front teeth were coming in. She's clapping, talking, and
playing like crazy. I love this time! It will be a wonderful
Christmas with her scurrying around everywhere.

Hope all of you are doing well. I think about you and pray for all
of you all the time...keep in touch...

~Dana








Fri Dec 10, 2004 5:17 pm

undiagnosedms
Offline Offline
Send Email Send Email

Forward
Message #603 of 1042 |
Expand Messages Author Sort by Date

Hey everyone! How goes it??? Welcome to our new members! Please feel free to post anytime...we need to get this forum back up and running. Need lots of...
undiagnosedms
Offline Send Email
Dec 10, 2004
5:17 pm

Hi, I'm Debbie, was told a year ago I had ms, was told to start Rebif, I wanted 2nd opinion. Now Drs are saying not ms even though reflexes and all symptoms...
Debra Sigler
miracle6801
Offline Send Email
Dec 15, 2004
1:13 am

Hi Deb! I'm so glad that you posted so sorry it's taken so long for a reply. How are you feeling? Hope this message finds you feelin' well. There are some...
undiagnosedms
Offline Send Email
Jan 5, 2005
7:32 am

Dana, The first Dr diagnosed by my reflexes, intense history taking and the way I walk. I have known something was not right for about 10 years now, first...
Debra Sigler
miracle6801
Offline Send Email
Jan 14, 2005
12:41 pm

I can't believe you have been dealing with this for 10 years! Wow, Deb...I cannot imagine how frustrated and "Grrrrr" you must be feeling! Have you had any...
undiagnosedms
Offline Send Email
Jan 17, 2005
6:19 pm

Dana, So sorry for the late reply, my computer crashed and I just got back online. Yes, I had all the tests everything came back neg., the eye test was...
Debra Sigler
miracle6801
Offline Send Email
Jan 27, 2005
1:26 pm

Hi Deb... The anemia you were talking about--is that the one caused by low B- 12??? My B-12 levels were low from the get go, too. I was on injections for...
undiagnosedms
Offline Send Email
Jan 27, 2005
8:10 pm

Dana, Yes, pernicious anemia is low B12. I had the Schillings test and my body will not absorb the B12. I have to take B12 shots once a month for life, my...
Debra Sigler
miracle6801
Offline Send Email
Feb 2, 2005
12:16 am

Deb, I loved this post of yours. I'm sorry it has taken me so long to reply. I have had family in town and seem to be going through some type of flair. ...
undiagnosedms
Offline Send Email
Feb 8, 2005
10:59 pm
Advanced

Copyright © 2009 Yahoo! Inc. All rights reserved.
Privacy Policy - Terms of Service - Guidelines - Help