Hi Pat Blood test was negative for me. I don't think it's terribly accurate, from what I have heard before. I realised at the age of 48 what had been wrong for...
... been ... have ... Hi Pat, I did things back to front. Had +ve endoscopy/biopsy first. Subsequent blood tests (Tissue Transglutaminase and Immunoglobulin ...
... don't ... good ... That is exactly what happened to me, too. First the biopsy was declared to be positive even though I had no classic symptoms other than...
... Interestingly I am the opposite of you. I tested positive for everything and had a biopsy to 'prove' I was a coeliac. However my health has deteriorated ...
To me that sounds extremely irresponsible, to eat gluten to feel better. If someone is gluten intolerant gluten should not be digested at all. Doing so may...
The blood test can only give a "positive" negative result. If you score 0 you do not have it. If you score under 15, it is most likely you do not have it. If...
I've heard that view from a homoeopath! She was downright bonkers and believed most illness could be cured that way! She didn't like my robust attitude. ...
I'm finding this so very interesting! When I was first diagnosed, about 10 years ago, I used to think I'd have the occasional 'treat', wrong though it is....
Well, to me that sounds pretty classical coeliac Peter. It is sad that the tests aren't any good :( I even had a biopsy coming back negative but my doc was so...
Could someone please explain to this idiot what's going on with malt vinegar as it seems to be used in quite a few sauces etc and despite being listed on...
I'm another one that tested negative when given the blood test. However, I had been eating gluten free for two months by then, and I understand that can...
My doctor said that the negative blood test can often be a 'false negative' ie wrong but that he had never known the postive one not be confirmed by biopsey....
Hello, I haven't posted to this group for ages, but always read with interest. Feel compelled to reply to this conversation as I am a homoepath and would...
Thanks for you replies everyone. Coeliac UK have also replied to my query and confirmed that indeed toblerone is gluten free. It's listed under "Terrys" in the...
I was just in Tescos and they stock an Organic Balsamic Vinegar from Aspall, which is clearly marked suitable for coeliacs. This is not a cyder vinegar, but a...
Just read about that in society handbook this morning but cannot find now to give direct quote but I think it claimed that the gluten aspect is lost in the...
The 'Mountain Bar' range of white, milk and dark chocolate bars are sold in Marks and Spencers shops and they are very similar to Toblerone and are all gluten...
In reply to Anna who critised those who eat gluten to feel better.... Surely quality of life is the bottom line? There must be some balance between feeling...
This is a new one on me... headaches and weakness from withdrawing gluten. It doesn't happen to me and I can't think of how this might be working. The only...
I do not agree with you at all and neither would any doctor who knows about gluten. If you are intolerant you stay off gluten and that's that. Today it is...
In what way is your health worse when you avoid gluten? Do you get bowel problems, or lack energy? Any drastic change of diet is likely to make you feel...
... When i go gf I get terrible bowel problems, so much so that I now worry about undertaking long journeys where I am unsure of the toilet arrangements. My...
... I do know that but when being gf makes me too ill to work then the temptation to eat a little gluten to give me the energy to get to work is overwhelming....
... <snip> My pre biopsy diet was very low in cakes/biscuits etc but very high in fresh white bread. I have always eaten chocolate so that hasn't changed...
Yes - as I mentioned I couldn't find them in the Directory because they're listed under "Terrys" when it says "Kraft" on the packets with no mention anywhere...
Hi, are you saying that you were diagnosed years ago and still feel SO tired and sick? That is NOT ok!!! Have you seen a doctor about this? If not, please do....
That does sound a nightmare! :-( I notice you also say you have reactive hypoglycaemia. Eating something sugary or starchy is only a short-term solution. To...