Dear John, I certainly know what you mean. I've had the affrontery to actually know I felt very ill for years now. It's just not on! No, seriously, I...
I think this is largely the opinion of the medical profession. They simply don't want you connecting the symptoms yourself becuase they want something...
Hi Julie, John & everybody! ... sympathise ... Er, are you sure I'm not writing this <G> ? I have a twin out there? ... Julie, I'm waving at you :) You *are*...
Well, thank you so much everyone who has taken the time to give me the benefit of their experience! It's great to hear your opinions on Soy sauce, coconut...
snip>Or maybe the medical definition and diagnosis of coeliac disease needs to be looked at and redefined? I could have a new Lesser Coeliac Disease (LCD)...
Dear Julie and GF Rebel (!) Many, many coeliacs are vaguely/acutely/chronically ill for years, decades in some cases, with symptoms that are nothing less than ...
Hello, (To anyone who is registered with UK-Coeliac and Glutenfree Friends, apologies for the X-post.) I visited my doctor today, and expecting a long...
Hi Rodger, Well now, here is my contribution to the super-sensitive list! Coconut Milk - haven't had it since being more sensitive but will try it sometime...
Hi Elf! ... I know my msg probably sounded self-pitying and ranting (is it possible to have that combination?) but having read about CD both in books and on...
Hi, I have finally managed to get diagnosed on my symptoms. I had a blood test in January which was negative, due to me already being on a gluten free diet and...
... <<snip>> ... I had lunch today after an Oxford degree ceremony with a young lady who had just got a first in medicine. I asked her how much she had been...
Hi Sue (... and Steve) Please don't think I was being critical about your post - the very opposite in fact. Just wanted to say that you are not alone in how ...
That is very good news Rachel - well done to you and your doctor! Please let me know how you get on with being officially diagnosed by symptoms alone. I think...
Please forgive my spelling. Hmmm, I thought this looked a bit odd, it should be "paediatrician". I always take care when I am spelling 'dietitians' because in...
Sue, I feel that you should definitely ask about the possibility of osteoporosis - notice I'm not saying 'worry', by the way! We are at risk because we aren't...
I posted my questionnaire on this website and the St. Johns Celiac website and the Delphi forums one, hence the large number of responses I received, just in...
Hi Lesley, You mentioned in your post re Winner Ice Cream that you avoid lactose and yeast. I was wondering what bread you have, I think you said before that...
Sarah, 44% of your respondents may react immediately, but if 100% of 'immediates' responded, and only 1% of 'slows', then the proportion of 'immediates' in the...
When I said the doctor offered no support I meant literally nothing. No dietician, no specialist, no food on prescription, no further tests. He did not even...
I recently went to my GP and asked for a bone mass density scan (BMD) because I am tall, thin and coeliac, and she agreed immediately (I think partially she...
Hi Briar Just interested in your post about making bread without yeast how does it turn out? I have a friend in the same position of you who would love to...
Dear Elf, This sounds just like me. I don't think I'll get a diagnosis, the blood tests have shown nothing so far. It's such a relief to hear that others ...
Dear All, There is a real chance now that Medics both in training and in re-training will be taught about CD. You will remember that I asked some months ago...
Can I point out that bone scans are so inexpensive that we're doing them for every child on the "Children of the Nineties"/"ALSPAC" study here at the ...
Dear all Rachel - I'm really pleased your GP has finally accepted that you do have some form of gluten intolerance. It would have been better if they'd been...
Margaret, Thank you for that explaination (left below). It certainly makes sense, perhaps the first sense I have heard on this particular aspect of CD. I also...
I had an annual medical last Thursday. I don't know if i made a mistake telling the company Dr. about the CD. He want to discuss it in three weeks (well...
David, This is completely off topic but I'm intruiged. When the modern x-ray machine's are being manouvered they use a low radiation source and a TV screen to...
I had a DEXA scan which showed I had osteopenia after my CD diagnosis. I started on Calcichew but the sorbitol in these gave me the runs. I now have calcium &...
