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TuberousSclerosisChatRoom · Tuberous Sclerosis Chat Room

Group Information

  • Members: 125
  • Category: Support
  • Founded: Jan 9, 2005
  • Language: English
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In Memory of
Margo Roxanne Ham
April 7, 1980 - April 20, 2007

Linda Ham's daughter Margo had a SEGA. She had complications from the surgery and was unconcious for quite a while before she died. I know that Linda and her sister and father were by her side at the end and that she died peacefully.

Adrianne Cohen's daughter Ronda just died a couple of weeks ago. She had been diagnosed with LAM in January as well as having a abdominal mass. She was very ill in the first couple of months of 2007, and just never recovered. She also died peacefully with Adrianne and her stepsister, Julia, at her side.

Linda was the second Executive Director of the then National Tuberous Sclerosis Association while it was located in Winfield, Illinois (now the TS Alliance) and Adrianne was the first Executive Director in California where the organization began and one of the 4 founding moms.

It is very hard for me to process loosing these two precious inspirational young girls to TSC, as I had the honor and pleasure of watching Margo grow up, and of meeting and working closely with and knowing well both Linda for many years and later Adrianne when she rejoined the Board of Directors.

See:

http://www.chicagosuburbannews.com:80/westchicago/obituaries/x647177332

http://www.legacy.com/DailyHerald/Obituaries.asp?Page=LifeStory&PersonId=87614732

PLEASE SIGN MARGO HAM'S GUEST BOOK AT:

http://www.legacy.com/DailyHerald/GB/GuestbookEntry.aspx?&PersonID=87614732

There are photos of both Margo and Ronda at younger ages in the video at:

www.caringbridge.org/nc/tuberoussclerosis

My deepest sympathy goes out to both Linda and Adrianne's families.

If any of you need more information to send a card or want to do something as a group, feel free to contact me.

Debbie
NTSA Board Member 1985 - 1994
Mom to Christopher, 32 on August 28th and seizure free 23 years this October (Knock Wood!)

Message History

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2009 1 1 96
2008 6 1 1 1 4 3
2007 64 7 12 26 10 6 2 7 3 2 4 13
2006 10 12 65 61 21 4 6 4 5 6 12 38
2005 26 142 61 28 10 11 5 27 22 15

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