The old MSN site had a singles forum and that whole board moved when it MSN
closed. The new one is:
http://www.bodyodorsupport.com/forumdisplay.php?f=26

--- In Trimethylaminuria@yahoogroups.com, A L Kennedy <ablkennedy@...> wrote:
>
> I know that there used to be a site called TMAU SINGLES because I was a member
in it.  I don't know what happened to it, but it shut down.  I was a group in
the yahoo group section.  I don't think that there is any places where people
like us can meet up just to mingle and possibly find someone to date.  You
could try plentyoffish.com or lovebyrd.com and see what they have.  These sites
are disability sites, but they may have someone on there with our condition?  I
had thought about starting a TMAU singles group myself, but I'm not sure how
many of us are actually wanting to date others of us with this same condition. 
The first group didn't work out and it's not giving me much hope of trying to
get one started.  Good luck!
>
>
>
>
> ________________________________
> From: crystal_ice722 <crystal_ice722@...>
> To: Trimethylaminuria@yahoogroups.com
> Sent: Sat, December 12, 2009 10:15:55 PM
> Subject: [Trimethylaminuria] Being single
>
>  
> It's been a while since i posted here. Its the holidays and it feels kind of
lonely wiht not being in a relationship, no one to buy or exchange presents
with. I was wondering, can anyone recommend any dating sites for people like us
with TMAU or excessive sweating issues? I have tried searching for a couple of
disability dating sites since i consider my self "disabled" as this is a life
challenging disability for me. and with not much luck in meeting anyone. I tried
other sites for "normal" people that have no disability, and i start asking
myself, would they really be interested in talking to me having TMAU. I just
dont know. I just got out of a long 2 1/2 year relationship with someone. I
finally had built up enough courage to tell him about this condition. We broke
up, but it wasn't cause of this, so he says.
>

Due to the weather in the area, the NY / NJ support group meeting scheduled for
today has been canceled. The next meeting will be in mid-January and you will
get a notice soon.

Thank you

i think this could be a good book to pick up to help w our dieting circumstances

Real quick note for those of you at work, attending school, and/or in public
places.

"IF your condition is a covered disability, than there should be no
discriminatory and/or disparate actions brought against you."

IF there are problems that continue, I would suggest the following:

(1) Contact your immediate supervisor, IF you feel comfortable doing so.

(2) Contact your human resources department, in writing and in person.  Keep all
documentation and records of telephone calls made.  Keep all e-mails.  You never
know when you may need this information later on.

(3) Consider writing a general note/e-mail to the person and/or people who are
subjecting you to discrimination and/or who are causing discord in the work
place.  No one wants to feel "picked on" or "singled out".  Sometimes a quick
talk with the person or group, may stop or reduce the constant condescending
remarks/slurs you are being subjected to.  Sometimes a nice short note/e-mail
sent to everyone, may put folks on notice that you have a disability (similar to
cancer or having a terminal illness/disability) and this may reduce and/or stop
the constant taunting you are experiencing.

(4) You have to become proactive!  You have to be strong.  You need to put on
BODY PROTECTIVE GEAR before you leave your home everyday.  Hey, folks are going
to say stuff and it is not fair, but that's life.  Be prepared.  In fact start
telling yourself "I know at least one fool is going to say something to try to
hurt my feelings today.  I REFUSE to give them power of my life!  I am going to
take it and grin/smile!"

When you do this, it freaks folks out and they don't understand why they are not
getting to you.  Sometimes they will stop and find another target because they
are not getting the desired results from you.

(5) Know who you are.  Build up your confidence.  Do not become a door mat and
let folks walk all over you!  Stand up.  This is a battle, this life many of us
have, and you have to be "in it, to WIN it!".  Your attitude should show others
that you are confident, positive, astute, intelligent, and ready to FIGHT if
necessary!  Trust me, folks  do not normally want to mess with someone like
that!  I mean they do not know what they will get!  Perhaps that is why I do not
have as many problems and/or people problems as I once used to?  I merely STOOD
UP and since that day, my life has changed!

You can do this team!

Come on!

It starts TODAY! YEAH!

I am here for you, I have your back!

Just start TODAY, try to do something new.  It can be simple like riding the bus
around the corner, going out to eat at a nice dining venue, asking that person
out on a date, it starts TODAY!

Yes, yes, you are going to get REJECTED but that is part of life!  No one WINS
everything all the time, team!  Remember the old Nike ad "Just Do It!"?   Well
starting TODAY, JUST DO IT!  TRY!

Happy holidays to you all.

Very Sincerely,


Dr. C. :)
(785)-286-7005, Home/Office Telephone Number/Voice-Mail
Electronic Mail:  emporia962000@...

PS:  Education, education, education, education, and more education is  one of
your greatest assets!

"A world class education, is the greatest qualifier in the world!" (President
Obama, 100th Anniversary, NAACP Celebration, June/July 2009)

Real quick note for those of you at work, attending school, and/or in public
places.

"IF your condition is a covered disability, than there should be no
discriminatory and/or disparate actions brought against you."

IF there are problems that continue, I would suggest the following:

(1) Contact your immediate supervisor, IF you feel comfortable doing so.

(2) Contact your human resources department, in writing and in person.  Keep all
documentation and records of telephone calls made.  Keep all e-mails.  You never
know when you may need this information later on.

(3) Consider writing a general note/e-mail to the person and/or people who are
subjecting you to discrimination and/or who are causing discord in the work
place.  No one wants to feel "picked on" or "singled out".  Sometimes a quick
talk with the person or group, may stop or reduce the constant condescending
remarks/slurs you are being subjected to.  Sometimes a nice short note/e-mail
sent to everyone, may put folks on notice that you have a disability (similar to
cancer or having a terminal illness/disability) and this may reduce and/or stop
the constant taunting you are experiencing.

(4) You have to become proactive!  You have to be strong.  You need to put on
BODY PROTECTIVE GEAR before you leave your home everyday.  Hey, folks are going
to say stuff and it is not fair, but that's life.  Be prepared.  In fact start
telling yourself "I know at least one fool is going to say something to try to
hurt my feelings today.  I REFUSE to give them power of my life!  I am going to
take it and grin/smile!"

When you do this, it freaks folks out and they don't understand why they are not
getting to you.  Sometimes they will stop and find another target because they
are not getting the desired results from you.

(5) Know who you are.  Build up your confidence.  Do not become a door mat and
let folks walk all over you!  Stand up.  This is a battle, this life many of us
have, and you have to be "in it, to WIN it!".  Your attitude should show others
that you are confident, positive, astute, intelligent, and ready to FIGHT if
necessary!  Trust me, folks  do not normally want to mess with someone like
that!  I mean they do not know what they will get!  Perhaps that is why I do not
have as many problems and/or people problems as I once used to?  I merely STOOD
UP and since that day, my life has changed!

You can do this team!

Come on!

It starts TODAY! YEAH!

I am here for you, I have your back!

Just start TODAY, try to do something new.  It can be simple like riding the bus
around the corner, going out to eat at a nice dining venue, asking that person
out on a date, it starts TODAY!

Yes, yes, you are going to get REJECTED but that is part of life!  No one WINS
everything all the time, team!  Remember the old Nike ad "Just Do It!"?   Well
starting TODAY, JUST DO IT!  TRY!

Happy holidays to you all.

Very Sincerely,


Dr. C. :)
(785)-286-7005, Home/Office Telephone Number/Voice-Mail
Electronic Mail:  emporia962000@...

PS:  Education, education, education, education, and more education is  one of
your greatest assets!

"A world class education, is the greatest qualifier in the world!" (President
Obama, 100th Anniversary, NAACP Celebration, June/July 2009)

"ADA AMENDMENTS ACT OF 2008:  UPDATES"

"ADA Amendments Act of 2008:  UPDATES"

By



Cheryl "StillStanding" Fields, MBA, Ph.D. (ABD)



The ADA Amendments Act of 2008 (ADAAA) was enacted on September 25, 2008, and
became effective on January 1, 2009. This law made a number of significant
changes to the definition of "disability." Congress directed United States Equal
Employment Opportunity Commission [EEOC] to amend its American with Disabilities
Act [ADA] regulation to reflect the changes made by the ADAAA, which is why EEOC
has approved a Notice of Proposed Rulemaking (NPRM).

The NPRM proposes changes both to the ADA regulation itself and to the
Interpretive Guidance (also known as the Appendix) that was published at the
same time as the original ADA regulation. The Appendix provides further
explanation on how the regulation should be interpreted.



Answers to some of the questions below provide citations to specific sections of
the proposed regulation and the corresponding section of the proposed Appendix
(29 C.F.R. section 1630), or to portions of the current ADA regulation that have
not changed as a result of the ADAAA. These citations permit you to see where
particular issues are addressed in the proposed regulation or clarify what parts
of the current regulation are unaffected by the proposed regulation.



1. Does the ADAAA apply to discriminatory acts that occurred prior to January 1,
2009?



No. The ADAAA does not apply retroactively.



2. What is the purpose of the ADAAA?



The ADAAA states that its purpose is to reinstate a broad scope of protection"
by expanding the definition of the term "disability." Congress found that
persons with many types of impairments – including epilepsy, diabetes, multiple
sclerosis, intellectual disabilities (formerly called mental retardation), major
depression, and bipolar disorder – had been unable to bring ADA claims because
they were found not to meet the ADA's definition of "disability."



3. Do all of the changes in the ADAAA apply to provisions of the Rehabilitation
Act prohibiting discrimination by federal agencies, federal contractors, and
recipients of federal financial assistance?



Yes. The ADAAA specifically states that all of its changes also apply under
sections 501 (federal employment), 503 (federal contractors), and 504
(recipients of federal financial assistance and services and programs of federal
agencies) of the Rehabilitation Act.



4. How does the ADAAA define "disability"?



The ADAAA defines a disability as:

·          a physical or mental impairment that substantially limits a major
life activity; or

·          a record of a physical or mental impairment that substantially
limited a major life activity; or

·          when an entity (e.g., an employer) takes an action prohibited by the
ADA based on an actual or perceived impairment.

5. What are "major life activities"?



They are basic activities that most people in the general population can perform
with little or no difficulty. The ADAAA provides a non-exhaustive list of
examples of major life activities. Many are drawn from the 1991 ADA regulation
and subsequent EEOC guidances, or from ADA and Rehabilitation Act court cases.
Examples of major life activities include caring for oneself, performing manual
tasks, seeing, hearing, eating, sleeping, walking, standing, sitting, reaching,
lifting, bending, speaking, breathing, learning, reading, concentrating,
thinking, communicating, interacting with others, and working. Three of these
examples – sitting, reaching, and interacting with others – are not specifically
included in the ADAAA's non-exhaustive list of major life activities, but are
included in the proposed regulation.



The ADAAA also says that major life activities include the operation of major
bodily functions, including functions of the immune system, normal cell growth,
digestive, bowel, bladder, neurological, brain, circulatory, respiratory,
endocrine, and reproductive functions. The proposed ADA regulation adds several
other examples -- hemic, lymphatic, musculoskeletal, special sense organs and
skin, genitourinary, and cardiovascular.



To meet one of the first two definitions of "disability," an individual must
either have an impairment that substantially limits performance of one major
life activity or have a record of an impairment that substantially limited one
major life activity. It does not matter if the major life activity is from the
first list (such as hearing or lifting) or the new list of major bodily
functions. It is possible in many situations that an individual will be
substantially limited (or have a record of such a limitation) in more than one
major life activity.



6. When does an impairment "substantially limit" a major life activity?



To have a disability (or to have a record of a disability) an individual must be
substantially limited in performing a major life activity as compared to most
people in the general population. An impairment need not prevent, or
significantly or severely restrict, the individual in performing a major life
activity to be considered "substantially limiting."



7. Can impairments that are episodic or in remission be considered disabilities?



Yes. The ADAAA and the proposed regulation specifically state that an impairment
that is episodic or in remission meets the definition of disability if it would
substantially limit a major life activity when active. This means that chronic
impairments with symptoms or effects that are episodic rather than present all
the time can be a disability even if the symptoms or effects would only
substantially limit a major life activity when the impairment is active. The
proposed regulation says that examples of impairments that are episodic include
epilepsy, hypertension, multiple sclerosis, asthma, diabetes, major depression,
bipolar disorder, and schizophrenia.



8. Are there impairments that will consistently meet the definition of
disability?



Yes. The proposed regulation says that some impairments due to certain
characteristics associated with them will consistently meet the definition of
disability when analyzed in light of the ADAAA's directives that:

the term "disability" shall be construed broadly
an impairment's substantial limitation on a major bodily function is sufficient
to constitute a disability
the ameliorative effects of mitigating measures (other than ordinary eyeglasses
or contact lenses) shall be disregarded
impairments that are episodic or in remission are disabilities if they would be
substantially limiting when active
The proposed regulation identifies the following as examples of impairments that
consistently will meet the definition of "disability": deafness, blindness,
intellectual disability (formerly known as mental retardation), partially or
completely missing limbs, mobility impairments requiring use of a wheelchair (a
mitigating measure), autism, cancer, cerebral palsy, diabetes, epilepsy,
HIV/AIDS, multiple sclerosis, muscular dystrophy, major depression, bipolar
disorder, post-traumatic stress disorder, obsessive-compulsive disorder, and
schizophrenia. The individualized assessment of whether a substantial limitation
exists can be done very quickly and easily with respect to these types of
impairments, and will consistently result in a finding of disability. This is
not an exhaustive list of examples, which means that impairments not listed in
the proposed regulation could still consistently meet the definition of
disability.

The proposed regulation also provides examples of impairments that may be
substantially limiting for some individuals but not for others. These types of
impairments, which include asthma, back and leg impairments, and learning
disabilities, may require somewhat more analysis to determine whether they are
substantially limiting for a particular individual than those impairments that
consistently meet the definition of "disability," although the level of analysis
required still should not be extensive. (See proposed regulation sections
1630.2(j)(5) and (6), and corresponding Appendix section 1630.2(j).)



9. What does the NPRM say about how to determine if someone is substantially
limited in working?



An individual with a disability will usually be substantially limited in another
major life activity, therefore generally making it unnecessary to consider
whether the individual is substantially limited in working. However, there may
be situations in which an impairment substantially limits a person's ability to
meet certain job-related requirements, even though it does not impose
substantial limitations outside the workplace. The proposed regulation says that
an impairment substantially limits the major life activity of working when it
substantially limits an individual's ability to perform, or to meet the
qualifications for, a "type of work."



10. What does it mean for an employer to "regard" an individual as having a
disability?



Under the ADAAA, an employer "regards" an individual as having a disability if
it takes an action prohibited by the ADA (e.g., discriminatory failure to hire,
termination, or demotion) based on an individual's impairment or on an
impairment the employer believes the individual has, unless the impairment is
transitory (lasting or expected to last for six months or less) and minor. This
new formulation of "regarded as" having a disability is different from the
original ADA formulation. No longer does one have to show that the employer
believed the impairment (or perceived impairment) substantially limited
performance of a major life activity.


Cheryl "StillStanding" Fields, MBA, Ph.D.

Electronic Mail:  emporia962000@...

(785)-286-7005, Home Office/Voice-Mail

18 December 2009






NOTE:  We are aware of e-mails being sent from this e-mail account, that appear
to be "intentionally and maliciously" SPAM related.  Unfortunately, we are aware
of possible former disgruntled employees that may have "hacked" our e-mail
address accounts.  Effective 12/1/09, if you all receive any e-mails/telephone
calls that sound "suspicious", please contact us or Yahoo! directly at:
(1-866-562-7219).  We are working on this issue.  We apologize in advance for
any inconvenience and/or miscommunication this may have caused.  Please double
check with us if you all receive a telephone call and/or an e-mail message
stating an order has been cancelled, an offer has been refused, or any
"negative" communication that has been sent from our Yahoo! e-mail account or
from any "anonymous" e-mail addresses/telephone numbers.  Thank you so very much
for your continued support during this most difficult time, as we investigate
this issue.  [Cheryl Fields & Team]

Quote: Quitters NEVER win.  Winners NEVER quit!  There is no such thing as a
FREE ride! (Rosa Parks)


"Be who you are and say what you feel, because those who mind don't matter and
those who matter don't mind."
Theodore Seuss Giesel

Just wondering what is wrong with someone saying somebody bathed in Irish
Spring. Isn't that a soap? a good smell?

Have you tried the low choline diet?

Shania

--- In Trimethylaminuria@yahoogroups.com, Gabby Turney <bullygabby@...> wrote:
>
>
> Hi Juliaks2007,
>  
> I am happy that you were able to find out what your condition was and have it
treated successfully.  What about people who have gone through 10 times as many
tests and procedures, and whose doctors swear they do not smell anything? 
>  
> Now you have to understand that I have problems with my sense of smell, I can
only tell 'tones' and chemical based products and fragrances just burn my eyes
and mouth like rubbing alcohol. But I am going through major harassment and
hazing by my boss and coworkers both at work and on the internet. This has
escalated from there this year to church, the park, and most retail
establishments.  Yes, I left the christian church this year..  Wrong forum,
not going there :)
>  
> Yet everyone, all doctors my boss and HR denies they smell anything and
everything that is going on.  Here is short list of the procedures I have been
through in the past 3 years:
> (for the sake of space this is one giant run-on and excuse my spelling)
>  
> Doctors:  2 primary care, dentist, ear-nose-throat, internal medicine,
endocrinologist, several neurologists  and anesthesiologists urologist, 3
podiatrists, allergist, GYN, chiropractor, Chinese herbal medicine and
acupuncture for pain relief.  I make most Dr appointments immediately after
work, and one ever smells anything.  Even my chiropractor says (after several
times asking) 'I get up and close with a lot of people, and you do not
smell.' 
>  
> Tests: Sinus probe, colonoscopy, GI xray, pelvic ultrasound, liver, kidney,
gallbladder, lung tests, regular blood tests checking blood sugar, liver and
kidney function, thyroid function, adrenal function, etc, etc, etc.  Also MRI
of brain, neck, upper and lower back, cat scans, electromagnetic therapy, EKG,
and upper and lower EMG's.  I've tried antibiotics, metrodenizole, candida
diet, anti-inflammatory diet, as suggested by Dr's.. 
>  
> Many tests/doctors were in order to diagnose the back problems, (peripheral
Europa and stenosis) but they all think I am crazy because I ask the same
questions about odor every time I go in. I even had a nurse practitioner tell
me 'You just need to go to church and let them find you a husband... like I
did.'
> (hahahahaaaa. ok)
>  
> So then I become one of those crazy people who 'b*#ches and moans and tries
all these BS products' and basically becomes obsessive compulsive because of the
harassment and abuse.  I actually believed my new boss last December who said
'Please come to me, you don't need to go to HR.  I would tell you if I ever
smelled anything offensive, and we will make the harassment stop.'  But then I
find she is laughing and bad mouthing me behind my back and actually promoting
the harassment.  Nice, huh? 
>  
> My regular physician will agree to anything at this point because she thinks
I'm crazy, so I have tried Presc Drysol, clindamycin lotion. the met, diflucan,
and several others. Heavy duty deodorant soaps, OTC creams, lotions, sprays,
powders, excessive feminine products, (even though they burn my eyes and throat,
it is no different than sitting in the office every day with whatever they are
spraying in my cube and face)  body wipes, antibacterial sanitizer, and even
alcohol during the day. (not the drinking kind, though I've been tempted) :)
>  
>
> Dr. Katz TheraBreath and Breath Appeal toothpaste, mouthwash, mints, etc.
Hydrogen peroxide rinses.  Many homeopathic suggestions and Chinese herbal
remedies suggested such as Zinc oxide powder, zinc tabs, Sulfuric mud and
bentonite clay wraps and soaks, exfoliating body washes, Liquid Chlorophyll,
Charcoal tablets, Aloe Vera juice, fasting, Lavilin, iodine, Dr. mist, zeilonka
disks, colonics, Parasite cleanse, candida diet, blood & liver detox, chelation,
wheat grass and clay drinks to absorb\eliminate toxins, sage supplements,
oriental detox teas, reiki. hydrotherapy.. 
>  
> Soaks in: Vinegar (both), black tea, Epsom salt, baking soda, ginger root
(boiled and cooled), sea salt, neem oil, lemon juice, tomato juice,
vodka, clove, lavender, and sage essential oils, even BLEACH in the evening
before my shower. (No not before work)
>  
> I eliminated all onion, peppers, garlic, ital dressing, fish, meats, anything
that supposedly has a strong smell. But I could take leftover steamed veggies
with a little salt and pepper (not even reheated) or an apple and orange or
grapefruit, and my coworkers throw little hissy fits. 
>  
> Yes I shower every night, and again in the morning. I often shower when I get
home from work before I go anywhere. I scrub my skin raw head to toe. I use
prescription strength deodorants, neti pot each morning, tongue scraper, brush
and floss at least twice a day. wash my clothes in unscented detergent and an
enzyme cleaner, and rinse in vinegar and never wear anything more than once.  I
have neuropathy in my feet and soak them every evening in ice water with alcohol
or epsom salts, I would try anything for a week or so and my boss would lie to
my face and go laugh about it with my coworkers.
>  
> Anything I wear that has 'fragrance' is really amplified. One time a Dr.
suggested a scented deodorant in addition to the prescription strength I use
'just in case to hide any odor'  So the next day I used secret fresh (only
under my arms) and this creep at work went on and on 'somebody bathed in Irish
Spring!  somebody bathed in Irish Spring!'  and my boss just sat across the
room laughing hysterically.
>  
> I apologize to everyone for the book, the rant, poor grammar and spelling, but
I am not trying to win any awards here, and do not want to spend all nite in
front of the computer. 
>  
> Again I am very happy for you, but it is not that easy for everyone.  I found
out about TMAU in August I believe, and almost didn't read the article because I
don't get 'fish' comments. Once I did though I realized so many of the symptoms,
comments and problems directly mirrored what I am going through.
>  
> I saw a geneticist in September and did the urine tests with the choline load
on September 16th through Arkansas children's hospital.  It has been 14 weeks
and still no results.....
>  
> signed 'waiting (im)patiently'
>  
> --- On Thu, 12/17/09, juliaks2007 <juliaks2007@...> wrote:
>
>
> From: juliaks2007 <juliaks2007@...>
> Subject: [Trimethylaminuria] BODY ODOR AND HALITOSIS
> To: Trimethylaminuria@yahoogroups.com
> Date: Thursday, December 17, 2009, 11:48 AM
>
>
>  
>
>
>
> anyone with these symptoms- i've been dealing with these problems for years
> I finally got a dr to give me a referral to a gasterolenterolist who ordered
tests for me
> I got a GI XRAY- A SMALL BOWEL FOLLOW THROUGH- and AN ULTRASOUND OF THE
STOMACH
>
> they found a HIATUS HERNIA and CRYSTALLIZATION AND CHOLESTROL IN THE
GALLBLADDER (gallbladder attacks)
>
> both of those can lead to halitosis and other problems
>
> if you are experiencing any of these issues try to get the GI XRAY
>
> i have no insurance- if u also dont ask me and I can direct you as how to get
these procedures
>
> everyone on this site b*tches and moans constantly and tries all of these b..s
products that are supposed to be "cures" -- if u actually want to get something
done try and get the GI XRAY done
>
> I also have bacterial vaginosis (fishy smell) which they prescribed
metrodenzidole for
>
> I am hoping that I can get surgery to fix the hiatus hernia and removal of the
gallbladder
>

18 December 2009


Happy Holidays!

NOTE:  Sorry I have been off the boards for a while.  I have had some family
illness and other issues that I am currently dealing with.

For those of you that know me, you know I am only an e-mail or telephone call
away.

I know the holidays and/or everyday can be very hard for some of you, but
remember to "KEEP YOUR HEAD UP!!!  TMAU does not have to be a DEATH sentence
team!"

Life can give you some strange twists and turns, the key is knowing how to deal
with it.  It's NOT what happens to you, it is how you REACT to it the matters
most.

I want to keep encouraging EVERYONE to go to school, apply for the best jobs,
find that special someone in your life----after all you are still LIVING team!

Yeah, yeah, I know, I know, folks are going to say things about you, make fun of
you, call you names, try to block/stop you, but team that goes on with almost
everyone, regardless if you all have TMAU or not!

Wake up in the morning like I do team, with this attitude:  "IT STARTS TODAY!!! 
Today I am making a positive effort to get what I believe I can achieve.  I know
I can have it, I just have to reach up and grab it!"

No more crying, no more complaining, no more excuses, the positive change in
your lives starts TODAY!  (Now stop reading e-mail and get busy getting your
dreams, is it a new house, a new job, a promotion, going back to school, asking
someone out for a date?)

IT STARTS TODAY!  Yes, U can do this team!

Happy holidays.  :)

Very Sincerely,



Cheryl Fields, MBA, Ph.D. (ABD)
Post Office Box 5810
Topeka, Kansas 66605
(785)-286-7005-Home Telephone Number (Please state "TMAU" in the voice mail
message, to ensure a return call.)
Electronic Mail:  emporia962000@...

PS:  Learn to EXCEPT the best possible outcome.  Quit saying "I will NEVER get
that job!"  Or "Aw, they are not going to admit me to Yale Law School!"  Stop
giving yourself NEGATIVE thoughts!  Start to believe you can be the next CEO of
a major company and you know what, you just might achieve it!  Aim high!

PS2:  I am NOT supposed to be here!  Oh yeah, I was told I was too stupid for
college, my test scores were too low----and oh yeah, that was a bachelor's
degree, a master's degree, and a doctorate degree ago!  Thank God I did not
listen to the NEGATIVE voices!  I was also told I would NEVER earn six figures
before I was 30 years old!  I was told that was impossible and who would hire
someone like me with TMAU?!  Well I did obtain a six figure job and I did it
while I was in my 30's!  I am NOT bragging, I am trying to show you all that you
can obtain almost anything you want to.  (1) Have your mind right!  (2) Plan,
prepare, and be ready to receive the next opportunity! (3) Have confidence! 
Folks are SURPRISED at the HIGH level of CONFIDENCE I have in myself!  Heck, I
have even been called "cocky"!  Imagine that, a little minority woman, that was
called a "dreamer", but yet I continue to achieve things I have set out to do
for myself!

The "nay-sayers" might be in for another surprise, I just applied for and was
contacted regarding a Vice President position.  Yep!  A person with TMAU, can be
and just may be a Vice President in a multi-chain company!  Do NOT tell me what
you all can NOT do!  I will not hear it!  No more excuses, the positive change
starts TODAY!  :)

i hope i too get lucky im overdue after 11 years getting to no where terrible
time with docs denial of tmau only ever managed to get ibs test thats supposed
to be negative anyway so im singing up to a new one hoping for the best im also
doing the mebo-biolab tests to try to get a better understanding of things well
done julia hope it works out the fist step has to be indentifing the problem
then trying to cure/manage it

good luck to everyone

  - In Trimethylaminuria@yahoogroups.com, Renee <reneeme41@...> wrote:
>
> I think you are one of the lucky ones I have had most of the same tests and
the doctor tells me that nothing is wrong and that is why I have tried to heal
myself using all of the methods described by Rob. There is no need to put
others down just because you have found a great doctor and possible cure for
yourself.  You have no idea how hard it is to find a doctor who will try to
address the issue of TMAU.  I have had this problem for over 17 years and only
one doctor tried to help with metrodenzidole which only worked for a little
while.   I hope you have better luck with metrodenzidole.
>
>
>
>
> ________________________________
> From: juliaks2007 <juliaks2007@...>
> To: Trimethylaminuria@yahoogroups.com
> Sent: Thu, December 17, 2009 3:48:51 AM
> Subject: [Trimethylaminuria] BODY ODOR AND HALITOSIS
>
>  
> anyone with these symptoms- i've been dealing with these problems years
> I finally got a dr to give me a referral to a gasterolenterolist for who
ordered tests for me
> I got a GI XRAY- A SMALL BOWEL FOLLOW THROUGH- and AN ULTRASOUND OF THE
STOMACH
>
> they found a HIATUS HERNIA and CRYSTALLIZATION AND CHOLESTROL IN THE
GALLBLADDER (gallbladder attacks)
>
> both of those can lead to halitosis and other problems
>
> if you are experiencing any of these issues try to get the GI XRAY
>
> i have no insurance- if u also dont ask me and I can direct you as how to get
these procedures
>
> everyone on this site b*tches and moans constantly and tries all of these b.s
products that are supposed to be "cures" -- if u actually want to get something
done try and get the GI XRAY done
>
> I also have bacterial vaginosis (fishy smell) which they prescribed
metrodenzidole for
>
> I am hoping that I can get surgery to fix the hiatus hernia and removal of the
gallbladder
>

I had my gallbladder removed due to gallstones, I had the halitosis prior to
having my gallbladder taken out and I developed the body odor several years
after having my gallbladder taken out.

Shania

--- In Trimethylaminuria@yahoogroups.com, "juliaks2007" <juliaks2007@...> wrote:
>
> anyone with these symptoms-  i've been dealing with these problems for years
> I finally got a dr to give me a referral to a gasterolenterolist who ordered
tests for me
> I got a GI XRAY- A SMALL BOWEL FOLLOW THROUGH- and AN ULTRASOUND OF THE
STOMACH
>
> they found a HIATUS HERNIA and CRYSTALLIZATION AND CHOLESTROL IN THE
GALLBLADDER (gallbladder attacks)
>
> both of those can lead to halitosis and other problems
>
> if you are experiencing any of these issues try to get the GI XRAY
>
> i have no insurance- if u also dont ask me and I can direct you as how to get
these procedures
>
> everyone on this site b*tches and moans constantly and tries all of these b.s
products that are supposed to be "cures"  -- if u actually want to get something
done try and get the GI XRAY done
>
> I also have bacterial vaginosis (fishy smell) which they prescribed
metrodenzidole for
>
> I am hoping that I can get surgery to fix the hiatus hernia and removal of the
gallbladder
>

Hi! Have you been tested for TMAU?

I´m not very sure that the conditions you describe are able to produce such a
strong odour as TMAU does + they are usually acompanied by another symptoms.



--- In Trimethylaminuria@yahoogroups.com, "juliaks2007" <juliaks2007@...> wrote:
>
> anyone with these symptoms-  i've been dealing with these problems for years
> I finally got a dr to give me a referral to a gasterolenterolist who ordered
tests for me
> I got a GI XRAY- A SMALL BOWEL FOLLOW THROUGH- and AN ULTRASOUND OF THE
STOMACH
>
> they found a HIATUS HERNIA and CRYSTALLIZATION AND CHOLESTROL IN THE
GALLBLADDER (gallbladder attacks)
>
> both of those can lead to halitosis and other problems
>
> if you are experiencing any of these issues try to get the GI XRAY
>
> i have no insurance- if u also dont ask me and I can direct you as how to get
these procedures
>
> everyone on this site b*tches and moans constantly and tries all of these b.s
products that are supposed to be "cures"  -- if u actually want to get something
done try and get the GI XRAY done
>
> I also have bacterial vaginosis (fishy smell) which they prescribed
metrodenzidole for
>
> I am hoping that I can get surgery to fix the hiatus hernia and removal of the
gallbladder
>

anyone with these symptoms-  i've been dealing with these problems for years
I finally got a dr to give me a referral to a gasterolenterolist who ordered
tests for me
I got a GI XRAY- A SMALL BOWEL FOLLOW THROUGH- and AN ULTRASOUND OF THE STOMACH

they found a HIATUS HERNIA and CRYSTALLIZATION AND CHOLESTROL IN THE GALLBLADDER
(gallbladder attacks)

both of those can lead to halitosis and other problems

if you are experiencing any of these issues try to get the GI XRAY

i have no insurance- if u also dont ask me and I can direct you as how to get
these procedures

everyone on this site b*tches and moans constantly and tries all of these b.s
products that are supposed to be "cures"  -- if u actually want to get something
done try and get the GI XRAY done

I also have bacterial vaginosis (fishy smell) which they prescribed
metrodenzidole for

I am hoping that I can get surgery to fix the hiatus hernia and removal of the
gallbladder

----- Original Message -----

From: Jersey

To: Trimethylaminuria@yahoogroups.com

Sent: Wednesday, December 16, 2009 8:32 PM

Subject: [Trimethylaminuria] Re: Time to stop freeloading and share my story/ I have a few ???'s

 

I may be wrong but if TMAU is caused by FMO3 deficiency (primary TMAU) then metronadizale probably won´t work, but if it is secondary (due to bacterial overgrowth) then the antibiotics are more likely to be effective

--- In Trimethylaminuria@yahoogroups.com, "kim h" <kimbo232@...> wrote:
>
> beats me. from my understanding of whatever it was i read, if your test was positive it likely wouldn't work. but if the test was neg something else was causing the odor so maybe give it a try? when we get the results of kylie's test back i'm planning on taking all this info to my doc and see what she says. my thoughts are what harm can it be? but i'm no doc...
> ----- Original Message -----
> From: shania7435
> To: Trimethylaminuria@yahoogroups.com
> Sent: Wednesday, December 16, 2009 4:36 PM
> Subject: [Trimethylaminuria] Re: Time to stop freeloading and share my story/ I have a few ???'s
>
>
>
> if we tried the metronidazole,would our symptoms go away? I've always wondered that(but somehow doubt it)
>
> --- In Trimethylaminuria@yahoogroups.com, "kim h" <kimbo232@> wrote:
> >
> > found it, sounds like it is the child you were talking about. here's the link http://www.bloodbornebodyodorandhalitosis.com/2009/03/interview-nigel-manning-tester-of.html
> > it's in the part about 2ndary TMAU only being tested for in the UK. i seem to remember reading something else about this awhile back too, when i read the article above i remember thinking i'd heard about antibiotic treatments before. too long ago to look it up though and i have no idea where i saw it. HTH :)
> > ----- Original Message -----
> > From: kim h
> > To: Trimethylaminuria@yahoogroups.com
> > Sent: Wednesday, December 16, 2009 2:33 PM
> > Subject: Re: [Trimethylaminuria] Re: Time to stop freeloading and share my story/ I have a few ???'s
> >
> >
> >
> >
> > can't remember. i'll go back through my browsing history on my laptop and see what i can find. it was w/in the last week or so. will post if i can find it.
> > ----- Original Message -----
> > From: shania7435
> > To: Trimethylaminuria@yahoogroups.com
> > Sent: Wednesday, December 16, 2009 1:24 PM
> > Subject: [Trimethylaminuria] Re: Time to stop freeloading and share my story/ I have a few ???'s
> >
> >
> >
> > Wish I knew where you read this. Was it the child that took a course of Metronidazole and their symptoms went away?
> >
> > Shania
> >
> > --- In Trimethylaminuria@yahoogroups.com, "kim h" <kimbo232@> wrote:
> > >
> > > not sure if this will help, but i recently read online somewhere, something about if you test negative for TMAU but still have symptoms it could be an imbalance of bacteria in the gut and a course of antibiotics could take care of it. sounds like a too good to be true scenario and not sure where i read it, or which antibiotic to use, but i remember reading that people have suffered for years and the antibiotic essentially cured the problem. if you haven't done so already maybe you could research it and take the info to you doc. can't hurt to try right? this is the scenario we're hoping for in our daughter since her TMAU symptoms were first noticed when she was in the hosp w/ kawasikis disease. we'll know more when her test results come back though. HTH :)
> > > ----- Original Message -----
> > > From: L Rivers
> > > To: Trimethylaminuria@yahoogroups.com
> > > Sent: Tuesday, December 15, 2009 7:53 PM
> > > Subject: Re: [Trimethylaminuria] Re: Time to stop freeloading and share my story/ I have a few ???'s
> > >
> > >
> > >
> > >
> > > Hi
> > >
> > > I been a member for a while but rarely email and received much comfort from reading the comments. I experienced the same as everyone else. I worked for the Government and have has my space sprayed and many comments directly and indirectly. I flew to Philly and tested (urine) negatively about 3 years ago and today received my blood test from HBRI and cannot believe it stated, "the conclusion is, that barring an extremely rare mutation in the promoter region, this individual (me) should metabolize TMA normally". Can you please help me to understand this, although it should be good that I do not have TMA, how could I experience this on a daily basis for years and not have it. I not been on the diet yet I was waiting on the results before starting it. At least if the test was positive I had the diet and the group. The second page of the results provides all the DNA sites studied and the results of DNA sequencing. Let me know if this would help you understand.
> > >
> > >
> > >
> > >
> > > ----------------------------------------------------------
> > >
> >
>

I may be wrong but if TMAU is caused by FMO3 deficiency (primary TMAU) then
metronadizale probably won´t work, but if it is secondary (due to bacterial
overgrowth) then the antibiotics are more likely to be effective


--- In Trimethylaminuria@yahoogroups.com, "kim h" <kimbo232@...> wrote:
>
> beats me.  from my understanding of whatever it was i read, if your test was
positive it likely wouldn't work.  but if the test was neg something else was
causing the odor so maybe give it a try?  when we get the results of kylie's
test back i'm planning on taking all this info to my doc and see what she says. 
my thoughts are what harm can it be? but i'm no doc...
>   ----- Original Message -----
>   From: shania7435
>   To: Trimethylaminuria@yahoogroups.com
>   Sent: Wednesday, December 16, 2009 4:36 PM
>   Subject: [Trimethylaminuria] Re: Time to stop freeloading and share my
story/ I have a few ???'s
>
>
>
>   if we tried the metronidazole,would our symptoms go away? I've always
wondered that(but somehow doubt it)
>
>   --- In Trimethylaminuria@yahoogroups.com, "kim h" <kimbo232@> wrote:
>   >
>   > found it, sounds like it is the child you were talking about. here's the
link
http://www.bloodbornebodyodorandhalitosis.com/2009/03/interview-nigel-manning-te\
ster-of.html
>   > it's in the part about 2ndary TMAU only being tested for in the UK. i seem
to remember reading something else about this awhile back too, when i read the
article above i remember thinking i'd heard about antibiotic treatments before.
too long ago to look it up though and i have no idea where i saw it. HTH :)
>   > ----- Original Message -----
>   > From: kim h
>   > To: Trimethylaminuria@yahoogroups.com
>   > Sent: Wednesday, December 16, 2009 2:33 PM
>   > Subject: Re: [Trimethylaminuria] Re: Time to stop freeloading and share my
story/ I have a few ???'s
>   >
>   >
>   >
>   >
>   > can't remember. i'll go back through my browsing history on my laptop and
see what i can find. it was w/in the last week or so. will post if i can find
it.
>   > ----- Original Message -----
>   > From: shania7435
>   > To: Trimethylaminuria@yahoogroups.com
>   > Sent: Wednesday, December 16, 2009 1:24 PM
>   > Subject: [Trimethylaminuria] Re: Time to stop freeloading and share my
story/ I have a few ???'s
>   >
>   >
>   >
>   > Wish I knew where you read this. Was it the child that took a course of
Metronidazole and their symptoms went away?
>   >
>   > Shania
>   >
>   > --- In Trimethylaminuria@yahoogroups.com, "kim h" <kimbo232@> wrote:
>   > >
>   > > not sure if this will help, but i recently read online somewhere,
something about if you test negative for TMAU but still have symptoms it could
be an imbalance of bacteria in the gut and a course of antibiotics could take
care of it. sounds like a too good to be true scenario and not sure where i read
it, or which antibiotic to use, but i remember reading that people have suffered
for years and the antibiotic essentially cured the problem. if you haven't done
so already maybe you could research it and take the info to you doc. can't hurt
to try right? this is the scenario we're hoping for in our daughter since her
TMAU symptoms were first noticed when she was in the hosp w/ kawasikis disease.
we'll know more when her test results come back though. HTH :)
>   > > ----- Original Message -----
>   > > From: L Rivers
>   > > To: Trimethylaminuria@yahoogroups.com
>   > > Sent: Tuesday, December 15, 2009 7:53 PM
>   > > Subject: Re: [Trimethylaminuria] Re: Time to stop freeloading and share
my story/ I have a few ???'s
>   > >
>   > >
>   > >
>   > >
>   > > Hi
>   > >
>   > > I been a member for a while but rarely email and received much comfort
from reading the comments. I experienced the same as everyone else. I worked for
the Government and have has my space sprayed and many comments directly and
indirectly. I flew to Philly and tested (urine) negatively about 3 years ago and
today received my blood test from HBRI and cannot believe it stated, "the
conclusion is, that barring an extremely rare mutation in the promoter region,
this individual (me) should metabolize TMA normally". Can you please help me to
understand this, although it should be good that I do not have TMA, how could I
experience this on a daily basis for years and not have it. I not been on the
diet yet I was waiting on the results before starting it. At least if the test
was positive I had the diet and the group. The second page of the results
provides all the DNA sites studied and the results of DNA sequencing. Let me
know if this would help you understand.
>   > >
>   > >
>   > >
>   > >
>   > > ----------------------------------------------------------
>   > >
>   >
>

----- Original Message -----

From: shania7435

To: Trimethylaminuria@yahoogroups.com

Sent: Wednesday, December 16, 2009 4:36 PM

Subject: [Trimethylaminuria] Re: Time to stop freeloading and share my story/ I have a few ???'s

 

if we tried the metronidazole,would our symptoms go away? I've always wondered that(but somehow doubt it)

--- In Trimethylaminuria@yahoogroups.com, "kim h" <kimbo232@...> wrote:
>
> found it, sounds like it is the child you were talking about. here's the link http://www.bloodbornebodyodorandhalitosis.com/2009/03/interview-nigel-manning-tester-of.html
> it's in the part about 2ndary TMAU only being tested for in the UK. i seem to remember reading something else about this awhile back too, when i read the article above i remember thinking i'd heard about antibiotic treatments before. too long ago to look it up though and i have no idea where i saw it. HTH :)
> ----- Original Message -----
> From: kim h
> To: Trimethylaminuria@yahoogroups.com
> Sent: Wednesday, December 16, 2009 2:33 PM
> Subject: Re: [Trimethylaminuria] Re: Time to stop freeloading and share my story/ I have a few ???'s
>
>
>
>
> can't remember. i'll go back through my browsing history on my laptop and see what i can find. it was w/in the last week or so. will post if i can find it.
> ----- Original Message -----
> From: shania7435
> To: Trimethylaminuria@yahoogroups.com
> Sent: Wednesday, December 16, 2009 1:24 PM
> Subject: [Trimethylaminuria] Re: Time to stop freeloading and share my story/ I have a few ???'s
>
>
>
> Wish I knew where you read this. Was it the child that took a course of Metronidazole and their symptoms went away?
>
> Shania
>
> --- In Trimethylaminuria@yahoogroups.com, "kim h" <kimbo232@> wrote:
> >
> > not sure if this will help, but i recently read online somewhere, something about if you test negative for TMAU but still have symptoms it could be an imbalance of bacteria in the gut and a course of antibiotics could take care of it. sounds like a too good to be true scenario and not sure where i read it, or which antibiotic to use, but i remember reading that people have suffered for years and the antibiotic essentially cured the problem. if you haven't done so already maybe you could research it and take the info to you doc. can't hurt to try right? this is the scenario we're hoping for in our daughter since her TMAU symptoms were first noticed when she was in the hosp w/ kawasikis disease. we'll know more when her test results come back though. HTH :)
> > ----- Original Message -----
> > From: L Rivers
> > To: Trimethylaminuria@yahoogroups.com
> > Sent: Tuesday, December 15, 2009 7:53 PM
> > Subject: Re: [Trimethylaminuria] Re: Time to stop freeloading and share my story/ I have a few ???'s
> >
> >
> >
> >
> > Hi
> >
> > I been a member for a while but rarely email and received much comfort from reading the comments. I experienced the same as everyone else. I worked for the Government and have has my space sprayed and many comments directly and indirectly. I flew to Philly and tested (urine) negatively about 3 years ago and today received my blood test from HBRI and cannot believe it stated, "the conclusion is, that barring an extremely rare mutation in the promoter region, this individual (me) should metabolize TMA normally". Can you please help me to understand this, although it should be good that I do not have TMA, how could I experience this on a daily basis for years and not have it. I not been on the diet yet I was waiting on the results before starting it. At least if the test was positive I had the diet and the group. The second page of the results provides all the DNA sites studied and the results of DNA sequencing. Let me know if this would help you understand.
> >
> >
> >
> >
> > ----------------------------------------------------------
> >
>

if we tried the metronidazole,would our symptoms go away? I've always wondered
that(but somehow doubt it)

--- In Trimethylaminuria@yahoogroups.com, "kim h" <kimbo232@...> wrote:
>
> found it, sounds like it is the child you were talking about.  here's the link
http://www.bloodbornebodyodorandhalitosis.com/2009/03/interview-nigel-manning-te\
ster-of.html
> it's in the part about 2ndary TMAU only being tested for in the UK.  i seem to
remember reading something else about this awhile back too, when i read the
article above i remember thinking i'd heard about antibiotic treatments before. 
too long ago to look it up though and i have no idea where i saw it.  HTH :)
>   ----- Original Message -----
>   From: kim h
>   To: Trimethylaminuria@yahoogroups.com
>   Sent: Wednesday, December 16, 2009 2:33 PM
>   Subject: Re: [Trimethylaminuria] Re: Time to stop freeloading and share my
story/ I have a few ???'s
>
>
>
>
>   can't remember.  i'll go back through my browsing history on my laptop and
see what i can find.  it was w/in the last week or so.  will post if i can find
it.
>     ----- Original Message -----
>     From: shania7435
>     To: Trimethylaminuria@yahoogroups.com
>     Sent: Wednesday, December 16, 2009 1:24 PM
>     Subject: [Trimethylaminuria] Re: Time to stop freeloading and share my
story/ I have a few ???'s
>
>
>
>     Wish I knew where you read this. Was it the child that took a course of
Metronidazole and their symptoms went away?
>
>     Shania
>
>     --- In Trimethylaminuria@yahoogroups.com, "kim h" <kimbo232@> wrote:
>     >
>     > not sure if this will help, but i recently read online somewhere,
something about if you test negative for TMAU but still have symptoms it could
be an imbalance of bacteria in the gut and a course of antibiotics could take
care of it. sounds like a too good to be true scenario and not sure where i read
it, or which antibiotic to use, but i remember reading that people have suffered
for years and the antibiotic essentially cured the problem. if you haven't done
so already maybe you could research it and take the info to you doc. can't hurt
to try right? this is the scenario we're hoping for in our daughter since her
TMAU symptoms were first noticed when she was in the hosp w/ kawasikis disease.
we'll know more when her test results come back though. HTH :)
>     > ----- Original Message -----
>     > From: L Rivers
>     > To: Trimethylaminuria@yahoogroups.com
>     > Sent: Tuesday, December 15, 2009 7:53 PM
>     > Subject: Re: [Trimethylaminuria] Re: Time to stop freeloading and share
my story/ I have a few ???'s
>     >
>     >
>     >
>     >
>     > Hi
>     >
>     > I been a member for a while but rarely email and received much comfort
from reading the comments. I experienced the same as everyone else. I worked for
the Government and have has my space sprayed and many comments directly and
indirectly. I flew to Philly and tested (urine) negatively about 3 years ago and
today received my blood test from HBRI and cannot believe it stated, "the
conclusion is, that barring an extremely rare mutation in the promoter region,
this individual (me) should metabolize TMA normally". Can you please help me to
understand this, although it should be good that I do not have TMA, how could I
experience this on a daily basis for years and not have it. I not been on the
diet yet I was waiting on the results before starting it. At least if the test
was positive I had the diet and the group. The second page of the results
provides all the DNA sites studied and the results of DNA sequencing. Let me
know if this would help you understand.
>     >
>     >
>     >
>     >
>     > ----------------------------------------------------------
>     >
>