Yes, Sharon, you're still a cousin. I don't think it will be "if" we find a cure but rather when we find a cure - we being human beings who do science. It's...
Don't expect people to embrace you even after explaining to them that your condition is a medical one and that your body has somehow gone haywire. I been there...
I agree with you that you can't go asking just anyone about your odor. From my experiences it drives them away. With this type of disorder, we have become...
Do you think a boyfriend really is a true boyfriend if he tells you , you dont stink, when you know you do stink? Is he being nice or whatever... ? I wonder...
Sorry the original contact persons address didn't copy. Here is the corrected meeting information and contact. We can't forget about our West Coast network!!...
Hello all, We can convert music to notes, but when it comes to smells, they are descrbed on message boards like "dirty, sweaty little boy" smell, fruity,...
Reminder from: Trimethylaminuria Yahoo! Group http://groups.yahoo.com/group/Trimethylaminuria/cal Women's Conferences: normally every other Wednesday 9pm EST. ...
Trimethylaminuria@yah...
Dec 3, 2008 1:57 pm
845
Hi Ariana, Oh you are music to my ears and bring up good points. Yes odors are subjective and usually described, if one can smell their own, by assosiating it...
Date: Wednesday December 3, 2008 The time has been changed to 8:30 PM so the West Coast women can make it. This is 8:30 pm EST. In the future if the calendar...
Reminder from: Trimethylaminuria Yahoo! Group http://groups.yahoo.com/group/Trimethylaminuria/cal Women's Conferences: normally every other Wednesday 8:30 pm...
Trimethylaminuria@yah...
Dec 4, 2008 12:25 am
848
Most of my life I have suffered from spells doctors can explain. Everything has been checked medically and there is no known cause but they happen on a regular...
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the Trimethylaminuria group. File :...
Trimethylaminuria@yah...
Dec 5, 2008 7:33 am
853
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the Trimethylaminuria group. File :...
Trimethylaminuria@yah...
Dec 5, 2008 7:35 am
854
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the Trimethylaminuria group. File :...
Trimethylaminuria@yah...
Dec 5, 2008 7:36 am
855
Guys, I saw Dr Lachmann (Consultant Metabolic Specialist at UCL, London)on Tuesday and talked to him about the survey many of you completed. Please click on...
This is an urgent announcement for all UK members attending our Christmas Meetup in London at 12pm onwards, Saturday 13th December. The venue has been changed...
Hi, I don't know what to do about this health club, they are still demanding that I give them documentation of this condition. The problem the doctor where I...
Hi, Mickie why can't you just put in a request for your medical records from his office.my doctor is gone to i just payed to have my medical records sont to...
Hi chanley, what if he does? what if he doesn't? does it really matter, i mean you have someone there that cares enough for you to stay because of who you are...
Reminder from: Trimethylaminuria Yahoo! Group http://groups.yahoo.com/group/Trimethylaminuria/cal Conference Call 2PM EST Saturday December 6, 2008 2:00 pm -...
Trimethylaminuria@yah...
Dec 6, 2008 6:57 am
864
Guys, Please ignore the previous announcement about the call being today (Saturday). It is tomorrow (Sunday ). People got confused with the alternating...
On July 22, 2008, our scientist Arun Nagrath made public his scientific questionnaire/Odour Survey that was originally devised and modified in consultation...
Reminder from: Trimethylaminuria Yahoo! Group http://groups.yahoo.com/group/Trimethylaminuria/cal Xmas Meetup in London Saturday December 13, 2008 12:00 pm -...
Trimethylaminuria@yah...
Dec 6, 2008 4:55 pm
867
your reply is to ljester,the original poster,not me(chanley)...
Reminder from: Trimethylaminuria Yahoo! Group http://groups.yahoo.com/group/Trimethylaminuria/cal Conference Call 2PM EST Sunday December 7, 2008 2:00 pm -...
Trimethylaminuria@yah...
Dec 7, 2008 6:55 am
869
So, you enjoyed Las Vegas, Nv. It is a nice town.  I live here and yes people look at you in the strip, but living here is cute and ok.  Everywhere...
Mickie I really feel your pain. Would you be comfortable to continue going to that gym after what sounds to me like humiliation? If I were you, I would ask for...