Hi V,
Yes please go ahead, the more the merrier! Please post my home
number aswell in case people want to chat first and arrange it:-
Tel +44 (0) 1375 484 269. They should also note my mobile number as
I will carry my mobile in the meetup +44 07984 295 559

I'm expecting a good turnout. So far, around 10 people have
confirmed they are coming including one from America!
Arun


--- In Trimethylaminuria@yahoogroups.com, V B <tmauvb@...> wrote:
>
> Hi Arun,
>
> I shared this in the last newsletter.  Do you mind if I post on
the email listserv of the tmau foundation also please?
>
> Thanks,
>
> V
>
>
>
>
> ________________________________
> From: Arun Nagrath <arunnagrath@...>
> To: Trimethylaminuria@yahoogroups.com
> Sent: Thursday, 30 October, 2008 6:32:41
> Subject: [Trimethylaminuria] UK XMas Meetup, London, 12pm Dec 13th
2008
>
>
> Guys,
>
> The next UK Group Meetup will be a Xmas Meetup. It will be at the
Rock
> Garden in Covent Garden on 13th December 12pm onwards.
>
> I am expecting around 10 people. We will sit outside under heated
> umbrellas and have drinks and possibly Xmas dinner. Please note I
will
> have my mobile switched on and the number is 07984 295 559
>
> So, if any of you have a desire to meet and chat with others who
share
> your problem please come along and pull a cracker with us!
>
> Arun
>

Guys,

The next UK Group Meetup will be a Xmas Meetup. It will be at the Rock
Garden in Covent Garden on 13th December 12pm onwards.

I am expecting around 10 people. We will sit outside under heated
umbrellas and have drinks and possibly Xmas dinner. Please note I will
have my mobile switched on and the number is 07984 295 559

So, if any of you have a desire to meet and chat with others who share
your problem please come along and pull a cracker with us!

Arun

Welcome and you seem very computer literate. Just need to know how
to click a mouse and type here.

Start out by looking into the sidebar on the left. There are Files,
Links, Recipes, Polls so feel free to add some of your own.

Do you have a formal diagnosis or looking to see if you have this?

Any questions just ask,
Sharon+


--- In Trimethylaminuria@yahoogroups.com, Lori Jester <ljester1@...>
wrote:
>
> I have had tmau for over20 years and have just found this group.I
wish to become an active member but I am not that computer literate
so I need help. Can't wait to hear from y'all.
>

People on the conference calls keep asking me about the homemade
products I use. This link will explain how I use only baking soda 1-2x
week alternating days with only a conditioner and maybe 1-2x with a SLS
(sodium laureth sulfate)free shampoo. Kiss My Face makes an awesome SLS
free one with Green Tea and Lime. Expensive.

http://www.wikihow.com/Wash-Your-Hair-Without-Shampoo

My goal is to reduce or eliminate all the products containing SLS
(sodium laureth sulfate). Shampoo, soap, detergents, toothpaste and
most other products that foam. Hey, the bonus is that I am saving a lot
of money too.

Do your own research and see what you think. Type in sodium laureth
sulfate and Agent Orange.

Skin is our largest organ of the body and absorbs more toxins than you
can imagine plus our diets can be deficient in antioxidants.

A message from our long time advocate and dear friend Dr Cheryl
Fields:

My Grandmother died while we were on a flight to her home in Kansas
from Seattle, just the two of us. It all happened in less than 3
minutes with her telling a joke and then making the transition. No
pain or suffering for her. She was my best 84 year old friend. :(

Many of you have asked where you can send flowers, cards, etc.
Below is the contact information for the funeral home, a mailing
address for cards, and where food items may be dropped off or
shipped.  Thank you so very much.  I apoligize if this is a
duplicate message, I am trying to reach as many people as I can.
Thank you so very much in advance for your understanding.

FUNERAL HOME:

Mr. Larry Johnson
Funeral Director
Bowser Johnson Funeral Chapel
723 Southwest 6th Avenue
Topeka, Kansas 66603
________________________________________

TENTATIVE DATE OF THE FUNERAL:

Saturday, 1 November 2008, 10:00am (CST)-Date of the actual funeral
service.  More details are pending or you may contact the funeral
home directly for updated information.

Visitation, 4pm-8pm at Bowser Johnson Funeral Chapel, 30 October
2008.  (Family will be present from 6pm to 8pm-CST)
________________________________________

MAILING ADDRESS:

Cards and other items that will not spoil (non-food items) can be
sent to the following address:

Ms. Katherine O. "Granny" Landis
c/o
Ms. Carliese A. Bass
1647 S.E. 38th Terrace
Topeka, Kansas 66609

E-Mail:  emporia962000@...

________________________________________

Food Items:

Food items may be brought to True Baptist Missionary Church on
Friday, 31 October 2008, all day and on 1 November 2008, Saturday
before 12:00pm (CST).  Call the church directly for additional
details:

307 SE Tefft Street
Topeka, Kansas 66607
(785) 235-8442

All left over food items will be taken to the home of Sister (Ms.)
Maxine O. Robinson, daughter of Katherine Landis and handled
accordingly.
________________________________________

21 October 2008

My Grandmother, Ms. Katherine "Granny" Landis died on her flight to
Kansas on 21 Oct. 2008. The funeral service should be next Satruday.
Ms. Maxine Robinson is a contact person, (785)-234-8239. Thank you.

Confidentiality Notice: This e-mail communication/attachments may
contain confidential and privileged information for the use of the
designated recipients named above. If you are not the intended
recipient, you are hereby notified that you have received this
communication in error and that any review, disclosure,
dissemination, distribution or copying of it or its contents is
strictly prohibited.

Hello,

This email message is a notification to let you know that
a file has been uploaded to the Files area of the Trimethylaminuria
group.

   File        : /*Diet /*TMAU Diet/Supplements/Calcium on the TMAU Diet.doc
   Uploaded by : tmau_files <tmau_files@...>
   Description : Are you getting enough calcium ?

You can access this file at the URL:
http://groups.yahoo.com/group/Trimethylaminuria/files/%2ADiet%20/%2ATMAU%20Diet/\
Supplements/Calcium%20on%20the%20TMAU%20Diet.doc

To learn more about file sharing for your group, please visit:
http://help.yahoo.com/l/us/yahoo/groups/original/members/web/index.htmlfiles

Regards,

tmau_files <tmau_files@...>

Joyce,

Have you at any point had hepatitis, or been tested for Lupus or any other
vasculitic disorder?

Tai


--- On Mon, 10/20/08, Joyce Tedeschi <box2437@...> wrote:

> From: Joyce Tedeschi <box2437@...>
> Subject: RE: [Trimethylaminuria] Re: Elevated liver enzymes - HELP PLEASE
> To: trimethylaminuria@yahoogroups.com
> Date: Monday, October 20, 2008, 2:52 PM
> Hi Sharon,
>
> I have been tested and have TMAU since 2002.  I am not
> taking any medications except for Synthroid for a low
> thyroid condition.
>
> I wanted to know if very high liver enzymes are a common
> problem with someone who has TMAU.  How can a doctor help me
> with this if none of them understand or know about TMAU?
>
> This is very upsetting to me and I am nervous about it.
>
> Thank you Sharon for answering my question.  I hope
> everyone who has TMAU can help me on this.
>
> http://clk.atdmt.com/MRT/go/115298556/direct/01/

Here is the choline link but I agree some of the things may have
carnitine or indoles which are not the best for TMAU either.
http://www.ars.usda.gov/Services/docs.htm?docid=17477

Oatmeal, if it is the processed in a packet kind then the list says
12.6mg of choline. It's not an indole or on the high carnitine list,
so 1 packet is fine.

I like this list because it gives a clear amount of food instead of
grams. It shows that 10-12 macadamia nuts has the same as the one
oatmeal pack. That I could do for breakfast too with a piece of
fruit or flat bread toast.

Strange that both lists are from the USDA!! People need to use these
as a guide but also to know their indole/cruciferous veggies to
avoid and their carnitine to limit. It's not just the choline.

Good point Jen.


  --- In Trimethylaminuria@yahoogroups.com, "jenl05" <jenl05@...>
wrote:
>
> hello:
> This a great list of food... but my only question is some of the
> foods listed on the low side of Choline, people who have
> trimethlaminuria cannot not eat...but I still love the list. Does
any
> one know if eating oatmeal is good? or is it giving them a
problem? I
> think eating oatmeal would be great, especially because I am tired
of
> eating raw veggies all the time. I cook them too. But my food
intake
> is limited, & i cheat sometimes, only because I get hungry... Does
> any one have any tips??
>
>
> --- In Trimethylaminuria@yahoogroups.com,
> Trimethylaminuria@yahoogroups.com wrote:
> >
> >
> > Hello,
> >
> > This email message is a notification to let you know that
> > a file has been uploaded to the Files area of the
Trimethylaminuria
> > group.
> >
> >   File        : /*Diet /Choline High to low.pdf
> >   Uploaded by : tmau_files <tmau_files@>
> >   Description : Choline High to Low,  Last Modified 09/17/2008
> >
> > You can access this file at the URL:
> > http://groups.yahoo.com/group/Trimethylaminuria/files/%2ADiet%
> 20/Choline%20High%20to%20low.pdf
> >
> > To learn more about file sharing for your group, please visit:
> >
>
http://help.yahoo.com/l/us/yahoo/groups/original/members/web/index.ht
m
> lfiles
> >
> > Regards,
> >
> > tmau_files <tmau_files@>
> >
>

Hi Joyce,

Some research studies suggest that one could get a fatty liver with
elevated enzymes from too little choline.

Also read this about a low thyroid causing elevated liver enzymes.
http://www.medhelp.org/forums/gastro/archive/1075.html

If you need a long technical paper for him/her that says "Choline
deficiency increases DNA damage in humans" (includes elevated liver
enzymes) I will email it to you.

Hope if others have had this they will answer you. I have a feeling
that after being on a low choline diet for years we should all be
aware of our liver enzymes and the need for routine physicals.
Best wishes,
Sharon+



--- In Trimethylaminuria@yahoogroups.com, Joyce Tedeschi
<box2437@...> wrote:
>
>
> Hi Sharon,
>
> I have been tested and have TMAU since 2002.  I am not taking any
medications except for Synthroid for a low thyroid condition.
>
> I wanted to know if very high liver enzymes are a common problem
with someone who has TMAU.  How can a doctor help me with this if
none of them understand or know about TMAU?
>
> This is very upsetting to me and I am nervous about it.
>
> Thank you Sharon for answering my question.  I hope everyone who
has TMAU can help me on this.
>
> http://clk.atdmt.com/MRT/go/115298556/direct/01/
>

hello:
This a great list of food... but my only question is some of the
foods listed on the low side of Choline, people who have
trimethlaminuria cannot not eat...but I still love the list. Does any
one know if eating oatmeal is good? or is it giving them a problem? I
think eating oatmeal would be great, especially because I am tired of
eating raw veggies all the time. I cook them too. But my food intake
is limited, & i cheat sometimes, only because I get hungry... Does
any one have any tips??


--- In Trimethylaminuria@yahoogroups.com,
Trimethylaminuria@yahoogroups.com wrote:
>
>
> Hello,
>
> This email message is a notification to let you know that
> a file has been uploaded to the Files area of the Trimethylaminuria
> group.
>
>   File        : /*Diet /Choline High to low.pdf
>   Uploaded by : tmau_files <tmau_files@...>
>   Description : Choline High to Low,  Last Modified 09/17/2008
>
> You can access this file at the URL:
> http://groups.yahoo.com/group/Trimethylaminuria/files/%2ADiet%
20/Choline%20High%20to%20low.pdf
>
> To learn more about file sharing for your group, please visit:
>
http://help.yahoo.com/l/us/yahoo/groups/original/members/web/index.htm
lfiles
>
> Regards,
>
> tmau_files <tmau_files@...>
>

I was diagnosed with TMAU in 2002.  I now have very high liver enzymes
on my blood tests.  Does anybody with TMAU have this problem?  Is it
caused by TMAU?

Please respond if you can help me in any way.  I really appreciate any
help I can get.

Thank you,
Joyce

Thanks Sharn.  Good info.

--- In Trimethylaminuria@yahoogroups.com, "sharnsk" <sharnsk@...>
wrote:
>
> http://www.youtube.com/watch?v=m5IvrCJljIg
>

http://www.youtube.com/watch?v=m5IvrCJljIg

Hi Mercy,

My total cholesterol has been as high as 400. Then came down to 365
after following this diet. My MD gets so mad at me because I won't
take the Statins that he won't do the test anymore. Actually I have
to say I refuse them to cover his butt. It runs high in my family
but my parents lived into their 90's with it and had no heart or
liver problems.

Yes those Statins do work fast but make sure they check your liver
enzymes often, especially in the beginning. For those not knowing
your cholesterol numbers,  they want total cholesterol under 200.
Exercise can help reduce it too.

The dry cleaning odor was one of the things people were talking
about when I first came to the boards years ago. No one seems to
mention it anymore.

Interesting post and nice chatting Mercy,
Sharon+

--- In Trimethylaminuria@yahoogroups.com, "kanyoni16"
<kanyoni16@...> wrote:
>
> To answer these two questions. I do have elevated liver enzymes
and
> very high total cholesterol usually over 300.My triglycerides are
> always over 200 and my ldl is always abnormally high too (over
200).
> Doctors are always asking what I eat to cause my levels to be so
high.
> I think I eat healthier than a lot of people who have normal
levels.I
> have to take statins for the rest of my life. Its funny because
within
> just a few days of taking a statin, my levels drop to below normal
> range, which also surprised my doctors.
> I stopped taking my clothes to the dry clean because of that very
> unusual smell.I remember my clothes would smell worse after being
dry
> cleaned than they did before. Now I just buy clothes that don't
> require dry cleaning.
> Mercy.
>

To answer these two questions. I do have elevated liver enzymes and
very high total cholesterol usually over 300.My triglycerides are
always over 200 and my ldl is always abnormally high too (over 200).
Doctors are always asking what I eat to cause my levels to be so high.
I think I eat healthier than a lot of people who have normal levels.I
have to take statins for the rest of my life. Its funny because within
just a few days of taking a statin, my levels drop to below normal
range, which also surprised my doctors.
I stopped taking my clothes to the dry clean because of that very
unusual smell.I remember my clothes would smell worse after being dry
cleaned than they did before. Now I just buy clothes that don't
require dry cleaning.
Mercy.

Hello,

This email message is a notification to let you know that
a file has been uploaded to the Files area of the Trimethylaminuria
group.

   File        : /*Diet /Choline High to low.pdf
   Uploaded by : tmau_files <tmau_files@...>
   Description : Choline High to Low,  Last Modified 09/17/2008

You can access this file at the URL:
http://groups.yahoo.com/group/Trimethylaminuria/files/%2ADiet%20/Choline%20High%\
20to%20low.pdf

To learn more about file sharing for your group, please visit:
http://help.yahoo.com/l/us/yahoo/groups/original/members/web/index.htmlfiles

Regards,

tmau_files <tmau_files@...>

Hello,

This email message is a notification to let you know that
a file has been uploaded to the Files area of the Trimethylaminuria
group.

   File        : /*Diet /Choline a-z.pdf
   Uploaded by : tmau_files <tmau_files@...>
   Description : Choline A-Z,  Last Modified 09/17/2008

You can access this file at the URL:
http://groups.yahoo.com/group/Trimethylaminuria/files/%2ADiet%20/Choline%20a-z.p\
df

To learn more about file sharing for your group, please visit:
http://help.yahoo.com/l/us/yahoo/groups/original/members/web/index.htmlfiles

Regards,

tmau_files <tmau_files@...>

Hi Sharon
If any offensive emails get posted on this forum with my emails address
will you please delete them. Someone has pinched my email address and
pretending to be me. Whoever they are they have already sent me a few
offensive emails plus the usual dribble like promoting Viagra and that
sort of thing.  I'm not sure how people can do this sort of thing but
more to the point why do they want to?
Maggie

Hi Joyce,

There are numerous reasons for  elevated liver enzymes. The major
reason is medications like cholesterol lowering ones and tylenol. My
sister and sons liver enzymes were extremely high from the
cholesterol lowering drug Lipitor. They returned to normal after
stopping the medication.

If you are on any prescribed meds please don't stop them until you
talk to your MD.

Have you been tested for TMAU yet or wondering if this is common to
TMAU? There is a poll for your question now with 2 responses.

Sharon+

--- In Trimethylaminuria@yahoogroups.com, Joyce Smith <box2437@...>
wrote:
>
>
> Hi Sharon,
>
> Yes, my blood tests came back with high elevated liver enzymes.
All my other blood tests are excellent.  It is very upsetting to me
and I do not know what to do.
>
> Thank you for answering my question, I hope others share their
experiences also.
>
> Joyce
>
> http://clk.atdmt.com/MRT/go/115298558/direct/01/
>

Clarence, visit http://groups.msn.com/BodyOdorSupport/general.msnw
also if you haven't already.

--- In Trimethylaminuria@yahoogroups.com, "sharnsk" <sharnsk@...>
wrote:
>
> Hi Clarence,
>
> Did you have to wear a uniform that needed dry cleaning? Just
> curious because many people that have TMAU find that when their
> clothes are dry cleaned they give off a certain odor.
>
> Also now that you are retired is the odor better, less stress??
>
> Sharon+
>
> --- In Trimethylaminuria@yahoogroups.com, "prophet_hemingway"
> <prophet_hemingway@> wrote:
> >
> > Hello my name is Clarence, I am a retired New York City
Detective,
> and
> > I am a sufferer of TMUA.  I know what its like to be shun and
> talked
> > about.  Many nights I went home crying.  I thank God that we
have
> a
> > network of support that can help each other in times of
emotional
> > crisis.
> >
>