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Trimethylaminuria · Trimethylaminuria Information: TMAU
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Messages 3010 - 3042 of 3042   Oldest  |  < Older  |  Newer >  |  Newest
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3010
The New York/New Jersey Trimethylaminuria Support Group Meeting Date: Saturday, October 31, 2009 Time: 12:00 -3:00 P.M. Location: Brooklyn Public Library 361...
Sharon
sharnsk
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Oct 29, 2009
7:18 pm
3011
wow!! I didn't know there was meeting tomorrow I will be there with bells on(LOL) thank you DELOI GIVE MYSELF ROSES ... From: Sharon <sharnsk@...> ...
Dee brown
delobrown11224
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Oct 31, 2009
12:49 am
3013
Reminder from: Trimethylaminuria Yahoo! Group http://groups.yahoo.com/group/Trimethylaminuria/cal Monthly reminder of known fundraising / research campaign...
Trimethylaminuria@yah...
Send Email
Nov 1, 2009
2:02 pm
3016
Sorry Cheryl M will be on next Sunday's coference call....
Sharon
sharnsk
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Nov 1, 2009
10:56 pm
3017
This is a link that may help people from out of the US find testing. It was a question that was asked on yesterdays phone conference. I think we talked to...
Sharon
sharnsk
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Nov 2, 2009
2:52 pm
3018
I noticed that the smell is worse when I take a bath.  Try to only shower for 2 weeks and see if you notice a defference. ________________________________ ...
Renee
reneeme41
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Nov 2, 2009
4:34 pm
3019
Hi Cindy, Sometimes I wonder if it would make a sufferer feel better to take some action when treated this way by professors as opposed to just staying...
mpdela
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Nov 2, 2009
10:49 pm
3020
I am sorry for posting again but I didn't really receive any replies to my last message. I know that one of the major problems with TMAU is that when you talk...
cheshcatalyst
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Nov 3, 2009
12:31 am
3021
Dear Jesse,   For the most part, it is a "depends-on" kind of situational condition. Depends on what you eat. Depends on where you are. Depends on what you...
fair annie
annhenry99
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Nov 3, 2009
12:46 am
3022
Why avoid raw vegetables? What's the basis for that recommendation? I only ask because I eat a plethora of raw carrots, apples, grapes, cucumbers, mushrooms...
John Peterson
therockdanboy
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Nov 3, 2009
1:03 am
3023
All the raw "fruit" is normally digestible for everyone however, most "vegetables" especially, broccoli, spinach, cauliflower, cabbages, onions, leeks, peas,...
fair annie
annhenry99
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Nov 3, 2009
1:28 am
3024
Oh Jesse- I'm so sorry if I didn't post a reply to your question. "HOW DO WE KNOW?" If you're not tested or test as negative - you can only determine that...
fair annie
annhenry99
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Nov 3, 2009
1:48 am
3025
Thank you for the reply Bobbi! You said that you can tell from peoples reaction when they are around you. How exactly do people react? When they are around...
cheshcatalyst
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Nov 3, 2009
2:25 am
3026
for 8 years i have had people move away from me on the train,people coughing,sneezing,clearing their throat,all kind of comments from it smells like garbage to...
Kevin Claxton
stash_box83
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Nov 3, 2009
2:31 am
3027
Original post by Maria: Hi everyone, As a community, we can support Cheryl in her presentation on the Conference Call to be held on November 8th by writing...
Sharon
sharnsk
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Nov 3, 2009
3:08 am
3028
This condition is a lot like the rest of life: It all depends on what's going on, who, where and why. There is so much to say about someones reactions yet...
fair annie
annhenry99
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Nov 3, 2009
7:24 pm
3029
Hi Group, I just saw the show the Drs, a lady in minnesota asked a question about underarm odor,her 6 years old daughter has it, the answer they gave her much...
Daisy Magno
cubana_woman
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Nov 3, 2009
9:01 pm
3030
That is so cool that you Inform everyone of your condition. My real problem is that noone will admit that I smell bad! I've asked my wife, one of my...
Jesse Bailey
cheshcatalyst
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Nov 3, 2009
10:07 pm
3031
It doesn't sound so bad. If you had a serious issue you wouldn't be able to walk in a room without someone staring at you. And you wouldn't be able to...
dkknight593
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Nov 4, 2009
8:41 pm
3032
"The Doctors is talking about breath" Oh yeah it's usually that Dr katz guy peddling his breath RX stuff. -venk...
dkknight593
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Nov 4, 2009
8:43 pm
3033
Also there was this one about foot odor. They suggested a home remedy using a black tea foot soak. Anyone tried that one?...
dkknight593
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Nov 4, 2009
8:46 pm
3034
im a kid with tmau but the thing is unlike all you i never talk to anyone though at school ever since i found out i smelt weird during 6th grade i started too...
junwin123
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Nov 5, 2009
2:13 pm
3035
Is it possible that in the 6th grade you were going through puberty. That is a time when many people get temporary odors due to hormones and diet changes....
Sharon
sharnsk
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Nov 5, 2009
2:29 pm
3036
Hello everyone, Just wanted to clear up any confusion about the rrr-tmau.org site. The hosting company left up two sites a .com and .org. The .com has been...
Amanda Smith
apandabme
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Nov 5, 2009
11:20 pm
3037
Hey Jesse how does tmau feel like? honestly i dont feel a thing Does the sufferer just regularly have a smell coming from their body or do they feel something...
Saif Man
saifman_88
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Nov 5, 2009
11:55 pm
3038
Yes, I'm vegan.. it helps, ask if you have any questions....
amanda09mail
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Nov 7, 2009
2:08 pm
3039
Hi, If you have any information that would be helpful in establishing a 'vegan' diet, I am willing to try. I, too, have the 'odors' - body and breath, and...
Helen
rhema347
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Nov 7, 2009
5:00 pm
3040
Reminder from: Trimethylaminuria Yahoo! Group http://groups.yahoo.com/group/Trimethylaminuria/cal Special Conference Call Sunday November 8, 2009 2:00 pm -...
Trimethylaminuria@yah...
Send Email
Nov 7, 2009
6:56 pm
3041
Renee, when i lived on campus all i took were showers because of the way the dorms were set up, and people still called me "the girl that always smells bad"...
Cindy
moorecindy73
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3:36 am
3042
Maria, That's very good advice the only problem is I went to a clinic this past week and the people there said I didn't smell and that I just knew mean people...
Cindy
moorecindy73
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3:45 am
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