Hello Everyone, how are you? I hope that you are all well. I'd just
like to thank everyone on the Trimethylaminuria group for all of your
support, help and advice, I really appreciate it :)The posts, links
articles, and videos have been so helpful to me.

I hope that you didn't mind that I sent you this message, but I just
wanted to let you know, for anyone that is interested, that I have put
all of my information about my history, symptoms, diet etc on my blog.
There I can edit it as often as I need to. I put this information on
my blog with the hope that it might help someone else that suffers
from Body Odour and Halitosis like I do.

In the future, I would also like to include other people's stories
about their odour problems to help raise awareness of TMAU, Body Odour
and Halitosis. I would especially like to have some personal stories
from women who have TMAU, and only have an odour from the vaginal area
like I do. Not a lot of doctors/people realise or believe that women
that have a vaginal odour, and who have been tested for every other
possible cause, could have TMAU, because they see it as a rare
condition, and that you can't possibly have it, so they won't allow
you to get tested for it. Doctors don't believe you, and they tell you
that they can't help you, and that you have to live with it.

I want this to change, and I will make that happen by raising
awareness. If I can get more support and evidence, I can show doctors
that they need to be aware of this. There are so many people,
especially women suffering from this, and they shouldn't have to.

I have read Carry Wilson's book "The Foul Odor That Almost Killed Me,"
the stories from women in medical and body odour and
halitosis forums, and I have also read anonymous questions on medical
websites from women about their vaginal odour. They had been tested
for everything that could be causing the odour, and the reply that
they get from the doctor is that they can't help them, and that they
have to live with it. This is not acceptable to me, and I don't want
anyone else to have to suffer like I did with my fish odour.

I'm still currently trying to get my diagnosis. I going to get testing
for TMAU done at the Human Biomolecular Research Institute in the U.S
when I have the money, and I'll keep you updated. When I do get the
test done, and get the results, then I will update my post on the
Trimethylaminuria group.

I also suffer from severe drug and chemical sensitivities. I want to
find out whether a fault in my FMO3 gene (liver), is also related to
my drug and chemical sensitivities. Even a very small amount of a drug
or chemical (especially pesticides in fruit and vegetables) makes me
ill. I will also add more links to the research papers relating to the
FMO3 gene that helped me, and are a part of any research that I have
found online. I will explore this more when I study genetics at
University next year (if I get in)

My blog is mainly about me, and my life so far, so it is not just
about my medical issues. It will also be about my career, and there
will be some positive fun posts on there as well.

Here is the web address for my blog. It's
http://www.kristenjugueta.com. I haven't quite finished it yet, but it
still has the information that you'll need if it helps you. I have
also posted my videoclips on Youtube. I am working towards becoming a
professional singer, now that my fish odour is not such a problem for
me anymore.

If anyone has any questions, comments, or feedback about my blog, or
anything else, feel free to contact me via email, or add me as a
friend on facebook (Kristen Jugueta)

Thank-you,

Kristen.