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Hi folks
It's bee a while since I posted so I thought I'd butt in here.
I have no doubt that running has all sorts of benefits ranging from making us feel good due to the release of natural endorphins (this is scientifically proven) to raising general fitness and (perhaps most pertinently for TMAUers) increasing sweating to get rid of excess TMA in the bloodstream. However, this last has not been proven scientifically - there have been no double blind studies to show that those who run (and sweat lots) have any improvement in TMAU symptoms.
I am not saying "don't run". I hope you will run because it will improve your health in lots of ways. All I want to say is that you should not expect running to be a panacea that is going to resolve your TMAU symptoms. Such a panecea must wait until we find better treatments or a cure, both of which I can assure you, will not be based on exercise but on either modifying our faulty FMO3 gene or replacing the enzyme that our faulty FMO3 gene makes us incapable or deficient in producing.
The only strategy proven by scientific research so far that is effective in reducing syptoms is the low choline diet and (maybe) suppementation of vitamin B2 and folate.
So, please run and get happy from running, but do not expect it to cure your TMAU. Only more scioentific research will do that.
Best wishes
Rob
Australian Trimethylaminuria Foundation
----- Original Message -----From: Up DownnSent: Wednesday, July 08, 2009 11:13 PMSubject: Re: [Trimethylaminuria] Re: Let us exercising,to burn up some protein
Hi karen
If you only been running for a couple days the wrost is yet to come as far as the smelling is concerned..The odor gets stronger by the third week then it will takd about 1 1/2 month for it to return to normal
First when the tma starts to seep out of the liver it collects into the intestines and that is where the
inflammation or infection comes into play..What I did was drank 12 glasses of water daily,and went on a
10 day fruit diet, another thing the inflammation or germs can not grow in citrus juice.If you have to go
to work don't start the running regimen yet wait untill you have a vacation,because the odor will be
overwhelming its just going to be to much at least it was for me the smell was tenfold...Any questions
you all can call me because i'm not into alot of writing
Have a great day guys
Jr
--- On Wed, 7/8/09, karen_j565 <karen_j565@yahoo.ca> wrote:
From: karen_j565 <karen_j565@yahoo.ca>
Subject: [Trimethylaminuria] Re: Let us exercising,to burn up some protein
To: Trimethylaminuria@yahoogroups. com
Date: Wednesday, July 8, 2009, 3:26 AM
I've tried running daily since Sunday.
I do not think I am imagining it, - but smell seems to be much stronger coming from the chest area later during the day & not when I am exercising. I have started on the low choline diet too.
I wonder if sulfur accumulated over decades is now being expelled from my lungs at a faster rate...
--- In Trimethylaminuria@ yahoogroups. com, bobbi francis <annhenry99@ ...> wrote:
>
> I agree 100%. I've been on the low choline and probiotic program for years. I walked and did yoga. Then a woman at the doctors office told me that people of my body type (pear shaped) must run or dance. I always danced but certainly not for half an hour straight. I never ran in my life and had a hard time getting used to it. I started off by running down the hall of my home backwards and forwards for about 30 minutes. Now I'm up to an hour. A lot of sweat and true enough, quite stinky for the first month. But now it seems like if I miss a day the stinky comes back stronger but as long as I get it in, I'm good. I'm building some great calf muscles too! Who knew!
> b.
> Let us put a Happy face on your living space today.
>
>
>
>
> ____________ _________ _________ __
> From: karen_j565 <karen_j565@ ...>
> To: Trimethylaminuria@ yahoogroups. com
> Sent: Sunday, July 5, 2009 12:53:15 PM
> Subject: [Trimethylaminuria] Re: Let us exercising,to burn up some protein
>
>
>
>
>
>
>
> Thank you very much for the info - will certainly get exercising, possibly running.
>
> --- In Trimethylaminuria@ yahoogroups. com, Up Downn <upandownn2@ ...> wrote:
> >
> > I run a half hour 5 days a week..At first when I started sweating I hated it because it made me smell wrost for about a month,not to mention my breath because the poison was coming
> > up from my gut,and the sulfur was expelling from my lungs...Now sweat if good,but some people don't sweat at all and you still will burn poison fat and calories
> >
> > Here is what I want you to do go to barns & noble or amazon and this book//Runner' s World Complete Book of Beginning Running ..
> > Jr
> >
> > --- On Sun, 7/5/09, karen_j565 <karen_j565@ ...> wrote:
> >
> >
> > From: karen_j565 <karen_j565@ ...>
> > Subject: [Trimethylaminuria] Re: Let us exercising,to burn up some protein
> > To: Trimethylaminuria@ yahoogroups. com
> > Date: Sunday, July 5, 2009, 2:51 AM
> >
> >
> >
> >
> >
> >
> >
> >
> > How much exercise do you do in a day? Half hour, 1 hour?
> > I do not sweat easily - do I have to exercise to the point where I sweat profusely?
> > What do you think of saunas as a means to expel the trimethylamine/ sulfur build-up in our bodies?
> >
> > --- In Trimethylaminuria@ yahoogroups. com, "upandownn2" <upandownn2@ ...> wrote:
> > >
> > > All I can say if you people get into a exercising program you will feel
> > > look, and smell better..When you first start you are going to smell more
> > > so (bad )for about two months.when you get Into the thrid month that is
> > > when your blood will start to clear,and your lungs will start to expel
> > > the sulfur.
> > >
> > > Remember you must get into a exercise program,that is the best investment that you can
> > > do...Can you afford a treadmill,if the answer is yes you are on your way.
> > > This is the best news I can give you,read it study it and lets talk..
> > >
> > >
> > > http://www.medicine net.com/running/ page3.htm
> > >
> >
>
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