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Trimethylaminuria · Trimethylaminuria Information: TMAU
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Reply | Forward Message #1117 of 3268 |
My name is Amanda and im 26 years old. I have noticed my symptoms of tmau since I was 12 years old, but like a lot of people didnt know for sure. I just received an email today from Dr. Cashman at HBRI with a positive test for trimethylaminuria. To be honest its kind of a relief. You wonder what is wrong for so long and everyone I talked to (family and doctors) act like your crazy. At the same time of course im upset. This is the first time I have posted. I've been a member for about a year, and look forword to continue reading all of your posts. I love the positive attitude and am very thankful that a support group like this was created. Next step for me is to contact a dietitian, and try to figure out this low choline diet. Its very confusing.



Sat Feb 28, 2009 2:58 am

apandabme
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Message #1117 of 3268 |
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My name is Amanda and im 26 years old. I have noticed my symptoms of tmau since I was 12 years old, but like a lot of people didnt know for sure. I just...
Amanda Smith
apandabme
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Feb 28, 2009
10:33 am

Hi Amanda, Getting a positive result is like a double edge sword! Did they give you the contact info for the TMAU Foundation? If I can help with the diet or...
sharnsk
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Feb 28, 2009
1:50 pm

who is cahs man and what are your symtoms mines is a fishy odor and my bottom sometimes smell to i use to have bad armpit smell but now thats gone as well ...
Genene Grant
g.genene
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Mar 1, 2009
6:44 pm

... tmau since I was 12 years old, but like a lot of people didnt know for sure. I just received an email today from Dr. Cashman at HBRI with a positive...
allytaylor23
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Mar 3, 2009
10:17 pm

he gave you a positive result how long did it take to recieve the result and what is dr cash treatment for it thats why i like pretti he actually see you in...
Genene Grant
g.genene
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Mar 4, 2009
3:08 pm

I was tested with Dr. Cashman in San Diego, CA. The cost of the test is pricy. It costs $400. But I am really glad I got tested and found an answer. It took 2...
Amanda Smith
apandabme
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Mar 5, 2009
12:54 pm

I have palpitations when I eat to much choline. Becky In a message dated 3/14/2009 1:49:20 P.M. Eastern Daylight Time, otaylorscott@... writes: I would...
reb4p@...
bekpar2000
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Mar 15, 2009
3:30 am

Hi Peterpetermanman You could try at this address: Department of Chemical Pathology The Chinese University of Hong Kong Faculty of Medicine / Prince of Wales...
Robert
robbrownsyd
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Mar 15, 2009
11:06 am

Hi Brandi I know how you feel.  This disorder is a life-killer.  I am beginning to give up on activities that were a normal part of my life.  I have been a...
charleymi@...
charleymi...
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Jul 11, 2009
2:53 pm

Have you guys tried the Mung beans? They really helped my husband, he has flair ups every now and then when he eats beef again but the Mung beans seem to get...
katanya6@...
katanya6
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Jul 11, 2009
3:14 pm

Gary said he adds basil leaves to the soup too! Sent from my Verizon Wireless BlackBerry ... From: katanya6@... Date: Sat, 11 Jul 2009 15:14:03 To:...
katanya6@...
katanya6
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Jul 11, 2009
3:33 pm

He also mentioned some orange colored spice but I don't remember the name of it but he doesn't use that anymore anyway! Sent from my Verizon Wireless...
katanya6@...
katanya6
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Jul 11, 2009
3:39 pm

I'm looking at the numbers that you presented.  There is only $3800 in the account for AMAU.  That's not very much--not enough to do anything. Since there...
charlotte miller
charleymi...
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Jul 11, 2009
3:53 pm

Charlotte   You are absolutely right we need to raise more money-Do you have any ideas? Because your response seems to be somewhat negative.   Each one of us...
c. marshall
cher850
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Jul 11, 2009
5:15 pm

Sorry you thought that a negative response.  I'm ready for participating in anything that will get us going forward. I was thinking that if 30 would give...
charlotte miller
charleymi...
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Jul 11, 2009
5:51 pm
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