I am forwarding this FYI as I believe it is from a reliable source. As always check the information with your own doctor first before starting or changing any...
Karen Schuler
karens@...
Jun 1, 2000 9:36 pm
1759
I am forwarding this FYI as I believe it is from a reliable source. As always check the information with your own doctor first before starting or changing any...
Karen Schuler
karens@...
Jun 2, 2000 7:42 am
1760
To everyone who is asking - yes there is a problem with the message boards at the moment. Over the memorial Day weekend inside the web had a problem and lost a...
Karen Schuler
karens@...
Jun 3, 2000 9:39 pm
1761
I received a phone call on Thursday from the lady who organises all of Alex's medical supplies. She wanted to check if Alex had a Bard button because there had...
Karen Schuler
karens@...
Jun 3, 2000 9:58 pm
1762
... From: "Kaylees Mom" ... Rhonda, Sorry to hear that Kaylee is having problems. Constipation itself can cause gas problems. These web sites may be of help -...
Karen Schuler
karens@...
Jun 3, 2000 10:11 pm
1763
Birthdays & angel days for the week of 6/4-6/10/00 Birthdays 6/5 Ian Knowd 6/8 Frank Knowd 6/8 Fay (Nathan's mom) Angel days 6/6 Rina Abigal Bush...
Richard & Mary Capp
mrcapp@...
Jun 4, 2000 3:54 am
1764
Hi y'all This is Lynn & Chelsey(10-05-96, T-18). Hate to be naggish - but we are STILL looking & praying for a hotel roomate for the Soft Conference at Disney...
Lynn McLaughlin
lamcla625@...
Jun 5, 2000 4:32 am
1765
neither is dup 16q or 16p so when are we going to start our orphans club Fawna. Mary Capp mom to Michael 16, Richard W. 14 pt T-16 with deletion/translocation...
Richard & Mary Capp
mrcapp@...
Jun 5, 2000 2:59 pm
1766
<< neither is dup 16q or 16p so when are we going to start our orphans club Fawna ?>> Mary : Wait...wait, you mean we haven't already? Since Corey decided...
fawna33
Fawna33@...
Jun 5, 2000 3:11 pm
1767
Lynn, you don't know me, I am sure, but since I will have a big room, and only my nextdoor neighbor (a 17 yr old) there at the conference, if you want to...
Charleen Still
CharSC@...
Jun 5, 2000 4:33 pm
1768
Hi Everyone! My genetics counselor Lisa fowarded me this email today...and in light of the upcoming conference, I thought some of you may want to take notice??...
pjvictor
pjvictor@...
Jun 5, 2000 8:53 pm
1769
All those folks looking at Central Auditory Processing Disorders....... has anyone looked at Central Auditory Processing Disorders: Mostly Management by M. Gay...
Karen Schuler
karens@...
Jun 6, 2000 12:11 am
1770
Pamela is going down to have a scope and biopsy done of her esophagus because she is still throwing up this brown liquid and although the lab says it is not...
Betty Rae
rae@...
Jun 6, 2000 3:19 pm
1771
... Good luck and best wishes for a great surgical outcome. Michelle mom to Alex (13,partial trisomy 14 mosaic)and Molly (9)...
James Waite
jwaite@...
Jun 6, 2000 9:43 pm
1772
In a message dated 6/6/00 11:21:50 AM Eastern Daylight Time, rae@... writes: << Pamela is going down to have a scope and biopsy done of her esophagus ...
bhassanjr@...
Jun 6, 2000 9:45 pm
1773
... Thanks Karen. These are all books or are some articles in something? Michelle mom to Alex (13,partial trisomy 14 mosaic)and Molly (9)...
James Waite
jwaite@...
Jun 6, 2000 9:47 pm
1774
... From: "James Waite" ... has ... They are books - 2 are very expensive ($50US each) so I was wondering if they were worth me selling the shirt on my back to...
Karen Schuler
karens@...
Jun 6, 2000 10:49 pm
1775
Betty, Good luck to you and Pamela. I know this area well. It can be very frustrating. Morgan has had this procedure done twice and both times came out very...
Holly McCormick
hmmmcormick@...
Jun 7, 2000 12:23 am
1776
Genetic Disorders Awareness Week Wednesday 14th June 2000 at 6.00pm at the Powerhouse Museum Coles Theatre Level 3, 500 Harris Street, Ultimo NSW 2007 Speakers...
Karen Schuler
karens@...
Jun 7, 2000 12:37 am
1777
AH geesh, Karen...you awoke me from a wishfull-thinking dream!! LOL Really, thanks for your help though! Laurie P....
cyberminer@...
Jun 7, 2000 1:06 am
1778
I am forwarding this FYI as I believe it is from a reliable source. As always check the information with your own doctor first before starting or changing any...
Karen Schuler
karens@...
Jun 7, 2000 6:03 pm
1779
The Genetic Alliance is a non-profit coalition of support groups, consumers and professionals dedicated to promoting the common interests of children, adults...
Karen Schuler
karens@...
Jun 7, 2000 6:06 pm
1780
Thanks Karen! JB (Lauren, Tri-x)...
Winbarnett@...
Jun 7, 2000 6:16 pm
1781
... Is Jo tube fed? Does she take the Prilosec orally? anyone else on this medication does it come in liquid form at all. I'm having to crush this one which...
Betty Rae
rae@...
Jun 7, 2000 9:00 pm
1782
Dear Penny & everyone, Thanks so much for all your help & prayers! Prayers still do get answered. I read your msg. about your friend Charlene, but I never saw...
Lynn McLaughlin
lamcla625@...
Jun 8, 2000 5:34 am
1783
Doesn't come in liquid form, you can empty the capsule and put it in apple juice and it will slide down the tube without clogging the tube, believe it or not,...
ROBERT/JOANNA WILSON
JOSTEPH@...
Jun 8, 2000 11:23 am
1784
I have an addition to the birthday list for this week. Sarah Lindenbaum 6/8/1998, T-18 Happy Birthday Sarah. Mary Capp mom to Michael 16, Richard W. 14 pt T-16...
Richard & Mary Capp
mrcapp@...
Jun 8, 2000 1:09 pm
1785
The master is spiking a fever and is complaining of chest pain so we are off to the hospital. If anyone has any problems with the list etc please contact Sue...
Karen Schuler
karens@...
Jun 9, 2000 10:56 am
1786
In a message dated 6/7/00 5:02:20 PM Eastern Daylight Time, rae@... writes: << Is Jo tube fed? Does she take the Prilosec orally? anyone else on this ...
bhassanjr@...
Jun 9, 2000 8:00 pm
1787
dear betty, please let karen know that we are praying for her and alex. i hope everything is just fine and all he has is a normal cold. marlyn, grandmother to...
