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New Kid Here   Message List  
Reply | Forward Message #230 of 267 |
Re: New Kid Here

Yep. I've had seizures before and major brain surgery for an AVM 25
years ago.

Things have changed a lot since way back then. I think things would
have been a lot different if I had had the problem with my AVM now.

t took a long time to get back on my feet and the medics weren't
always the greatest help. Sometimes I think that I recovered in spite
of them.

Tim

--- In Traumatic_Brain_Injury@yahoogroups.com, Rawnie McKibben
<southernnmdreamer@...> wrote:
>
> Hi Tim, glad to hear your are doing better.  Sorry to hear about
your set backs. 
> I am a caregiver for my daughter and I was reading your post and
I was wondering    Did you have seizures before you had the Grand Mal
last weekend?  My daughter has never had a seizure but I know that it
is possible because of the injuries she has incurred. She is 5 years
post TBI. 
>
>
> --- On Thu, 12/25/08, Tim <timothydj@...> wrote:
>
> From: Tim <timothydj@...>
> Subject: [Traumatic_Brain_Injury] New Kid Here
> To: Traumatic_Brain_Injury@yahoogroups.com
> Date: Thursday, December 25, 2008, 2:12 PM
>
>
>
>
>
>
> Hey There All,
>
> I'm a long term tbi survivor, from 1979, and I thought I was doing
> pretty well but I suffered a couple of Grand Mal seizures last
> weekend and I just got out of the hospital. Pretty depressing
having
> this happen again but i gotta deal with it.
>
> The neuro at the hospital was pretty useless- massive drugs was the
> answer to everything. I saw him for a total of 10 min. the whole
time
> I was in the hospital and I dumped him. The first neuro put me on a
> high dose Dilantin which really did me in.
> The neuro met me for a total of 10 min at the hospital and I dumped
> him. He treated me like an idiot but he dressed very nice and his
> english wasn't too bad.
>
> I dumped him and I like #2. I was taken off the Dilantin and put on
> Keppra which dosen't leave me such a total mess.
>
> Right now I'm totally sore in every muscle from the seizures and my
> tounge is infected, swollen and painful from biting it.
>
> But, I'm still kicking!
>
> Merry, X-mass, Tim
>





Tue Feb 3, 2009 3:31 am

timothydj
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Message #230 of 267 |
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Hey There All, I'm a long term tbi survivor, from 1979, and I thought I was doing pretty well but I suffered a couple of Grand Mal seizures last weekend and I...
Tim
timothydj
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Dec 29, 2008
8:45 am

Man, what a setback......sorry. I too have trouble with medications and terrible side effects. Makes managing seizures difficult.....right? I moved to new...
lee
zuni281
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Dec 29, 2008
7:18 pm

HOW DO i find a dr that knows about brain injury last nuero said weell cant do anything more on , dont need to see you that was years ago various stressors...
Marcia
backagain1951
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Dec 29, 2008
7:34 pm

If you live in the USA, there are national brain injury associations, with state divisions, just do search on the Internet. Often there are big city groups...
zuni281
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Dec 29, 2008
11:37 pm

THANKYOU ,, sorry i didn't see this til now i am safe now wasn't but thankyou so very much for your concern ... associations, ... are ... Medicare, ... ...
backagain1951
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Jan 20, 2009
2:12 am

Hi Tim, glad to hear your are doing better.  Sorry to hear about your set backs.  I am a caregiver for my daughter and I was reading your post and I was...
Rawnie McKibben
southernnmdr...
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Jan 17, 2009
1:19 pm

Yep. I've had seizures before and major brain surgery for an AVM 25 years ago. Things have changed a lot since way back then. I think things would have been a...
Tim
timothydj
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Feb 3, 2009
4:47 am
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