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Reply | Forward Message #227 of 267 |
Re: [Traumatic_Brain_Injury] New Kid Here

Hi Tim, glad to hear your are doing better.  Sorry to hear about your set backs. 
I am a caregiver for my daughter and I was reading your post and I was wondering    Did you have seizures before you had the Grand Mal last weekend?  My daughter has never had a seizure but I know that it is possible because of the injuries she has incurred. She is 5 years post TBI. 


--- On Thu, 12/25/08, Tim <timothydj@...> wrote:
From: Tim <timothydj@...>
Subject: [Traumatic_Brain_Injury] New Kid Here
To: Traumatic_Brain_Injury@yahoogroups.com
Date: Thursday, December 25, 2008, 2:12 PM

Hey There All,

I'm a long term tbi survivor, from 1979, and I thought I was doing
pretty well but I suffered a couple of Grand Mal seizures last
weekend and I just got out of the hospital. Pretty depressing having
this happen again but i gotta deal with it.

The neuro at the hospital was pretty useless- massive drugs was the
answer to everything. I saw him for a total of 10 min. the whole time
I was in the hospital and I dumped him. The first neuro put me on a
high dose Dilantin which really did me in.
The neuro met me for a total of 10 min at the hospital and I dumped
him. He treated me like an idiot but he dressed very nice and his
english wasn't too bad.

I dumped him and I like #2. I was taken off the Dilantin and put on
Keppra which dosen't leave me such a total mess.

Right now I'm totally sore in every muscle from the seizures and my
tounge is infected, swollen and painful from biting it.

But, I'm still kicking!

Merry, X-mass, Tim




Sat Jan 3, 2009 3:46 am

southernnmdr...
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Message #227 of 267 |
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Hey There All, I'm a long term tbi survivor, from 1979, and I thought I was doing pretty well but I suffered a couple of Grand Mal seizures last weekend and I...
Tim
timothydj
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Dec 29, 2008
8:45 am

Man, what a setback......sorry. I too have trouble with medications and terrible side effects. Makes managing seizures difficult.....right? I moved to new...
lee
zuni281
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Dec 29, 2008
7:18 pm

HOW DO i find a dr that knows about brain injury last nuero said weell cant do anything more on , dont need to see you that was years ago various stressors...
Marcia
backagain1951
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Dec 29, 2008
7:34 pm

If you live in the USA, there are national brain injury associations, with state divisions, just do search on the Internet. Often there are big city groups...
zuni281
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Dec 29, 2008
11:37 pm

THANKYOU ,, sorry i didn't see this til now i am safe now wasn't but thankyou so very much for your concern ... associations, ... are ... Medicare, ... ...
backagain1951
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Jan 20, 2009
2:12 am

Hi Tim, glad to hear your are doing better.  Sorry to hear about your set backs.  I am a caregiver for my daughter and I was reading your post and I was...
Rawnie McKibben
southernnmdr...
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Jan 17, 2009
1:19 pm

Yep. I've had seizures before and major brain surgery for an AVM 25 years ago. Things have changed a lot since way back then. I think things would have been a...
Tim
timothydj
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Feb 3, 2009
4:47 am
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