My son has Tourette's syndrome. My husband and I are
very curious as to where and how he came down with this terrible
syndrome. They
say its hereditary but as far as we can tell, there are no signs of
Tourette's
in either side of our family. Is their a way for my husband and I
to be
tested to see if there is a link somewhere? If Tourette's is
genetic, could this
affect my sons' children and are their ways to have him tested also?
I know their is so much more to learn about this disorder but if
they are
testing this chromosome 7 and see some kind of link to it, why
aren't parents
being made aware of this and given the option to have their children
tested for
this? Thanks so much for all of your e-mails, they have been very
helpful.
I hope you can help me with this one!

Thank you,
L…..


This is the most common question asked of me about Tourette
Syndrome. I am posting this so that these links are easily
accessible here in response to several recent requests.

You may be able to find some clinical studies that are doing gene
research in your area to see or you may have to travel. I suppose
there may be a way to pay for this type of testing to be done,
however it would probably be completely voluntary and of your own
expense if you find a Dr. able and willing.

As far as what it would mean for your children and your children's,
children, here are a couple of links with some info you can look at.

The testing and gene studies have been around a while, however they
are not at a point where they are able to be solid and concrete and
there are still a lot of unknowns. Plus insurances may not want it
to be readily available because it probably is very expensive and
not cost effective from their point of view.

Also being it is a fairly new study it takes time for parents to be
given the information to become aware of it. That has been one of
my goals to get the information out there and available for parents
to have.

My step mother had no information available when we were children
and wish there would have been at least as much information that
there is now available.

Will my children have Tourette...the most common question asked.
http://www.geocities.com/mrindianajonesprm/will_child_hv_ts.htm

http://au.geocities.com/jones_kacm/chance.htm

http://au.geocities.com/jones_kacm/chance.htm#table

http://au.geocities.com/jones_kacm/contents.htm


Paul Marshall PhD
http://paul.tourette.info