Mary's Place
http://www.angelfire.com/ok4/mari5113/index.html
1st Place for the Year 2001
Mary Lockhart has early-onset Alzheimer's. Before she was diagnosed,
she had managed a licensed day care for infants for fifteen years.
She misses the babies she cared for, but she has three little dogs
which she enjoys, as well as having an acquarium, and feeding birds
and squirrels. She is doing a wonderful job telling her story on her
home page, Mary's Place, where she shares her daily journal, family
photos, memories from her childhood, links to other sites, and a
chats for other patients like herself. Mary says "This is a very
lonely disease. If I can help one person with my page it will all be
worth it."
ElderCare Online
http://www.ec-online.net/
2nd Place for the Year 2001
With a weekly email newsletter, The Eldercare Beacon, the Eldercare
Forum message board, scheduled chats hosted by other caregivers,
professionals and guest moderators, and tons of information on the
site, ElderCare Online is truly a beacon for caregivers. Impressive
awards and reviews received by this site include: Alzheimer's Site of
the Week at About.com, featured on CNN/Time, in Time Magazine, and in
Smart Money. If you haven't already, you'll want to subscribe to the
very informative Eldercare Beacon newsletter to keep up to date on
all that is going on at ElderCare Online and so you won't miss out
on some of the best articles you can read about issues involved in
Alzheimer's and caregiving.
My Journey
http://www.zarcrom.com/users/alzheimers/chip.html
3rd Place for the Year 2001
Chip Gerber is 55, and he was diagnosed with Alzheimer's in 1997. He
worked for over 25 years as a licensed social worker. His daily
journal is online, accented by the always beautiful designs of
Webmaster Marsha Penington of Alzheimer's Outreach. Chip's journal
is unique in that it is not just an account of what he does every
day, but it is a collection of his thoughts, feelings, and
reflections on his journey with Alzheimer's. He expresses his
appreciation of and delight in ordinary things, including his senses
of smell, sight, and touch as he cherishes nature and the changing
seasons. Chip gives us a beautiful way to look at life, in spite of
our losses.
Alzheimer's Outreach
http://www.zarcrom.com/users/alzheimers/
4th Place for the Year 2001
A totally amazing site, one that inspires awe and wonder every time
we visit, is Marsha Penington's (aka Tay, or Taylor Austin)
Alzheimer's Outreach. Her informational directories on Alzheimer's,
other dementias, and caregiving issues includes around 250 full-text
documents. There is a poetry gallery full of poetry by Steven
Stoker, Jerry Ham, Brenda Race, and Dorothy Womack, and Marsha has
provided Web space for the various works of other caregivers and
Alzheimer's patients throughout her site. At the Alzheimer's
Outreach site, family caregivers and patients alike have shared their
photos, memories, memorials, thoughts, and the list goes on and on.
There is so much this site offers, it's difficult to even begin to
describe it all. Marsha's own story of her mother's Alzheimer's,
along with beautifully designed backgrounds and graphics by Marsha
herself, add a personal touch and intensify the sense of awe we feel
as we visit this wonderful site. Futhermore, Alzheimer's Outreach is
also the large and very active local community service/support group
that is coordinated by Marsha in the area where she lives. Locally
through this group and around the world via the Internet, Marsha's
Alzheimer's Outreach is for so many an excellent source of
information and support at all stages of the Alzheimer's/caregiving
journey.
AlzWell
http://www.alzwell.com/
5th Place for the Year 2001
Susan Grossman was caregiver to her mother-in-law, and this award-
winning site grew out of that experience. Alzwell includes many
interactive features, such as "The Anger Wall", and is the home of
the Caregiver Webring. Alzwell is packed full of information and
opportunities for others to share their stories. Susan's site has
been highly reviewed and received several prestigious awards, even
appearing in Yahoo Internet Life's Touched by the Net. After her
mother-in-law died, Susan continued regularly updating her site and
keeps people informed about updates through her Keepin' Up with
ALZwell newsletter. More recently the site has also joined with
ElderCare Online, displaying an even more professional look and is
providing more services to caregivers.
Undying Love
http://denver.rockymountainnews.com/undyinglove
6th Place for the Year 2001
Undying Love was created by Patrick Davidson, a journalist, about his
mother who died of Alzheimer's. Undying Love tells the story of the
toll this disease took on his mother and the whole family through
excellent black and white photos, the wonderfully written story, and
even Real Audio throughout so we can listen as Patrick shares his
feelings. Undying Love is the one of the most beautiful sites I've
ever seen. The emotions all of us know as caregivers and family
members are expressed so completely, and the beautiful way this story
is told moves me to tears, again and again, every time I visit this
wonderful site. Patrick's site is a moving memorial to his mother and
a place where we can go where we can say "Yes, I feel those
emotions", shed some tears, and heal.
Caregiver's Army
http://www.caregiversarmy.org/
7th Place for the Year 2001
The Alzheimer's Disease Caregiver's Army, founded September 1999, has
launched a worldwide petition drive in support of finding a cure for
Alzheimer's Disease and for helping caregivers. Their goal is to
collect a million signatures, and several months ago spokesperson,
Carolyn Haynali, presented the first 20,000 signatures in Washington
DC. The Army has an impressively professional Web site, providing
Alzheimer's information, statistics about this disease, and featuring
photos of Carolyn meeting Congressmen. The Army mailing list/support
group which can be subscribed to at
http://groups.yahoo.com/group/CAREGIVERSARMY
Hearing Carolyn interviewed last year on the Don & Carla Show,
I must say I was impressed, and I can't think of a better
spokesperson. For her husband, Chuck, who has Alzheimer's, and for
caregivers and patients everywhere, Carolyn and the Caregiver's Army
are busy fighting this disease that has so affected all our lives.
Passage into Paradise
http://www.geocities.com/womack47/passage.html
8th Place for the Year 2001
Dorothy's book, Passage into Paradise, is her caregiving journal kept
during her time as caregiver for her mother. It is a huge book--
around 200 pages printed out, presented as 25 pages online-- but it
is one that the reader will "not want to put down" until finished.
Dorothy has given us not only her mother's journey with Alzheimer's,
but also the thoughts, feelings, doubts, and pain of a caregiver--
even one who is a woman of great faith. Dorothy's moving poetry and
beautiful photos of her mother are also included, and soft nature and
angel backgrounds help make the book a pleasure to read. Passage into
Paradise has been awarded the Alzheimer's Site of the Week at
About.com and a Suite101 Featured Online Book. Dorothy is a writer
for Today's Caregiver (Caregiver.com), Empowering Caregivers, and her
poems and articles are featured at several other Web sites, including
Alzheimer's Outreach, A Year to Remember, and Poetry.com. And hot
off the press, Dorothy's books: Passage into Paradise, Alzheimer's
Angels, and Sacred Sentiments, have all just been published in the
past couple of months (August and September 2002) by Writer's Club
Press / iUniverse.com. (I'll write more about Dorothys' books very
soon on my other list, Alzheimer's/Caregiving Book Reviews)
Caregiver's Haven
http://www.nhisgarden.com/caregivers/entrance.html
9th Place for the Year 2001
Nancy Walker is nurse who has 22 years of experience with caring for
the elderly and dementia patients. She has taken on Alzheimer's as her
cause and as well as providing information about AD, she has created
a true haven for weary caregivers and early-onset patients alike.
Her site features a Poetry Niche, which includes the poems of Dorothy
Womack, Brenda Race, Carolyn Haynali, Tim Brennan and others, and a
Gallery which displays paintings by Dorothy Womack's mother and some
selections from the Brace Alzheimer's Research Art Gallery. Nancy's
wish for us as we visit her site is "To sit back and find a relaxing
site filled with love, peace and maybe a laugh or too", and she
is doing a wonderful job at reaching that goal. Despite her former
server's losing her Web site files in the past couple of years, Nancy
has restored her site and continued to develop it even, amazing us
with all she accomplishes in addition to her busy career.
Poems, Prayers, and Promises
by Brenda Race
http://www.geocities.com/brace03/Mom.html
10th Place for the Year 2001
Brenda cared for her mother at home until she entered a nursing home
in December 1998. She was still with her every chance she got until
her mother died about a year later in December 1999. Brenda's site,
Poems, Prayers, and Promises, is unique in that it gives a positive
look at the nursing home experience, through her poetry and photos.
Brenda has collected her thoughts, memories, photos, and poems
from all stages in her journey with her mother and Alzheimer's,
and she has illustrated them all so wonderfully with beautiful
backgrounds and graphics. She also has included some poems that
Dorothy Womack wrote for her during her times of grief after her
mother's entrance into the nursing home and as the disease
progressed, taking more and more of her mother from her. It's a
wonderful site, full of beautiful poetry, great photos and
graphics, and tremendous spiritual insight.
Congrats to all of these wonderful sites! And, I am actually about
to get caught up here in a few months, maybe ...
Beginning with the year 2002, only one site has been chosen per
month, and this has been done randomly by the TopSites program. This
change was to reduce my time spent managing that list, thus to
eventually help me catch up with this email list, and also to give
others besides those with the most votes to have a chance to win. At
the end of the year, however, there will again be ten winning sites,
those coming in at the top with votes, just as before.
Best wishes to all!
Brenda
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Brenda Parris Sibley
A Year to Remember... http://www.zarcrom.com/users/yeartorem/
author of Waiting for the Morning, iUniverse.com ISBN:0-595-18782-X
http://www.iuniverse.com/bookstore/book_detail.asp?isbn=0%2D595%
2D18782%2DX
http://bpsibley.150m.com/wmf.html
Owner, Top Alzheimer's/Caregiving Sites
http://new.topsitelists.com/bestsites/bpsibley/topsites.html
Editor, Alzheimer's Disease Topic at Suite101
http://www.suite101.com/welcome.cfm/alzheimers_disease
Editor, Top Alzheimer's/Caregiving Sites Community at iUniverse
http://communities.iuniverse.com/bin/circle.asp?circleid=6622
Owner, Top Alzheimer's/Caregiving Sites Newsletter
http://groups.yahoo.com/group/TopADCaregivingSites/
Owner, Alzheimer's/Caregiving Book Reviews
http://groups.yahoo.com/group/ADbkreviews/
Easy, Affordable Community Education available at Suite101 University:
http://www.suite101.com/suiteu/default.cfm/261435
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
|