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Top Ten Alzheimer'/Caregiving Sites for the Year 2002   Message List  
Reply | Forward Message #27 of 27 | Next >
1st Place
ElderCare Online
http://www.ec-online.net/

With a weekly email newsletter, The Eldercare Beacon, the Eldercare
Forum message board, scheduled chats hosted by other caregivers,
professionals and guest moderators, and tons of information on the
site, ElderCare Online is truly a beacon for caregivers. Impressive
awards and reviews received by this site include: Alzheimer's Site of
the Week at About.com, featured on CNN/Time, in Time Magazine, and in
Smart Money. If you haven't already, you'll want to subscribe to the
very informative Eldercare Beacon newsletter to keep up to date on
all that is going on at ElderCare Online and so you won't miss out
on some of the best articles you can read about issues involved in
Alzheimer's and caregiving.

2nd Place
Caregiver's Army
http://www.ec-online.net/

The Alzheimer's Disease Caregiver's Army, founded September 1999, has
launched a worldwide petition drive in support of finding a cure for
Alzheimer's Disease and for helping caregivers. Their goal is to
collect a million signatures, and several months ago spokesperson,
Carolyn Haynali, presented the first 20,000 signatures in Washington
DC. The Army has an impressively professional Web site, providing
Alzheimer's information, statistics about this disease, and featuring
photos of Carolyn meeting Congressmen. The Army mailing list/support
group which can be subscribed to at
http://groups.yahoo.com/group/CAREGIVERSARMY
Hearing Carolyn interviewed last year on the Don & Carla Show,
I must say I was impressed, and I can't think of a better
spokesperson. For her husband, Chuck, who has Alzheimer's, and for
caregivers and patients everywhere, Carolyn and the Caregiver's Army


3rd Place
Alzheimer's Outreach
http://www.zarcrom.com/users/alzheimers/

A totally amazing site, one that inspires awe and wonder every time
we visit, is Marsha Penington's (aka Tay, or Taylor Austin)
Alzheimer's Outreach. Her informational directories on Alzheimer's,
other dementias, and caregiving issues includes around 250 full-text
documents. There is a poetry gallery full of poetry by Steven
Stoker, Jerry Ham, Brenda Race, and Dorothy Womack, and Marsha has
provided Web space for the various works of other caregivers and
Alzheimer's patients throughout her site. At the Alzheimer's
Outreach site, family caregivers and patients alike have shared their
photos, memories, memorials, thoughts, and the list goes on and on.
There is so much this site offers, it's difficult to even begin to
describe it all. Marsha's own story of her mother's Alzheimer's,
along with beautifully designed backgrounds and graphics by Marsha
herself, add a personal touch and intensify the sense of awe we feel
as we visit this wonderful site. Futhermore, Alzheimer's Outreach is
also the large and very active local community service/support group
that is coordinated by Marsha in the area where she lives. Locally
through this group and around the world via the Internet, Marsha's
Alzheimer's Outreach is for so many an excellent source of
information and support at all stages of the Alzheimer's/caregiving
journey.


4th Place
Undying Love
http://denver.rockymountainnews.com/undyinglove/

Undying Love was created by Patrick Davidson, a journalist, about his
mother who died of Alzheimer's. Undying Love tells the story of the
toll this disease took on his mother and the whole family through
excellent black and white photos, the wonderfully written story, and
even Real Audio throughout so we can listen as Patrick shares his
feelings. Undying Love is the one of the most beautiful sites I've
ever seen. The emotions all of us know as caregivers and family
members are expressed so completely, and the beautiful way this story
is told moves me to tears, again and again, every time I visit this
wonderful site. Patrick's site is a moving memorial to his mother and
a place where we can go where we can say "Yes, I feel those
emotions", shed some tears, and heal.


5th Place
Alzheimer Europe
http://www.alzheimer-europe.org/

Alzheimer Europe's aim is raising awareness of all forms of dementia
through coordination and cooperation between Alzheimer and related
disorders organizations in Europe and to organized support for
patients and caregivers. Alzheimer's Europe serves thirty-one member
organizations in twenty-six countries. Their excellently designed Web
site, featuring information on Alzheimer's and other dementias and
tips for caregivers, is available in ten languages.

6th Place
The Ribbon
http://www.theribbon.com/

The Ribbon Newsletter, the inspiration for this Web site, began in
January 1998, with the mission of providing information and support
for caregivers dealing with Alzheimer's and dementia. The teal
colored ribbon was chosen to help raise an awareness of AD and
symbolizes the connection of caregivers in their fight against this
illness. The Ribbon is a Suite 101 Four-Star Rated Site, has been an
Empowering Caregivers Site of the Month, and the newsletter was
awarded People's Connection Newsletter of the Week by America Online.

7th Place
AlZwell
http://www.alzwell.com/

Susan Grossman was caregiver to her mother-in-law, and this award-
winning site grew out of that experience. Alzwell includes many
interactive features, such as "The Anger Wall", and is the home of
the Caregiver Webring. Alzwell is packed full of information and
opportunities for others to share their stories. Susan's site has
been highly reviewed and received several prestigious awards, even
appearing in Yahoo Internet Life's Touched by the Net. After her
mother-in-law died, Susan continued regularly updating her site and
keeps people informed about updates through her Keepin' Up with
ALZwell newsletter. More recently the site has also joined with
ElderCare Online, displaying an even more professional look and is
providing more services to caregivers.

8th Place -
Mary's Place
http://www.angelfire.com/ok4/mari5113/index.html

Mary Lockhart has early-onset Alzheimer's. Before she was diagnosed,
she had managed a licensed day care for infants for fifteen years.
She misses the babies she cared for, but she has three little dogs
which she enjoys, as well as having an acquarium, and feeding birds
and squirrels. She is doing a wonderful job telling her story on her
home page, Mary's Place, where she shares her daily journal, family
photos, memories from her childhood, links to other sites, and a
chats for other patients like herself. Mary says "This is a very
lonely disease. If I can help one person with my page it will all be
worth it."

9th Place
My Journey
http://www.zarcrom.com/users/alzheimers/chip.html

Chip Gerber is 55, and he was diagnosed with Alzheimer's in 1997. He
worked for over 25 years as a licensed social worker. His daily
journal is online, accented by the always beautiful designs of
Webmaster Marsha Penington of Alzheimer's Outreach. Chip's journal
is unique in that it is not just an account of what he does every
day, but it is a collection of his thoughts, feelings, and
reflections on his journey with Alzheimer's. He expresses his
appreciation of and delight in ordinary things, including his senses
of smell, sight, and touch as he cherishes nature and the changing
seasons. Chip gives us a beautiful way to look at life, in spite of
our losses.

10th Place
Poems, Prayers & Promises
http://www.geocities.com/brace03/Mom.html

Brenda cared for her mother at home until she entered a nursing home
in December 1998. She was still with her every chance she got until
her mother died about a year later in December 1999. Brenda's site,
Poems, Prayers, and Promises, is unique in that it gives a positive
look at the nursing home experience, through her poetry and photos.
Brenda has collected her thoughts, memories, photos, and poems
from all stages in her journey with her mother and Alzheimer's,
and she has illustrated them all so wonderfully with beautiful
backgrounds and graphics. She also has included some poems that
Dorothy Womack wrote for her during her times of grief after her
mother's entrance into the nursing home and as the disease
progressed, taking more and more of her mother from her. It's a
wonderful site, full of beautiful poetry, great photos and
graphics, and tremendous spiritual insight.

My apologies for not posting this sooner. I could have sworn I
already did several months ago, but apparently I didn't. My husband
says I scare him sometimes. As a daughter of an Alzheimer's victim,
I scare myself sometimes. ;-) I am a rather busy person, an "absent
minded professor" (as a librarian I am a faculty member at a community
college), and am stressed-out at times, so maybe I can blame it on
that. ;-) But, hey - whatever comes - I'm not really afraid, and
one reason is all of the great EOADS on the Top Sites list, with the
stories you've shared, and all of the rest of you who share your
stories or information about this disease. :-)

Happy Spring, Everyone!

Brenda
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Brenda Parris Sibley ~ A Year to Remember...
www.zarcrom.com/users/yeartorem/
author of Waiting for the Morning, iUniverse.com ISBN:0-595-18782-X
www.iuniverse.com/bookstore/book_detail.asp?isbn=0%2D595%2D18782%2DX
Help for the Caring, iUniverse.com ISBN: 0-595-25356-3
www.iuniverse.com/bookstore/book_detail.asp?isbn=0%2D595%2D25356%2D3
Owner, Top Alzheimer's/Caregiving Sites
new.topsitelists.com/bestsites/bpsibley/topsites.html
Editor, Alzheimer's Disease Topic at Suite101
www.suite101.com/welcome.cfm/alzheimers_disease
Blogger, http://www.bloggingnetwork.com/Blogs/Affil/?
3027/Blog.aspx/after/
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~





Sat Apr 26, 2003 7:45 am

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1st Place ElderCare Online http://www.ec-online.net/ With a weekly email newsletter, The Eldercare Beacon, the Eldercare Forum message board, scheduled chats...
Brenda Parris Sibley
brenpsibley
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Apr 26, 2003
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