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Top Alzheimer's/Caregiving Sites - Feb.-Nov. 2002   Message List  
Reply | Forward Message #26 of 27 |
February 2002
Successful Aging
http://www.acsu.buffalo.edu/~drstall/

Dr. Robert Stall is Clinical Assistant Professor, SUNY--Buffalo
School of Medicine and the Division of Geriatrics and Gerontology,
Buffalo, NY. His Web site, which features pictures his grandmother
Goldie, an Alzheimer's victim, and his other grandparents, provides a
wealth of information about Alzheimer's, aging, and geriatrics. Among
the helpful information provided by Dr. Stall are slide shows on
the "Physiology of Aging" and "Principles of Geriatrics" and flash
cards concerning care of the aged including "The Ten Absolutes of
Caregiving for Alzheimer's Patients". Many helpful links are
provided, including a variety of assessment tools. Professionals and
family caregivers alike will find information and support on Dr.
Stall's very informative Web site.

March 2002
Joe's Quest for Alzheimer's
http://members.aol.com/_ht_a/joesjourney/myhomepage//profile.html

In 2000 Joe, an Alzheimer's patient, traveled to 48 states in an
informal effort to educate the public about dementia. He attended the
ten day Alzheimer World Congress 2000 in Washington, DC. In July of
that year, he was featured on television evening news programs in
eight major cities and appeared in several newspaper articles
about "JOE'S QUEST, A Journey across America to Find a Cure for
Alzheimer's." Along the way, Joe visited many people in nursing
homes, other facilities, and churches. Several radio stations
carried news of Joe's Journey. Joe and his care partner, Penny, are
in the process of writing several books.

April 2002
Alzheimer Europe
http://www.alzheimer-europe.org/

Alzheimer Europe's aim is raising awareness of all forms of dementia
through coordination and cooperation between Alzheimer and related
disorders organizations in Europe and to organized support for
patients and caregivers. Alzheimer's Europe serves thirty-one member
organizations in twenty-six countries. Their excellently designed Web
site, featuring information on Alzheimer's and other dementias and
tips for caregivers, is available in ten languages.

May 2002
Alice's Place
http://www.geocities.com/allieyoung1/Alices_Journals.html

Alice was diagnosed with Alzheimer's three years ago. Through her
photo album, she introduces us to home and the smiling faces of her
family. She says, "I have 5 wonderful children who have been very
supportive along this journey." Alice also introduces us to her
friends page where we see many others we've may have met online,
other early-onset dementia patients with Web sites of their own.
Alice's her journal lets us explore the thoughts and day-to-day life
of one who is in the early stages of this disease. As I read it, I am
struck with awe at what we are observing-- so many early-onset
Alzheimer's and related dementia patients opening their lives and
sharing their journeys with us.


June 2002
You told Me it's Not Contagious
http://www.angelfire.com/fl/capnbud/index.contagious.html

"Sometimes Ya' Gotta Laugh. . .To Keep From Cryin'" says Cap'n Bud.
This is his online book that tells the story of his mother-in-law's
Alzheimer's and how he and his family have dealt with this disease.
As Cap'n Bud introduces us to his family, we see, here's another
family, of individuals, yes, but yet so much like the rest of us.
Here is another family touched by Alzheimer's, and through all the
everyday events we share, it is good to find some humor in the things
the Alzheimer's patient does. Humor helps, but some of us,
unfortunately, can't see the humor until person with Alzheimer's is
gone. It's wonderful that Cap'n Bud and his family can see now
that "Sometimes Ya' Gotta Laugh..."

July 2002
Partner's Program
http://fisher.mgh.harvard.edu/alzheimers/

The Partner's Program's mission is to bring together researchers,
clinicians, and others interested in rapidly expanding the work being
done to care for people suffering from Alzheimer's disease and
related neurodegenerative disorders. They are involved in
Alzheimer's research at many levels: from benchtop research, to
participating in clinical trials for prospective therapeutic agents,
to hosting seminars and conferences aimed at building the core
knowledge of those involved in research and caregiving. The web site
includes publications, news, announcements of upcoming events, and
information for caregivers and patients.

August 2002
My Journey
http://www.zarcrom.com/users/alzheimers/chip.html

Chip is 56, and he was diagnosed with Alzheimer's in 1997. He worked
for over 25 years as a licensed social worker. His daily journal is
online, accented by the always beautiful designs of Webmaster Marsha
Penington of Alzheimer's Outreach. Chip's journal is unique in that
it is not just an account of what he does every day, but it is a
collection of his thoughts, feelings, and reflections on his journey
with Alzheimer's. He expresses his appreciation of and delight in
ordinary things, including his senses of smell, sight, and touch as
he cherishes nature and the changing seasons. Chip gives us a
beautiful way to look at life, in spite of our losses, as Alzheimer's
patients, caregivers, or anyone-- as each of us eventually will
suffer some losses in life. Beautifully written, Chip's "My Journey"
is a wonderful site to visit, helping us realize and count our
blessings and to be thankful for all we have.

September 2002
Empowering Caregivers
http://www.care-givers.com/

Gail R. Mitchell has built a safe nurturing site for all caregivers
focused on providing practical emotional and spiritual support with
tools for self-empowerment. Her site is an interactive community
with scheduled chats and forums, and a wealth of opportunities are
offered: expert columns, articles by top authors in the areas of
aging, caregiving and motivation, journal exercises, a newsletter, a
healing circle of prayer, spotlights, humor, alternative healing, and
inspiration. Empowering Caregivers is a huge site, full of
information and support, which offers those who care choices for
forgiveness, healing and love.

October 2002
A Tribute to Arlene Francis
http://www.arlenefrancis.com/

Arlene Francis, best known as a television actress who starred for
twenty-five years on What's My Line, also had a successful career
spanning fifty years on radio, the Broadway stage, and on film. She
also had Alzheimer's disease. This site was established in May 2000
as a tribute to Arlene. One year later, on May 31, 2001, she died at
age 93. Her tribute site, includes her biography, timeline, photo
gallery, her art, and more, including Alzheimer's disease information
and news. It's a beautiful site and a wonderful tribute and memorial
to this remarkable woman.

November 2002
Alzheimer's Association WA
http://www.alzheimers.asn.au/

The Alzheimer's Association of Western Australia "seeks to represent
and support individuals with dementia and their carers, and advance
their interests at a personal, community and political level." Their
site provides numerous documents about the history of the Association
since its beginning in 1981 and information about Alzheimer's and
related dementia for caregivers and about local support and
counseling services. A message board is provided so that visitors
can "Ask the experts", and caregivers are encouraged to send in their
stories for the Association's quarterly newsletter.

I hope you all have been having a wonderful holiday season! Happy
New Year & God bless you all!

Brenda
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Brenda Parris Sibley
A Year to Remember... http://www.zarcrom.com/users/yeartorem/
author of Waiting for the Morning, iUniverse.com ISBN:0-595-18782-X
http://www.iuniverse.com/bookstore/book_detail.asp?isbn=0%2D595%
2D18782%2DX
Help for the Caring, iUniverse.com ISBN: 0-595-25356-3
http://www.iuniverse.com/bookstore/book_detail.asp?isbn=0%2D595%
2D25356%2D3
http://bpsibley.150m.com/wmf.html
Owner, Top Alzheimer's/Caregiving Sites
http://new.topsitelists.com/bestsites/bpsibley/topsites.html
Editor, Alzheimer's Disease Topic at Suite101
http://www.suite101.com/welcome.cfm/alzheimers_disease
Editor, Top Alzheimer's/Caregiving Sites Community at iUniverse
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Owner, Top Alzheimer's/Caregiving Sites Newsletter
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Easy, Affordable Community Education available at Suite101 University:
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~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~






Mon Dec 30, 2002 11:01 pm

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February 2002 Successful Aging http://www.acsu.buffalo.edu/~drstall/ Dr. Robert Stall is Clinical Assistant Professor, SUNY--Buffalo School of Medicine and the...
Brenda Parris Sibley ...
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Dec 30, 2002
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