Hello.  New to this group & looking for natural treatments for
hashimoto's disease.  Is there anything I can do natural to help?

Symptoms / Problems - what are some of the symptoms & problems that
other people have with hashimoto's disease?

Thanks in advance.

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I had my RAIU exam done: I am waiting for the results.
I also spoke prior to the exam with my primary care doctor who explained further
why she wanted the test
although the fine needle biopsy results were benign:
although the results were benign, and my thyroid blood work was normal,
she doesn't intuitively feel at ease unless this test is completed:
after consulting with an endocrinologist, she feels that: an area of concern is
the fact that the largest
nodule is a mixture of solid and cystic: and that that, as well as the fact that
one nodule is a lot larger
than the other three, which are just cysts, causes concern.
Should the test results return "cold", she is going to refer me to an
endocrinologist to discuss what
the next steps if any should be: my own (non-medical) opinion is: I then would
ask him/her to repeat
the fine needle aspiration: I don't imagine that the next step would be removal
of my thyroid.
In any case I am going ahead with my vacation booking plans for 2009: but adding
trip insurance
for $25 extra, which I would any because my mother is 85 and I could cancel the
trip if I needed
to be with her: but this way too if they do have to remove my thyroid, I could
also cancel the trip
and not lose the moeny for the ticket.
How I feel is : frustrated at not having the answers yet, but I'll cope with it:
it could be a lot worse.


Laurie
:


[Non-text portions of this message have been removed]

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I had mine removed because of thyrid cancer they found during my 1st surgery.   
I did not have the needle biopsy but had the ultrasound.  For me if it was
affecting my trachea and may affect your breating then surgery may be best.  For
me I had hyperthroidism and it was affecting my heart.  I have been on my
thyroid hormone for over 2 yrs now and feel much better now.
 
I would listen to what your doctors have to say and then make a decision, then
it is an informed decision.
 
Dawn

--- On Mon, 10/13/08, webpoet1@... <webpoet1@...> wrote:

From: webpoet1@... <webpoet1@...>
Subject: [ThyroidDisease] 2 weeks to RAIU scan
To: ThyroidDisease2@yahoogroups.com
Date: Monday, October 13, 2008, 6:09 AM






In February, I broke my ankle: and when they xrayed my back and neck as a
precaution to make sure there was no damage there
they discovered 4 thyroid nodules.
I was non weight bearing (using a walker) for 6 weeks thereafter due to my
ankle, but took a cab to the hospital for
a thyroid ultrasound, and then later when I was walking again and back to work,
had an ultrasound guided fine needle aspiration.
They found that: 3 of the nodules were just cysts. One was larger (i.e.
dominant) and partly cystic and partly solid.
Blood work showed my thyroid was functioning normal; not hypo or hyper (actually
this is a worrying sign: because benign
nodules are more likely to make the thyroid not work right).
At first, I was told that the biopsy results showed it was benign: now my
primary care doctor says that it was
"probably benign; benign, but on the top of the range between benign and
indeterminate" . So at first, after 3 months of worrying,
I stopped worrying, then with that second phone call I was worrying again. Due
to this, she wants me to have
a? radioiodine uptake test, which I am having?on the 21s and 22nd. I have no
more vacation/sick leave after my ankle injury,
but am going to make up the time by working extra that week, other days. My
worries about this test were addressed in that
they told me it is radioiodone ablation THERAPY that has levels of radiation
that require precautions: on the scan, the levels are
very low: I don't even need to keep away from my cats, one of which is usually
all over my lap.?
I am visiting m doctor for my annual physical this week, before the test: and
maybe I can get more explanation from her on hte
benign or not benign thing: the first phone call, made by my ENT doctor he said
that the biopsy showed colloid cells: and that this
is almost always an indication of a benign nodule: but maybe the results were
more complicated than that?
I think one thing they are worried about is the fact that the nodule is
displacing my trachea a little bit, which can e a worrysome
sign?
It will be interesting to see what the next step is if the nodules are "cold"
(which I am told most are): would it be appropriate
to insist that if so, the next step should be to repeat the needle aspiration
biopsy to see if things become more certain? Do you think
my doctor/s would be okay with this, rather than going right to having my
thyroid out?
What I get from this is that they THINK it is benign, but are not sure, due to
the fact the nodule is a mixture of cyst and solid,
is around 3 centimeters (large), is NOT causing hypo or hyper thyroid, and is
slightly
displacing my trachea: sort of a gut level feeling by them that they have a
"reasonable doubt" so want to make sure.

Laurie

[Non-text portions of this message have been removed]


















[Non-text portions of this message have been removed]

In February, I broke my ankle: and when they xrayed my back and neck as a
precaution to make sure there was no damage there
they discovered 4 thyroid nodules.
I was non weight bearing (using a walker) for 6 weeks thereafter due to my
ankle, but took a cab to the hospital for
a thyroid ultrasound, and then later when I was walking again and back to work,
had an ultrasound guided fine needle aspiration.
They found that: 3 of the nodules were just cysts. One was larger (i.e.
dominant) and partly cystic and partly solid.
Blood work showed my thyroid was functioning normal; not hypo or hyper (actually
this is a worrying sign: because benign
nodules are more likely to make the thyroid not work right).
At first, I was told that the biopsy results showed it was benign: now my
primary care doctor says that it was
"probably benign; benign, but on the top of the range between benign and
indeterminate". So at first, after 3 months of worrying,
I stopped worrying, then with that second phone call I was worrying again. Due
to this, she wants me to have
a? radioiodine uptake test, which I am having?on the 21s and 22nd. I have no
more vacation/sick leave after my ankle injury,
but am going to make up the time by working extra that week, other days. My
worries about this test were addressed in that
they told me it is radioiodone ablation THERAPY that has levels of radiation
that require precautions: on the scan, the levels are
very low: I don't even need to keep away from my cats, one of which is usually
all over my lap.?
I am visiting m doctor for my annual physical this week, before the test: and
maybe I can get more explanation from her on hte
benign or not benign thing: the first phone call, made by my ENT doctor he said
that the biopsy showed colloid cells: and that this
is almost always an indication of a benign nodule: but maybe the results were
more complicated than that?
I think one thing they are worried about is the fact that the nodule is
displacing my trachea a little bit, which can e a worrysome
sign?
It will be interesting to see what the next step is if the nodules are "cold"
(which I am told most are): would it be appropriate
to insist that if so, the next step should be to repeat the needle aspiration
biopsy to see if things become more certain? Do you think
my doctor/s would be okay with this, rather than going right to having my
thyroid out?
What I get from this is that they THINK it is benign, but are not sure, due to
the fact the nodule is a mixture of cyst and solid,
is around 3 centimeters (large), is NOT causing hypo or hyper thyroid, and is
slightly
displacing my trachea: sort of a gut level feeling by them that they have a
"reasonable doubt" so want to make sure.

Laurie


[Non-text portions of this message have been removed]

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Hi, I was tested TPO antibody and thyroid hormones ,diagnosed with
hashimoto's and hypothyroidism, and had  TG  tested a month ago, found a
solitary nodule of size 0.7*0.4 cm measured by ultrasound, the left size
of goiter is 5.0*1.7*1.4 cm, the right side is 5.2*1.8*1.4 cm.

Yesterday I had another ultrasound, that said my nodule is about
0.5*0.5*0.6 cm, and the left size of the diffuse thyroid goiter was
slightly shrunk , the left is 4.3*1.4*0.9 cm, the right is 5.1*1.6*1.3
cm,(I think that is because I take T4 treatment now or because I had
ultrasound in different hospitals results could be different) and found
blood signs in the nodule.

TG 203.00 ng/ml (0.83-68)

Is it possible I am with Thyroid Carcinoma?

my PTH level is also high which was tested yesterday, but not tested for
TG this time. and I suspect that "nodule" is the tumor of parathyroid
and cause hyperparathyroidism POSSIBLY! However, it is very small, less
than 1cm size, what tests can I request besides ultrasound? I know even
the cold nodules can not confirm the disease. my Endo doctors are nuts!

iPTH 71.80 pg/ml (14-72)

I had an oncologist but I don't have to see him anymore.  I had my thyroid
removed over 2 yrs ago because I had thyroid cancer.   I had mine killed off and
have taken my throid hormone for 2 yrs now.   I go for blood work every few
months.  It has been almost a year since I have.  Last time my local doctor did
the prescription for 11 months. 
 
They found my cancer by accident.  I went in the doctor one day to change my med
for allergies and my pulse was 140.  They did an EKG and it was normal.  My
doctor then said it was probably hyperthyoidism and did blood work and sure
enough it was.  He wanted me to see a specialist but it was going to be a month
before I would get to, so he was not happy about it and wanted me seen asap by a
specialist.  So on to the surgeon, I went over my options with him and the
decision was up to me, I decided on surgery.  My levels were off the chart. 
Good thing I did, that is when they found the 4 suspicious spots.  Pathology
came back cancer.  They did a 2nd surgery 2 weeks after my first to get all the
cancer and more thyroid.  Then a couple months later I went back to the hospital
to have my thyroid killed off via radioactive iodine.   Now I take med hormone
daily and feel fine.  I go in a couple of months to get blood work and the only
reason to
  change my level if blood work says so or I  have trouble sleeping.  I am a very
sound sleeper so when my thyroid levels are of then I wake up way too much at
night and feel like I never got any at all.
 
So I would get a 2nd opinion if you feel the need to but I didn't, I have been
with my doctors office for years so they know what I been through.  I would see
where your doctor wants you go to next,
 
Dawn

--- On Mon, 9/1/08, Laurie <webpoet1@...> wrote:

From: Laurie <webpoet1@...>
Subject: [ThyroidDisease] FNA results/and next steps/challenges
To: ThyroidDisease2@yahoogroups.com
Date: Monday, September 1, 2008, 10:53 AM






I posted on this group last earlier in the summer: when I had a FNA
test for thyroid nodules; which at the time I was told was benign.
I then desubscribed from the list, figuring: end of story.
I then heard from my primary care physician, who had reviewed the
results and one further research, consulting with an endocrinologist:
and she now feels that we need to do a further test: a radio iodine
uptake test: the reason is that although the results were benign, they
were at the upper margin of benign: close to the limit between benign
and indeterminate. I am not TOO upset; because a biopsy that is benign
but close to indeterminate doesn't sound like it is clearly cancer.

But there are a couple of logistical challenges ahead for me:
my partner and I are going on a 1 week cruise two weeks from now.
After that, I will be out of paid time off for the entire year: I mean
literally: that if I get a cold, and absolutely can't come in, I have
to work a Saturday that same week to make it up. There is a clause that
we are allowed unpaid leave: under FMLA: which the medical test above
would fall under: but I would like to avoid the unpaid two half-days if
possible.

I am going to try to get the test done at a facility close to my work,
if possible: because this would avoid having to drive one hour each way
from work to get the iodine, then back to work the same day, then the
same thing for the test itself the next day.
That's not only a lot of time driving but a lot of gas: the problem is
that if she is not affiliated with a hospital or facility near where I
work she will not be able to allow this.

the other logistical thing is; what are the next steps if the nodules
show up as "cold": I understand that hot or warm nodules are rarely
cancerous but cold nodules might or might not be: since the biopsy
was "indeterminate" : does this mean they immediately take out my
thyroid? Or will they repeat the biopsy?

the other logistical thing was that I broke my ankle this past February
(the reason why they found the nodules: they had done a neck xray to
make sure my neck wasn't injured when I fell): and could not go to see
my mother in California this year, but figured, that now I am recovered
from the ankle injury I'll go see her in February 2009. But if they
have to take out my thyroid, that takes my vacation time for 2009,
and plus I would not have recovered enough: she is well (at least fo
rnow: although at age 85 it is always day to day) and February was the
earliest, weather wise, I could see her: but I am sure she will
understand waiting. Am also not sure what the recovery period would
beafter surgery, for walking: I like to go on a multi day peace walk in
Nevada each year when I go to see my mother: and I had looked upon this
as another affirmation of being recovered from the ankle injury: but
can give up on this, because it is more important to preserve my life
if there is a chance the nodules are malignant. But it is just
disappointing.

Do any of you know what the suggested next steps woudl be:
with nodules at the borderline between benign and indeterminate, IF the
scan reports they are "cold"?
Other background is: there are 4 nodules. 3 are just cysts.
the one that was biopsied was partly cystic and partly solid:
and is I think around 1.5 centimeter in diameter: which is pretty big.
But I had no symptoms, and my thyroid levels were totally normal
(but isn't it a better indication of it being benign if your thyroid
tgests are either hypo or hyperthyroid? )

That is: would they just have my thyroid out, or repeat tests?

Would it be appropriate if the former for me to get a second opinion:
and if so, would an endicronologist, or an oncologist be a better
choice?

I know I am putting the horse before the cart, but this all happened so
fast: I was told all was well, then I suddenly got a call this last
week. The test itself was in June.

It was lucky in a sense that the call came so late: had it come say in
July, the test would have been scheduled for August: in which case I
would have had to cancel my cruise; since my employer's policy is
clear: if you use your paid time off, NO unpaid time except FMLA,
and I would have been short one day (although I think they might have
worked out a way for me to work on a Saturday informally).

Laurie


















[Non-text portions of this message have been removed]

Okay I found the link you
need............http://www.nccn.org/professionals/physician_gls/PDF/thyr\
oid.pdf  This should help!




--- In ThyroidDisease2@yahoogroups.com, "Laurie" <webpoet1@...> wrote:
>
> I posted on this group last earlier in the summer: when I had a FNA
> test for thyroid nodules; which at the time I was told was benign.
> I then desubscribed from the list, figuring: end of story.
> I then heard from my primary care physician, who had reviewed the
> results and one further research, consulting with an endocrinologist:
> and she now feels that we need to do a further test: a radio iodine
> uptake test: the reason is that although the results were benign, they
> were at the upper margin of benign: close to the limit between benign
> and indeterminate. I am not TOO upset; because a biopsy that is benign
> but close to indeterminate doesn't sound like it is clearly cancer.
>
> But there are a couple of logistical challenges ahead for me:
> my partner and I are going on a 1 week cruise two weeks from now.
> After that, I will be out of paid time off for the entire year: I mean
> literally: that if I get a cold, and absolutely can't come in, I have
> to work a Saturday that same week to make it up. There is a clause
that
> we are allowed unpaid leave: under FMLA: which the medical test above
> would fall under: but I would like to avoid the unpaid two half-days
if
> possible.
>
> I am going to try to get the test done at a facility close to my work,
> if possible: because this would avoid having to drive one hour each
way
> from work to get the iodine, then back to work the same day, then the
> same thing for the test itself the next day.
> That's not only a lot of time driving but a lot of gas: the problem is
> that if she is not affiliated with a hospital or facility near where I
> work she will not be able to allow this.
>
> the other logistical thing is; what are the next steps if the nodules
> show up as "cold": I understand that hot or warm nodules are rarely
> cancerous but cold nodules might or might not be: since the biopsy
> was "indeterminate": does this mean they immediately take out my
> thyroid? Or will they repeat the biopsy?
>
> the other logistical thing was that I broke my ankle this past
February
> (the reason why they found the nodules: they had done a neck xray to
> make sure my neck wasn't injured when I fell): and could not go to see
> my mother in California this year, but figured, that now I am
recovered
> from the ankle injury I'll go see her in February 2009. But if they
> have to take out my thyroid, that takes my vacation time for 2009,
> and plus I would not have recovered enough: she is well (at least fo
> rnow: although at age 85 it is always day to day) and February was the
> earliest, weather wise, I could see her: but I am sure she will
> understand waiting. Am also not sure what the recovery period would
> beafter surgery, for walking: I like to go on a multi day peace walk
in
> Nevada each year when I go to see my mother: and I had looked upon
this
> as another affirmation of being recovered from the ankle injury: but
> can give up on this, because it is more important to preserve my life
> if there is a chance the nodules are malignant. But it is just
> disappointing.
>
> Do any of you know what the suggested next steps woudl be:
> with nodules at the borderline between benign and indeterminate, IF
the
> scan reports they are "cold"?
> Other background is: there are 4 nodules. 3 are just cysts.
> the one that was biopsied was partly cystic and partly solid:
> and is I think around 1.5 centimeter in diameter: which is pretty big.
> But I had no symptoms, and my thyroid levels were totally normal
> (but isn't it a better indication of it being benign if your thyroid
> tgests are either hypo or hyperthyroid?)
>
> That is: would they just have my thyroid out, or repeat tests?
>
> Would it be appropriate if the former for me to get a second opinion:
> and if so, would an endicronologist, or an oncologist be a better
> choice?
>
> I know I am putting the horse before the cart, but this all happened
so
> fast: I was told all was well, then I suddenly got a call this last
> week. The test itself was in June.
>
> It was lucky in a sense that the call came so late: had it come say in
> July, the test would have been scheduled for August: in which case I
> would have had to cancel my cruise; since my employer's policy is
> clear: if you use your paid time off, NO unpaid time except FMLA,
> and I would have been short one day (although I think they might have
> worked out a way for me to work on a Saturday informally).
>
> Laurie
>

I think I would probably explain your situation to your Dr and then ask
if it was them what would they do? Or their child or spouse...I seem to
get better answers that way.Also I will check into one more thing...the
NCCN usually has guidelines and flow charts on what to do based on
findings for different kinds of cancers, I have used this in the past to
determine if the correct protocol is being used by the
physician.........Good Luck

Christin
--- In ThyroidDisease2@yahoogroups.com, "Laurie" <webpoet1@...> wrote:
>
> I posted on this group last earlier in the summer: when I had a FNA
> test for thyroid nodules; which at the time I was told was benign.
> I then desubscribed from the list, figuring: end of story.
> I then heard from my primary care physician, who had reviewed the
> results and one further research, consulting with an endocrinologist:
> and she now feels that we need to do a further test: a radio iodine
> uptake test: the reason is that although the results were benign, they
> were at the upper margin of benign: close to the limit between benign
> and indeterminate. I am not TOO upset; because a biopsy that is benign
> but close to indeterminate doesn't sound like it is clearly cancer.
>
> But there are a couple of logistical challenges ahead for me:
> my partner and I are going on a 1 week cruise two weeks from now.
> After that, I will be out of paid time off for the entire year: I mean
> literally: that if I get a cold, and absolutely can't come in, I have
> to work a Saturday that same week to make it up. There is a clause
that
> we are allowed unpaid leave: under FMLA: which the medical test above
> would fall under: but I would like to avoid the unpaid two half-days
if
> possible.
>
> I am going to try to get the test done at a facility close to my work,
> if possible: because this would avoid having to drive one hour each
way
> from work to get the iodine, then back to work the same day, then the
> same thing for the test itself the next day.
> That's not only a lot of time driving but a lot of gas: the problem is
> that if she is not affiliated with a hospital or facility near where I
> work she will not be able to allow this.
>
> the other logistical thing is; what are the next steps if the nodules
> show up as "cold": I understand that hot or warm nodules are rarely
> cancerous but cold nodules might or might not be: since the biopsy
> was "indeterminate": does this mean they immediately take out my
> thyroid? Or will they repeat the biopsy?
>
> the other logistical thing was that I broke my ankle this past
February
> (the reason why they found the nodules: they had done a neck xray to
> make sure my neck wasn't injured when I fell): and could not go to see
> my mother in California this year, but figured, that now I am
recovered
> from the ankle injury I'll go see her in February 2009. But if they
> have to take out my thyroid, that takes my vacation time for 2009,
> and plus I would not have recovered enough: she is well (at least fo
> rnow: although at age 85 it is always day to day) and February was the
> earliest, weather wise, I could see her: but I am sure she will
> understand waiting. Am also not sure what the recovery period would
> beafter surgery, for walking: I like to go on a multi day peace walk
in
> Nevada each year when I go to see my mother: and I had looked upon
this
> as another affirmation of being recovered from the ankle injury: but
> can give up on this, because it is more important to preserve my life
> if there is a chance the nodules are malignant. But it is just
> disappointing.
>
> Do any of you know what the suggested next steps woudl be:
> with nodules at the borderline between benign and indeterminate, IF
the
> scan reports they are "cold"?
> Other background is: there are 4 nodules. 3 are just cysts.
> the one that was biopsied was partly cystic and partly solid:
> and is I think around 1.5 centimeter in diameter: which is pretty big.
> But I had no symptoms, and my thyroid levels were totally normal
> (but isn't it a better indication of it being benign if your thyroid
> tgests are either hypo or hyperthyroid?)
>
> That is: would they just have my thyroid out, or repeat tests?
>
> Would it be appropriate if the former for me to get a second opinion:
> and if so, would an endicronologist, or an oncologist be a better
> choice?
>
> I know I am putting the horse before the cart, but this all happened
so
> fast: I was told all was well, then I suddenly got a call this last
> week. The test itself was in June.
>
> It was lucky in a sense that the call came so late: had it come say in
> July, the test would have been scheduled for August: in which case I
> would have had to cancel my cruise; since my employer's policy is
> clear: if you use your paid time off, NO unpaid time except FMLA,
> and I would have been short one day (although I think they might have
> worked out a way for me to work on a Saturday informally).
>
> Laurie
>

I posted on this group last earlier in the summer: when I had a FNA
test for thyroid nodules; which at the time I was told was benign.
I then desubscribed from the list, figuring: end of story.
I then heard from my primary care physician, who had reviewed the
results and one further research, consulting with an endocrinologist:
and she now feels that we need to do a further test: a radio iodine
uptake test: the reason is that although the results were benign, they
were at the upper margin of benign: close to the limit between benign
and indeterminate. I am not TOO upset; because a biopsy that is benign
but close to indeterminate doesn't sound like it is clearly cancer.

But there are a couple of logistical challenges ahead for me:
my partner and I are going on a 1 week cruise two weeks from now.
After that, I will be out of paid time off for the entire year: I mean
literally: that if I get a cold, and absolutely can't come in, I have
to work a Saturday that same week to make it up. There is a clause that
we are allowed unpaid leave: under FMLA: which the medical test above
would fall under: but I would like to avoid the unpaid two half-days if
possible.

I am going to try to get the test done at a facility close to my work,
if possible: because this would avoid having to drive one hour each way
from work to get the iodine, then back to work the same day, then the
same thing for the test itself the next day.
That's not only a lot of time driving but a lot of gas: the problem is
that if she is not affiliated with a hospital or facility near where I
work she will not be able to allow this.

the other logistical thing is; what are the next steps if the nodules
show up as "cold": I understand that hot or warm nodules are rarely
cancerous but cold nodules might or might not be: since the biopsy
was "indeterminate": does this mean they immediately take out my
thyroid? Or will they repeat the biopsy?

the other logistical thing was that I broke my ankle this past February
(the reason why they found the nodules: they had done a neck xray to
make sure my neck wasn't injured when I fell): and could not go to see
my mother in California this year, but figured, that now I am recovered
from the ankle injury I'll go see her in February 2009. But if they
have to take out my thyroid, that takes my vacation time for 2009,
and plus I would not have recovered enough: she is well (at least fo
rnow: although at age 85 it is always day to day) and February was the
earliest, weather wise, I could see her: but I am sure she will
understand waiting. Am also not sure what the recovery period would
beafter surgery, for walking: I like to go on a multi day peace walk in
Nevada each year when I go to see my mother: and I had looked upon this
as another affirmation of being recovered from the ankle injury: but
can give up on this, because it is more important to preserve my life
if there is a chance the nodules are malignant. But it is just
disappointing.

Do any of you know what the suggested next steps woudl be:
with nodules at the borderline between benign and indeterminate, IF the
scan reports they are "cold"?
Other background is: there are 4 nodules. 3 are just cysts.
the one that was biopsied was partly cystic and partly solid:
and is I think around 1.5 centimeter in diameter: which is pretty big.
But I had no symptoms, and my thyroid levels were totally normal
(but isn't it a better indication of it being benign if your thyroid
tgests are either hypo or hyperthyroid?)

That is: would they just have my thyroid out, or repeat tests?

Would it be appropriate if the former for me to get a second opinion:
and if so, would an endicronologist, or an oncologist be a better
choice?

I know I am putting the horse before the cart, but this all happened so
fast: I was told all was well, then I suddenly got a call this last
week. The test itself was in June.

It was lucky in a sense that the call came so late: had it come say in
July, the test would have been scheduled for August: in which case I
would have had to cancel my cruise; since my employer's policy is
clear: if you use your paid time off, NO unpaid time except FMLA,
and I would have been short one day (although I think they might have
worked out a way for me to work on a Saturday informally).

Laurie

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Regards