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Jessica,

"Unremarkable" is a *good thing* - it means there was nothing out of
the ordinary to "remark" about.  I don't know about the normal sizes
of the lobes, but nodules should be followed up on - sounds like
ultrasound and the uptake scan are part of that.  So your doc is
staying on top of stuff.

HTH,

frankie (longtime lurker)



>ok, so I got the results back today from my thyroid ultrasound and am just
>not understanding how abnormal or whatever they are. Maybe someone has
>something I can compare it to?
>
>Just a quick info, I'm 29, diagnosed with hyperthyroidism about 3 years ago.
>
>Here's what the report says:
>
>"RESULT: Sagittal and transverse sonographic images of the thyroid
>demonstrate the right lobe to measure 5.5 x 1.8 x 2.0 cm and the left lobe
>to measure 5.9 x 1.6 x 2.1 cm.
>
>Both lobes are inhomogeneous (looked up the word it means 'ununiform') in
>their sonographic architecture due to presence of multiple nodules. The
>largest nodule on the right side is about 1.1 x 0.7 x 1.1 cm while the
>largest nodule on the left side is about 1.7 x 0.9 x 1.4 cm. The thyroid
>isthmus is unremarkable.
>
>IMPRESSION: Multinodular goiter with questionable mild interval increase in
>size of the left nodule. Progressive ultrasound study should be performed
>in 3-6 months for interval assessment. Postpregnancy correlation with
>nuclear medicine thyroid uptake scan may also be of value."
>
>So I'm wondering what they mean by 'the thyroid isthmus is unremarkable' ,
>is that good or bad? The nodules have grown in size since my thryroid
>ultrasound done in Jan. '04, but I have no idea what normal measurements of
>the lobes are to compare mine to.
>
>Jessica
>


--
This message has been scanned for viruses and
dangerous content by MailScanner, and is
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ok, so I got the results back today from my thyroid ultrasound and am just
not understanding how abnormal or whatever they are.  Maybe someone has
something I can compare it to?

Just a quick info, I'm 29, diagnosed with hyperthyroidism about 3 years ago.

Here's what the report says:

"RESULT:  Sagittal and transverse sonographic images of the thyroid
demonstrate the right lobe to measure 5.5 x 1.8 x 2.0 cm and the left lobe
to measure 5.9 x 1.6 x 2.1 cm.

Both lobes are inhomogeneous (looked up the word it means 'ununiform') in
their sonographic architecture due to presence of multiple nodules.  The
largest nodule on the right side is about 1.1 x 0.7 x 1.1 cm while the
largest nodule on the left side is about 1.7 x 0.9 x 1.4 cm.  The thyroid
isthmus is unremarkable.

IMPRESSION:  Multinodular goiter with questionable mild interval increase in
size of the left nodule.  Progressive ultrasound study should be performed
in 3-6 months for interval assessment.  Postpregnancy correlation with
nuclear medicine thyroid uptake scan may also be of value."

So I'm wondering what they mean by 'the thyroid isthmus is unremarkable' ,
is that good or bad?    The nodules have grown in size since my thryroid
ultrasound done in Jan. '04, but I have no idea what normal measurements of
the lobes are to compare mine to.

Jessica





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Dawn you have a virus.  The messege that has the title "new graphics site"
is being sent out by your computer, it's a trojan virus.  I hope you can get
it removed easily.

Jessica



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[Non-text portions of this message have been removed]

Thanks again Dawn.  I'm going this week for a round-up of blood work, as of
2 months ago my TSH was .006, free T3 6.41, and free T4 1.97.
6 months after delivering my last child my levels were TSH .004, free T3 8
79 and free T4 2.01.   In my  last pregnancy my TSH went as low as .0001.
  The unfortunate thing is that my husband's work does not offer insurance at
this time and I will be cut off of my pregnancy insurance 6 weeks after this
baby is born.   Hopefully he will have some insurance by then because I don
t want to let this go any longer.    I'm not too too worried about it being
cancerous, my main concern if the toll it's taking on my heart.  I'm only 29
years old and never dreamed I'd have to worry about heart failure!  Hope
this doc plans on spending alot of time with me because I'm gathering up
lots of questions and info for him lol.

Jessica

-------Original Message-------

From: Dawn Dingeldein
Date: 06/10/06 13:16:45
To: ThyroidDisease2@yahoogroups.com
Subject: Re: [ThyroidDisease] question........

I have seen and ent to check my vocal cords which are
fine and a surgeon and now my oncologist. But no
endocrinologist yet and may not but I don't know that
for sure.

My doctors are taking the approach that it needs to be
taken care of now and not wanting to wait months. But
they found cancer in my thyroid and that is why I have
a oncologist right now. The only thing I hate is
getting a referrel everytime I need to see him.

I would talk to your doctors and see if an oncologist
is necessary but since they have not found cancer you
may not need to see an oncologist. But one big thing
to do is ask questions even if it sound stupid and if
you want to know test results ask. If you doctor
won't give you results then you may want to switch.
My doctors are good about giving me results if I ask
for them.

But for now try to stay healthy and have a healthy
baby. After the birth of your baby maybe do the blood
work for tsh level again because I am sure it is
different than when you are not pregnant. I did have
an ultrasound on my thyroid but it did not find cancer
and the only way they found cancer was through
surgery. I knew what my lab results were so I knew
after research that surgery was best for my
hyperthyroidism but I also had other things going on
also.

I also did research online which helped me alot. The
biggest thing I say is stay informed and take the info
you have and ask questions.

Dawn

BTW I have 2 girls and Tori is 9 yrs old and Emily is
5 yrs old so I know what it is like dealing with young
children and thyroid issues.
--- Jessica B <jessicabittke@...> wrote:

> Thanks Dawn. The only doctor I've seen for the
> thyroid is an
> endocrinologist.......is there another kind I should
> see? I've seen several
> people mention ENT's and Oncologists. Just want to
> make sure I'm with the
> right kind of doctor.
>
> Jessica
>
>
>

Dance as if no-one were watching, Sing as if no-one were listening, Live
each day as if it were your last."

www.wwme.org
World Wide Marriage Encounter
we are Prayer Couple Coordinators for our local community.

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[Non-text portions of this message have been removed]

I have seen and ent to check my vocal cords which are
fine and a surgeon and now my oncologist.  But no
endocrinologist yet and may not but I don't know that
for sure.

My doctors are taking the approach that it needs to be
taken care of now and not wanting to wait months.  But
they found cancer in my thyroid and that is why I have
a oncologist right now.  The only thing I hate is
getting a referrel everytime I need to see him.

I would talk to your doctors and see if an oncologist
is necessary but since they have not found cancer you
may not need to see an oncologist.  But one big thing
to do is ask questions even if it sound stupid and if
you want to know test results ask.  If you doctor
won't give you results then you may want to switch.
My doctors are good about giving me results if I ask
for them.

But for now try to stay healthy and have a healthy
baby.  After the birth of your baby maybe do the blood
work for tsh level again because I am sure it is
different than when you are not pregnant.  I did have
an ultrasound on my thyroid but it did not find cancer
and the only way they found cancer was through
surgery. I knew what my lab results were so I knew
after research that surgery was best for my
hyperthyroidism but I also had other things going on
also.

I also did research online which helped me alot. The
biggest thing I say is stay informed and take the info
you have and ask questions.

Dawn

BTW I have 2 girls and Tori is 9 yrs old and Emily is
5 yrs old so I know what it is like dealing with young
children and thyroid issues.
--- Jessica B <jessicabittke@...> wrote:

> Thanks Dawn.    The only doctor I've seen for the
> thyroid is an
> endocrinologist.......is there another kind I should
> see?  I've seen several
> people mention ENT's and Oncologists.   Just want to
> make sure I'm with the
> right kind of doctor.
>
> Jessica
>
>
>

Dance as if no-one were watching, Sing as if no-one were listening, Live each
day as if it were your last."

www.wwme.org
World Wide Marriage Encounter
we are Prayer Couple Coordinators for our local community.


Homemade cards

__________________________________________________
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Thanks Dawn.    The only doctor I've seen for the thyroid is an
endocrinologist.......is there another kind I should see?  I've seen several
people mention ENT's and Oncologists.   Just want to make sure I'm with the
right kind of doctor.

Jessica


-------Original Message-------

From: Dawn Dingeldein
Date: 06/10/06 09:22:04
To: ThyroidDisease2@yahoogroups.com
Subject: Re: [ThyroidDisease] question........

I am blessed with some great doctors who listen and
know the info. They would noy have found my cancer
without surgery so I am glad we decided on surgery.
My surgery was very humble and whenhe was not sure
what the next step after the first surgery he talked
to other doctors and got their opinion. A second
surgery to remove the cancer. My thyroid is still hot
so they want it killed in case there is more cancer
and they want it done soon and not waiting for months
in my case. My oncologist also feels the same way.

Good luck with the rest of your pregnancy and
congrats.

Dawn

--- Jessica B <jessicabittke@...> wrote:

> thanks for the info Dawn. I've had this several
> years now, and my levels
> are way off when i'm not pregnant too, so
> unfortuantely its not just
> gestational. I was told 2 years ago that I would
> need either the
> radioactive iodine or whatever that is, or a
> thyroidectomy, but due to the
> fact that I breastfed for over a year the radiation
> was out of the question
> and I didn't go back in to the doc until recently
> and am pregnant again so
> they're not doing much. Based on the research I
> did, I've found that the
> thyroidectomy can be done during pregnancy with a
> local anesthesia, and so
> far, based on the criteria that makes a pregnant
> woman a canditate for the
> surgery, i fit right in there however the doctor
> doesn't seem to agree, so I
> don't know. I plan to print out alot of research
> i've done to take to my
> appt. with me and discuss everything with him. I
> don't want surgery, but
> that is a better option for me than the radiation
> considering by the end of
> this year I will have 5 small children. I also
> want to make sure he
> understands the risk of the disease on my baby, such
> as birth defects,
> still-birth, thyroid problems in the baby,
> intrauterine growth retardation,
> etc. I've found this several places on the
> internet as well "In general,
> the risks of untreated, uncontrolled hyperthyroidism
> are thought to well
> exceed the risk to the fetus of medication for
> treatment of the disease."
> I'm just not so sure this doctor has all the
> information he needs to
> properly care for me.
>
> Jessica
>
> Click here to visit my pregnancy journal and see how
> things are progressing
> =)
> *last updated 5/26/06
>
> -------Original Message-------
>
> From: Dawn Dingeldein
> Date: 06/09/06 20:04:15
> To: ThyroidDisease2@yahoogroups.com
> Subject: Re: [ThyroidDisease] question........
>
> I had my ultrasounded and never really heard my
> results but after talking to my surgeon and hearing
> my
> numbers from lab work I decided to do surgery which
> is
> the only reason they found my cancer. So soon I will
> go and have my thyroid killed off for good and go on
> meds.
>
> Since you are pregnant I doubt they will do surgery
> and your may not cause a problem but after the baby
> is
> born you may want to have the tests done again and
> see
> what is happening.
>
> Dawn
>
> --- Jessica B <jessicabittke@...> wrote:
>
> > I had a thyroid ultrasound today, however won't
> hear
> > any results until early
> > next week. In January '04 i had one also and they
> > found my thyroid
> > enlarged (goiter) and about 6 nodules that were
> > approx 1 cm in diameter each
> > Today I watched as she was numbering the nodules
> > and it appears that she
> > counted over 13 (based on the numbers i saw her
> > typing) but I don't know how
> > big they all were.
> >
> > My question is....... can they tell by looking at
> > them if they should do a
> > biopsy or not? I know that the majority of nodules
> > are non-cancerous, but
> > with having so many of them now I kinda worry
> about
> > the fact that no further
> > testing has yet been ordered on them. Should I be
> > worried? All I really
> > know at this point is that I have hyperthyroidism
> > (overactive thyroid), that
> > I have goiter and nodules, and that my thyroid
> > levels are way off. And at
> > this point, nothing has been done about it because
> > I'm pregnant even though
> > all of the research I did says that PTU is
> > considered very safe in pregnancy
> > I don't see the endocrinilogist until July 21st or
> > somewhere around then..
> > .....are there certain things I should be asking
> > him?
> >
> > Jessica
> >
> > Click here to visit my pregnancy journal and see
> how
> > things are progressing
> > =)
> > *last updated 5/26/06
> >
> >
> > [Non-text portions of this message have been
> > removed]
> >
> >
>
> Dance as if no-one were watching, Sing as if no-one
> were listening, Live
> each day as if it were your last."
>
> www.wwme.org
> World Wide Marriage Encounter
> we are Prayer Couple Coordinators for our local
> community.
>
> Homemade cards
>
> __________________________________________________
> Do You Yahoo!?
> Tired of spam? Yahoo! Mail has the best spam
> protection around
> http://mail.yahoo.com
>
>
>
>
> [Non-text portions of this message have been
> removed]
>
>

Dance as if no-one were watching, Sing as if no-one were listening, Live
each day as if it were your last."

www.wwme.org
World Wide Marriage Encounter
we are Prayer Couple Coordinators for our local community.

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__________________________________________________
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[Non-text portions of this message have been removed]

I am blessed with some great doctors who listen and
know the info.  They would noy have found my cancer
without surgery so I am glad we decided on surgery.
My surgery was very humble and whenhe was not sure
what the next step after the first surgery he talked
to other doctors and got their opinion.  A second
surgery to remove the cancer.  My thyroid is still hot
so they want it killed in case there is more cancer
and they want it done soon and not waiting for months
in my case.  My oncologist also feels the same way.

Good luck with the rest of your pregnancy and
congrats.

Dawn

--- Jessica B <jessicabittke@...> wrote:

> thanks for the info Dawn.  I've had this several
> years now,  and my levels
> are way off when i'm not pregnant too, so
> unfortuantely its not just
> gestational.  I was told 2 years ago that I would
> need either the
> radioactive iodine or whatever that is, or a
> thyroidectomy, but due to the
> fact that I breastfed for over a year the radiation
> was out of the question
> and I didn't go back in to the doc until recently
> and am pregnant again so
> they're not doing much.   Based on the research I
> did, I've found that the
> thyroidectomy can be done during pregnancy with a
> local anesthesia, and so
> far, based on the criteria that makes a pregnant
> woman a canditate for the
> surgery, i fit right in there however the doctor
> doesn't seem to agree, so I
> don't know.   I plan to print out alot of research
> i've done to take to my
> appt. with me and discuss everything with him.   I
> don't want surgery, but
> that is a better option for me than the radiation
> considering by the end of
> this year I will have 5 small children.   I also
> want to make sure he
> understands the risk of the disease on my baby, such
> as birth defects,
> still-birth, thyroid problems in the baby,
> intrauterine growth retardation,
> etc.   I've found this several places on the
> internet as well "In general,
> the risks of untreated, uncontrolled hyperthyroidism
> are thought to well
> exceed the risk to the fetus of medication for
> treatment of the disease."
> I'm just not so sure this doctor has all the
> information he needs to
> properly care for me.
>
> Jessica
>
> Click here to visit my pregnancy journal and see how
> things are progressing
> =)
> *last updated 5/26/06
>
> -------Original Message-------
>
> From: Dawn Dingeldein
> Date: 06/09/06 20:04:15
> To: ThyroidDisease2@yahoogroups.com
> Subject: Re: [ThyroidDisease] question........
>
> I had my ultrasounded and never really heard my
> results but after talking to my surgeon and hearing
> my
> numbers from lab work I decided to do surgery which
> is
> the only reason they found my cancer. So soon I will
> go and have my thyroid killed off for good and go on
> meds.
>
> Since you are pregnant I doubt they will do surgery
> and your may not cause a problem but after the baby
> is
> born you may want to have the tests done again and
> see
> what is happening.
>
> Dawn
>
> --- Jessica B <jessicabittke@...> wrote:
>
> > I had a thyroid ultrasound today, however won't
> hear
> > any results until early
> > next week. In January '04 i had one also and they
> > found my thyroid
> > enlarged (goiter) and about 6 nodules that were
> > approx 1 cm in diameter each
> > Today I watched as she was numbering the nodules
> > and it appears that she
> > counted over 13 (based on the numbers i saw her
> > typing) but I don't know how
> > big they all were.
> >
> > My question is....... can they tell by looking at
> > them if they should do a
> > biopsy or not? I know that the majority of nodules
> > are non-cancerous, but
> > with having so many of them now I kinda worry
> about
> > the fact that no further
> > testing has yet been ordered on them. Should I be
> > worried? All I really
> > know at this point is that I have hyperthyroidism
> > (overactive thyroid), that
> > I have goiter and nodules, and that my thyroid
> > levels are way off. And at
> > this point, nothing has been done about it because
> > I'm pregnant even though
> > all of the research I did says that PTU is
> > considered very safe in pregnancy
> > I don't see the endocrinilogist until July 21st or
> > somewhere around then..
> > .....are there certain things I should be asking
> > him?
> >
> > Jessica
> >
> > Click here to visit my pregnancy journal and see
> how
> > things are progressing
> > =)
> > *last updated 5/26/06
> >
> >
> > [Non-text portions of this message have been
> > removed]
> >
> >
>
> Dance as if no-one were watching, Sing as if no-one
> were listening, Live
> each day as if it were your last."
>
> www.wwme.org
> World Wide Marriage Encounter
> we are Prayer Couple Coordinators for our local
> community.
>
> Homemade cards
>
> __________________________________________________
> Do You Yahoo!?
> Tired of spam? Yahoo! Mail has the best spam
> protection around
> http://mail.yahoo.com
>
>
>
>
> [Non-text portions of this message have been
> removed]
>
>


Dance as if no-one were watching, Sing as if no-one were listening, Live each
day as if it were your last."

www.wwme.org
World Wide Marriage Encounter
we are Prayer Couple Coordinators for our local community.


Homemade cards

__________________________________________________
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See I learn something new everyday.   I didn't realize that is was possible
to be 'overweight' with an overactive thyroid?  I thought that was only with
hypothyroidism.    Although you don't find much literature on the weight
symptoms so I guess I just assumed since my mom has hypo and is heavy, and I
have hyper and am skin and bones.

Thanks for the info, and for clarifying how uncommon the cancer is.

Jessica


-------Original Message-------

From: Beth
Date: 06/10/06 05:49:10
To: ThyroidDisease2@yahoogroups.com
Subject: [ThyroidDisease] Re: question........

from my experience and what i've been told from my doctors is that
the hyperthyroidism with thyroid cancer is very rare. I have
hyperthyroidism along with nodules and a goiter and papillary
carcinoma. They decided to do my biopsy due to one of the nodules
being irregular in shape. The doctor doing the biopsy(fna)explained
to me that that's where they decided to take the biopsy from rather
than from all over because of that and "that it was probably just
calcification". I love his optimism...
I'm guessing they probably don't see anything that raises immediate
suspision, and given that you're pregnant they're probably just
waiting. I would suggest that once you give birth you ask them to
biopsy it anyway, just for peace of mind. Doctors aren't always
right.
When I first got sick, the first doctor I went to said that I just
needed to lose weight. Never even took blood work, nonetheless
suspected hyperthyroidism with me being fat...so they don't know
everything

--- In ThyroidDisease2@yahoogroups.com, "Jessica B"
<jessicabittke@...> wrote:
>
> I had a thyroid ultrasound today, however won't hear any results
until early
> next week. In January '04 i had one also and they found my
thyroid
> enlarged (goiter) and about 6 nodules that were approx 1 cm in
diameter each
> Today I watched as she was numbering the nodules and it appears
that she
> counted over 13 (based on the numbers i saw her typing) but I
don't know how
> big they all were.
>
> My question is....... can they tell by looking at them if they
should do a
> biopsy or not? I know that the majority of nodules are non-
cancerous, but
> with having so many of them now I kinda worry about the fact that
no further
> testing has yet been ordered on them. Should I be worried? All
I really
> know at this point is that I have hyperthyroidism (overactive
thyroid), that
> I have goiter and nodules, and that my thyroid levels are way
off. And at
> this point, nothing has been done about it because I'm pregnant
even though
> all of the research I did says that PTU is considered very safe in
pregnancy
> I don't see the endocrinilogist until July 21st or somewhere
around then..
> .....are there certain things I should be asking him?
>
> Jessica
>
> Click here to visit my pregnancy journal and see how things are
progressing
> =)
> *last updated 5/26/06
>
>
> [Non-text portions of this message have been removed]
>





[Non-text portions of this message have been removed]

from my experience and what i've been told from my doctors is that
the hyperthyroidism with thyroid cancer is very rare. I have
hyperthyroidism along with nodules and a goiter and papillary
carcinoma. They decided to do my biopsy due to one of the nodules
being irregular in shape. The doctor doing the biopsy(fna)explained
to me that that's where they decided to take the biopsy from rather
than from all over because of that and "that it was probably just
calcification". I love his optimism...
I'm guessing they probably don't see anything that raises immediate
suspision, and given that you're pregnant they're probably just
waiting. I would suggest that once you give birth you ask them to
biopsy it anyway, just for peace of mind. Doctors aren't always
right.
When I first got sick, the first doctor I went to said that I just
needed to lose weight. Never even took blood work, nonetheless
suspected hyperthyroidism with me being fat...so they don't know
everything

--- In ThyroidDisease2@yahoogroups.com, "Jessica B"
<jessicabittke@...> wrote:
>
> I had a thyroid ultrasound today, however won't hear any results
until early
> next week.    In January '04 i had one also and they found my
thyroid
> enlarged (goiter) and about 6 nodules that were approx 1 cm in
diameter each
>    Today I watched as she was numbering the nodules and it appears
that she
> counted over 13 (based on the numbers i saw her typing) but I
don't know how
> big they all were.
>
> My question is....... can they tell by looking at them if they
should do a
> biopsy or not?  I know that the majority of nodules are non-
cancerous, but
> with having so many of them now I kinda worry about the fact that
no further
> testing has yet been ordered on them.   Should I be worried?   All
I really
> know at this point is that I have hyperthyroidism (overactive
thyroid), that
> I have goiter and nodules, and that my thyroid levels are way
off.  And at
> this point, nothing has been done about it because I'm pregnant
even though
> all of the research I did says that PTU is considered very safe in
pregnancy
>   I don't see the endocrinilogist until July 21st or somewhere
around then..
> .....are there certain things I should be asking him?
>
> Jessica
>
> Click here to visit my pregnancy journal and see how things are
progressing
> =)
> *last updated 5/26/06
>
>
> [Non-text portions of this message have been removed]
>

This is a yahoo based email list, no one is writing TO you, somehow your
email address is subscribed and you need to unsubscribe, scroll all the way
to the end of this email and there will be a link to unsub.

Jessica

-------Original Message-------

From: vsingsone@...
Date: 06/09/06 22:55:38
To: ThyroidDisease2@yahoogroups.com
Subject: Re: [ThyroidDisease] question........

Please quit writing to me. I do not have thyroid disease and am really
getting tired of all the emails from you and your associates.

-------------- Original message --------------
From: Dawn Dingeldein <spiritsk@...>

I had my ultrasounded and never really heard my
results but after talking to my surgeon and hearing my
numbers from lab work I decided to do surgery which is
the only reason they found my cancer. So soon I will
go and have my thyroid killed off for good and go on
meds.

Since you are pregnant I doubt they will do surgery
and your may not cause a problem but after the baby is
born you may want to have the tests done again and see
what is happening.

Dawn

--- Jessica B <jessicabittke@...> wrote:

> I had a thyroid ultrasound today, however won't hear
> any results until early
> next week. In January '04 i had one also and they
> found my thyroid
> enlarged (goiter) and about 6 nodules that were
> approx 1 cm in diameter each
> Today I watched as she was numbering the nodules
> and it appears that she
> counted over 13 (based on the numbers i saw her
> typing) but I don't know how
> big they all were.
>
> My question is....... can they tell by looking at
> them if they should do a
> biopsy or not? I know that the majority of nodules
> are non-cancerous, but
> with having so many of them now I kinda worry about
> the fact that no further
> testing has yet been ordered on them. Should I be
> worried? All I really
> know at this point is that I have hyperthyroidism
> (overactive thyroid), that
> I have goiter and nodules, and that my thyroid
> levels are way off. And at
> this point, nothing has been done about it because
> I'm pregnant even though
> all of the research I did says that PTU is
> considered very safe in pregnancy
> I don't see the endocrinilogist until July 21st or
> somewhere around then..
> .....are there certain things I should be asking
> him?
>
> Jessica
>
> Click here to visit my pregnancy journal and see how
> things are progressing
> =)
> *last updated 5/26/06
>
>
> [Non-text portions of this message have been
> removed]
>
>

Dance as if no-one were watching, Sing as if no-one were listening, Live
each day as if it were your last."

www.wwme.org
World Wide Marriage Encounter
we are Prayer Couple Coordinators for our local community.

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__________________________________________________
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[Non-text portions of this message have been removed]





[Non-text portions of this message have been removed]

Please quit writing to me. I do not have thyroid disease and am really getting
tired of all the emails from you and your associates.

-------------- Original message --------------
From: Dawn Dingeldein <spiritsk@...>

I had my ultrasounded and never really heard my
results but after talking to my surgeon and hearing my
numbers from lab work I decided to do surgery which is
the only reason they found my cancer. So soon I will
go and have my thyroid killed off for good and go on
meds.

Since you are pregnant I doubt they will do surgery
and your may not cause a problem but after the baby is
born you may want to have the tests done again and see
what is happening.

Dawn

--- Jessica B <jessicabittke@...> wrote:

> I had a thyroid ultrasound today, however won't hear
> any results until early
> next week. In January '04 i had one also and they
> found my thyroid
> enlarged (goiter) and about 6 nodules that were
> approx 1 cm in diameter each
> Today I watched as she was numbering the nodules
> and it appears that she
> counted over 13 (based on the numbers i saw her
> typing) but I don't know how
> big they all were.
>
> My question is....... can they tell by looking at
> them if they should do a
> biopsy or not? I know that the majority of nodules
> are non-cancerous, but
> with having so many of them now I kinda worry about
> the fact that no further
> testing has yet been ordered on them. Should I be
> worried? All I really
> know at this point is that I have hyperthyroidism
> (overactive thyroid), that
> I have goiter and nodules, and that my thyroid
> levels are way off. And at
> this point, nothing has been done about it because
> I'm pregnant even though
> all of the research I did says that PTU is
> considered very safe in pregnancy
> I don't see the endocrinilogist until July 21st or
> somewhere around then..
> .....are there certain things I should be asking
> him?
>
> Jessica
>
> Click here to visit my pregnancy journal and see how
> things are progressing
> =)
> *last updated 5/26/06
>
>
> [Non-text portions of this message have been
> removed]
>
>

Dance as if no-one were watching, Sing as if no-one were listening, Live each
day as if it were your last."

www.wwme.org
World Wide Marriage Encounter
we are Prayer Couple Coordinators for our local community.

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__________________________________________________
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[Non-text portions of this message have been removed]

thanks for the info Dawn.  I've had this several years now,  and my levels
are way off when i'm not pregnant too, so unfortuantely its not just
gestational.  I was told 2 years ago that I would need either the
radioactive iodine or whatever that is, or a thyroidectomy, but due to the
fact that I breastfed for over a year the radiation was out of the question
and I didn't go back in to the doc until recently and am pregnant again so
they're not doing much.   Based on the research I did, I've found that the
thyroidectomy can be done during pregnancy with a local anesthesia, and so
far, based on the criteria that makes a pregnant woman a canditate for the
surgery, i fit right in there however the doctor doesn't seem to agree, so I
don't know.   I plan to print out alot of research i've done to take to my
appt. with me and discuss everything with him.   I don't want surgery, but
that is a better option for me than the radiation considering by the end of
this year I will have 5 small children.   I also want to make sure he
understands the risk of the disease on my baby, such as birth defects,
still-birth, thyroid problems in the baby, intrauterine growth retardation,
etc.   I've found this several places on the internet as well "In general,
the risks of untreated, uncontrolled hyperthyroidism are thought to well
exceed the risk to the fetus of medication for treatment of the disease."
I'm just not so sure this doctor has all the information he needs to
properly care for me.

Jessica

Click here to visit my pregnancy journal and see how things are progressing
=)
*last updated 5/26/06

-------Original Message-------

From: Dawn Dingeldein
Date: 06/09/06 20:04:15
To: ThyroidDisease2@yahoogroups.com
Subject: Re: [ThyroidDisease] question........

I had my ultrasounded and never really heard my
results but after talking to my surgeon and hearing my
numbers from lab work I decided to do surgery which is
the only reason they found my cancer. So soon I will
go and have my thyroid killed off for good and go on
meds.

Since you are pregnant I doubt they will do surgery
and your may not cause a problem but after the baby is
born you may want to have the tests done again and see
what is happening.

Dawn

--- Jessica B <jessicabittke@...> wrote:

> I had a thyroid ultrasound today, however won't hear
> any results until early
> next week. In January '04 i had one also and they
> found my thyroid
> enlarged (goiter) and about 6 nodules that were
> approx 1 cm in diameter each
> Today I watched as she was numbering the nodules
> and it appears that she
> counted over 13 (based on the numbers i saw her
> typing) but I don't know how
> big they all were.
>
> My question is....... can they tell by looking at
> them if they should do a
> biopsy or not? I know that the majority of nodules
> are non-cancerous, but
> with having so many of them now I kinda worry about
> the fact that no further
> testing has yet been ordered on them. Should I be
> worried? All I really
> know at this point is that I have hyperthyroidism
> (overactive thyroid), that
> I have goiter and nodules, and that my thyroid
> levels are way off. And at
> this point, nothing has been done about it because
> I'm pregnant even though
> all of the research I did says that PTU is
> considered very safe in pregnancy
> I don't see the endocrinilogist until July 21st or
> somewhere around then..
> .....are there certain things I should be asking
> him?
>
> Jessica
>
> Click here to visit my pregnancy journal and see how
> things are progressing
> =)
> *last updated 5/26/06
>
>
> [Non-text portions of this message have been
> removed]
>
>

Dance as if no-one were watching, Sing as if no-one were listening, Live
each day as if it were your last."

www.wwme.org
World Wide Marriage Encounter
we are Prayer Couple Coordinators for our local community.

Homemade cards

__________________________________________________
Do You Yahoo!?
Tired of spam? Yahoo! Mail has the best spam protection around
http://mail.yahoo.com




[Non-text portions of this message have been removed]

I had my ultrasounded and never really heard my
results but after talking to my surgeon and hearing my
numbers from lab work I decided to do surgery which is
the only reason they found my cancer.  So soon I will
go and have my thyroid killed off for good and go on
meds.

Since you are pregnant I doubt they will do surgery
and your may not cause a problem but after the baby is
born you may want to have the tests done again and see
what is happening.

Dawn

--- Jessica B <jessicabittke@...> wrote:

> I had a thyroid ultrasound today, however won't hear
> any results until early
> next week.    In January '04 i had one also and they
> found my thyroid
> enlarged (goiter) and about 6 nodules that were
> approx 1 cm in diameter each
>    Today I watched as she was numbering the nodules
> and it appears that she
> counted over 13 (based on the numbers i saw her
> typing) but I don't know how
> big they all were.
>
> My question is....... can they tell by looking at
> them if they should do a
> biopsy or not?  I know that the majority of nodules
> are non-cancerous, but
> with having so many of them now I kinda worry about
> the fact that no further
> testing has yet been ordered on them.   Should I be
> worried?   All I really
> know at this point is that I have hyperthyroidism
> (overactive thyroid), that
> I have goiter and nodules, and that my thyroid
> levels are way off.  And at
> this point, nothing has been done about it because
> I'm pregnant even though
> all of the research I did says that PTU is
> considered very safe in pregnancy
>   I don't see the endocrinilogist until July 21st or
> somewhere around then..
> .....are there certain things I should be asking
> him?
>
> Jessica
>
> Click here to visit my pregnancy journal and see how
> things are progressing
> =)
> *last updated 5/26/06
>
>
> [Non-text portions of this message have been
> removed]
>
>


Dance as if no-one were watching, Sing as if no-one were listening, Live each
day as if it were your last."

www.wwme.org
World Wide Marriage Encounter
we are Prayer Couple Coordinators for our local community.


Homemade cards

__________________________________________________
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I had my ultrasounded and never really heard my
results but after talking to my surgeon and hearing my
numbers from lab work I decided to do surgery which is
the only reason they found my cancer.  So soon I will
go and have my thyroid killed off for good and go on
meds.

Since you are pregnant I doubt they will do surgery
and your may not cause a problem but after the baby is
born you may want to have the tests done again and see
what is happening.

Dawn

--- Jessica B <jessicabittke@...> wrote:

> I had a thyroid ultrasound today, however won't hear
> any results until early
> next week.    In January '04 i had one also and they
> found my thyroid
> enlarged (goiter) and about 6 nodules that were
> approx 1 cm in diameter each
>    Today I watched as she was numbering the nodules
> and it appears that she
> counted over 13 (based on the numbers i saw her
> typing) but I don't know how
> big they all were.
>
> My question is....... can they tell by looking at
> them if they should do a
> biopsy or not?  I know that the majority of nodules
> are non-cancerous, but
> with having so many of them now I kinda worry about
> the fact that no further
> testing has yet been ordered on them.   Should I be
> worried?   All I really
> know at this point is that I have hyperthyroidism
> (overactive thyroid), that
> I have goiter and nodules, and that my thyroid
> levels are way off.  And at
> this point, nothing has been done about it because
> I'm pregnant even though
> all of the research I did says that PTU is
> considered very safe in pregnancy
>   I don't see the endocrinilogist until July 21st or
> somewhere around then..
> .....are there certain things I should be asking
> him?
>
> Jessica
>
> Click here to visit my pregnancy journal and see how
> things are progressing
> =)
> *last updated 5/26/06
>
>
> [Non-text portions of this message have been
> removed]
>
>


Dance as if no-one were watching, Sing as if no-one were listening, Live each
day as if it were your last."

www.wwme.org
World Wide Marriage Encounter
we are Prayer Couple Coordinators for our local community.


Homemade cards

__________________________________________________
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I had my ultrasounded and never really heard my
results but after talking to my surgeon and hearing my
numbers from lab work I decided to do surgery which is
the only reason they found my cancer.  So soon I will
go and have my thyroid killed off for good and go on
meds.

Since you are pregnant I doubt they will do surgery
and your may not cause a problem but after the baby is
born you may want to have the tests done again and see
what is happening.

Dawn

--- Jessica B <jessicabittke@...> wrote:

> I had a thyroid ultrasound today, however won't hear
> any results until early
> next week.    In January '04 i had one also and they
> found my thyroid
> enlarged (goiter) and about 6 nodules that were
> approx 1 cm in diameter each
>    Today I watched as she was numbering the nodules
> and it appears that she
> counted over 13 (based on the numbers i saw her
> typing) but I don't know how
> big they all were.
>
> My question is....... can they tell by looking at
> them if they should do a
> biopsy or not?  I know that the majority of nodules
> are non-cancerous, but
> with having so many of them now I kinda worry about
> the fact that no further
> testing has yet been ordered on them.   Should I be
> worried?   All I really
> know at this point is that I have hyperthyroidism
> (overactive thyroid), that
> I have goiter and nodules, and that my thyroid
> levels are way off.  And at
> this point, nothing has been done about it because
> I'm pregnant even though
> all of the research I did says that PTU is
> considered very safe in pregnancy
>   I don't see the endocrinilogist until July 21st or
> somewhere around then..
> .....are there certain things I should be asking
> him?
>
> Jessica
>
> Click here to visit my pregnancy journal and see how
> things are progressing
> =)
> *last updated 5/26/06
>
>
> [Non-text portions of this message have been
> removed]
>
>


Dance as if no-one were watching, Sing as if no-one were listening, Live each
day as if it were your last."

www.wwme.org
World Wide Marriage Encounter
we are Prayer Couple Coordinators for our local community.


Homemade cards

__________________________________________________
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I had a thyroid ultrasound today, however won't hear any results until early
next week.    In January '04 i had one also and they found my thyroid
enlarged (goiter) and about 6 nodules that were approx 1 cm in diameter each
    Today I watched as she was numbering the nodules and it appears that she
counted over 13 (based on the numbers i saw her typing) but I don't know how
big they all were.

My question is....... can they tell by looking at them if they should do a
biopsy or not?  I know that the majority of nodules are non-cancerous, but
with having so many of them now I kinda worry about the fact that no further
testing has yet been ordered on them.   Should I be worried?   All I really
know at this point is that I have hyperthyroidism (overactive thyroid), that
I have goiter and nodules, and that my thyroid levels are way off.  And at
this point, nothing has been done about it because I'm pregnant even though
all of the research I did says that PTU is considered very safe in pregnancy
   I don't see the endocrinilogist until July 21st or somewhere around then..
.....are there certain things I should be asking him?

Jessica

Click here to visit my pregnancy journal and see how things are progressing
=)
*last updated 5/26/06


[Non-text portions of this message have been removed]

Yesterday I had a doctors appointment with my
oncologist and my tsh level is 65 and right for
treatment.  So on Tuesday I go back tot he hospital to
kill off my thyroid for good and start on meds.  I
told him my sleep is messed up.  I used to be a very
sound sleeper and only my girls would be who I would
listen for but now I wake up 2-3 times a night and
fall back to sleep and he did say it could happen and
my body does hurt but said after I start the meds for
my thyroid I should feel better and my sleep should
get better.  After I leave the hospital he will give
me prescription for the meds I need for my thyroid and
feel better.

So now I am having to find childcare for my girls for
2 days so dh can work.  Good thing I have a good
support system.

But he did say sleep can be affected at least and I
hate having my sleep messed up.  My girls are older
and sleep all night without waking up so I have gotten
so used to sleeping again that now to have it
disrupted is hard.

Dawn

Dance as if no-one were watching, Sing as if no-one were listening, Live each
day as if it were your last."

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we are Prayer Couple Coordinators for our local community.


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Hi,

I had total thyroidectomy in oct'05 and radoi active iodine treatment
in the following december.I had a very big tumor which was around 6cm
on the left and a 4cm one on the right.Luckily there was not much of
a spread and only one lymphnode came positive.Currently I am on
synthroid 112mcg and 6 tabs a week. My TSH was as low as .03 for the
last two blood test and it has slightly increased to .89 this week.
My problem is I am having pains on my finger joints and toes and
elbow and knee.I am not getting my periods too.I found on the net
that u may miss ur periods after RAI for upto one yr, has any one had
any experience like that? I took provera last time and got
periods,and once I had periods all the pains disappeared but I got
heavy swelling on my feet when I went on a long flight(which is a
side effect of provera)so I am scared to take that again and yes they
say it can cause cancer too.
Another fact is that when u have such low TSH is it right that it can
cause osteoporosis and joint pains.Now I am in a dilemma if they
increase my TSH it is not good from the thyroid stand point,and
taking this progestrone pills is also affecting me in different
ways.My obgyn said to put me on birhtcontroll pills, but that also
will create swelling in the leg,the swelling that i got has not gone
back fully yet.I already have swollen ankles for so many yrs now.
I am really concerned as to how to go abt it.I am trying to reduce
weight but not getting my periods is bloating me up further.
Let me know of ur suggestions
Thanks
wishing every one a nice time
sree.

I'm still learning what everything means. Don't know what a
parathyroid problem is. But from my understanding from my doc, if
you had any kind of hyperthyroidism going on, that could be the
cause for why it spread. That's the concern they have in my case,
and what has me(and them)worried. I have several nodules, the
largest of which is what they did the biopsy off of and had the
papillary cancer. It is 1.6 cm x 1.1 cm x 1.6 cm. I have a cyst that
is just a little bit smaller than it. From what I've read, cysts
usually aren't cancerous, though. Obviously, that means little in
this case, since everything I read up on said everything wrong with
me is usually not cancer, yet here I am.
I meet with the surgeon on the 12th to go over and schedule the
surgery. If my hyperthyroidism is under control, they should be
going through with it around the end of the month. Until then all I
can do is wait. I won't have any answers til after the surgery. I
think the waiting is the hardest part


--- In ThyroidDisease2@yahoogroups.com, "debbie03457"
<debbieford1@...> wrote:
>
> Hi Beth,
>
> I had a parathyroid problem, and my cancer was found in the ONE
lymph
> node they removed with the parathyroid tumor.
>
> I had a 2mm papiliary cancer tumor in my thyroid that metastasised
> immediately.  I had 20 lymph nodes removed when they removed my
thyroid
> and 5 or 6 had cancer in them.
>
> So I was treated rather aggressively, because in my case, for some
> unusual reason, it spread pretty quickly.
>
> As it is, I am fine now, and enjoying my son very much.  Thank
> goodness :)
>
> Everyone is different and even though we are tagged with the same
> condition, we are at different stages and require different
treatments.
>
> The one thing we can be certain of is once our thyroid is removed
> whatever condition we had before no longer exists.  And as far as
most
> doctor's go, once the cancer has been eradicated we are simply
people
> without a thyroid.  And this can be treated quite simply with
synthroid
> medication or a genetic equivelant, and regular blood tests to
maintain
> us at our correct levels.
>
> From what I have learned from people on this site, is that we all
> suffer from other symptoms, dry skin, brittle nails and hair, bad
> tempers, difficulty breathing, difficulty sleeping.  And from what
I
> have learned, all these conditions are dismissed by our doctors
as "not
> related to our thyroid".
>
> I just hope that you find a good doctor you can trust and who will
> belive you when you say "I just don't feel 'right'..." as mine did
a
> few weeks after I had already undergone loads of check ups.  He
> reassured me that nothing could possibly be wrong with my thyroid
> levels, but would do the tests again just to prove me wrong and
him
> right.  He contacted me the day after my blood was drawn and told
me to
> stop taking my thyroid meds for 3 days, my levels were totally out
of
> whack!
>
> I'm saying all this to stress that you know your body best.
Listen to
> it, and make your doctor's listen to you.  And you will be fine :)
>
> I wish you well in your research.
>
> Take care
>
> Debbie
>
>
>
> --- In ThyroidDisease2@yahoogroups.com, "Beth" <eholliday77@>
wrote:
> >
> > My name is Beth, I'm 29 and I live in Arizona. I was recently
> > diagnosed with hyperthyroidism and after having a fine needle
> > aspiration, the biopsy came back showing that I have papillary
> > carcinoma as well. From what I've been told by my doctor, it's a
rare
> > condition to have hyperthyroidism with thyroid cancer and that
it can
> > cause the cancer to be more aggressive. I can't find a whole lot
of
> > information on the internet regarding both conditions together,
and
> > was hoping maybe someone out there has experienced the same
thing.
> Any
> > information would be helpful, because to be quite up front it's
> pretty
> > scary to hear cancer and aggressive in the same sentence and be
> > uninformed...
> > Thanks,
> > Beth
> >
>

Hi Beth,

I had a parathyroid problem, and my cancer was found in the ONE lymph
node they removed with the parathyroid tumor.

I had a 2mm papiliary cancer tumor in my thyroid that metastasised
immediately.  I had 20 lymph nodes removed when they removed my thyroid
and 5 or 6 had cancer in them.

So I was treated rather aggressively, because in my case, for some
unusual reason, it spread pretty quickly.

As it is, I am fine now, and enjoying my son very much.  Thank
goodness :)

Everyone is different and even though we are tagged with the same
condition, we are at different stages and require different treatments.

The one thing we can be certain of is once our thyroid is removed
whatever condition we had before no longer exists.  And as far as most
doctor's go, once the cancer has been eradicated we are simply people
without a thyroid.  And this can be treated quite simply with synthroid
medication or a genetic equivelant, and regular blood tests to maintain
us at our correct levels.

From what I have learned from people on this site, is that we all
suffer from other symptoms, dry skin, brittle nails and hair, bad
tempers, difficulty breathing, difficulty sleeping.  And from what I
have learned, all these conditions are dismissed by our doctors as "not
related to our thyroid".

I just hope that you find a good doctor you can trust and who will
belive you when you say "I just don't feel 'right'..." as mine did a
few weeks after I had already undergone loads of check ups.  He
reassured me that nothing could possibly be wrong with my thyroid
levels, but would do the tests again just to prove me wrong and him
right.  He contacted me the day after my blood was drawn and told me to
stop taking my thyroid meds for 3 days, my levels were totally out of
whack!

I'm saying all this to stress that you know your body best.  Listen to
it, and make your doctor's listen to you.  And you will be fine :)

I wish you well in your research.

Take care

Debbie



--- In ThyroidDisease2@yahoogroups.com, "Beth" <eholliday77@...> wrote:
>
> My name is Beth, I'm 29 and I live in Arizona. I was recently
> diagnosed with hyperthyroidism and after having a fine needle
> aspiration, the biopsy came back showing that I have papillary
> carcinoma as well. From what I've been told by my doctor, it's a rare
> condition to have hyperthyroidism with thyroid cancer and that it can
> cause the cancer to be more aggressive. I can't find a whole lot of
> information on the internet regarding both conditions together, and
> was hoping maybe someone out there has experienced the same thing.
Any
> information would be helpful, because to be quite up front it's
pretty
> scary to hear cancer and aggressive in the same sentence and be
> uninformed...
> Thanks,
> Beth
>

no offense, but i'm kinda confused. I thought Hashimoto's was a
hypothyroid disease?
My hyperthyroidism is more related to Graves disease...

--- In ThyroidDisease2@yahoogroups.com, Dawn Dingeldein
<spiritsk@...> wrote:
>
> I am Dawn and am 35 yrs old and have 2 girls, Tori and
> Emily.  Tori is 9 yrs old and Emily is 5 yrs old.  I
> have been married to dh for 12 yrs now but have known
> him for 15+ now.
>
>
>
> I have had the surgery to remove most of my thyroid
> and had 2 surgeries.  The first was Mar 29th and my
> second surgery was Good Friday on April 14th.
>
> During my first surgery they found surgery and I
> was/am hyperthyroidism and hashimoto syndrome.
>
> I did not have the needle biopsy and I had my thyroid
> ultrasounded prior to my first.  I recently had a body
> scan and it showed my thryoid is still working and
> they want it killed. I see my oncologist on Thursday.
>
>
> The surgery said that my thyroid probably caused our
> hard time having children and it raised my pulse rate.
>  I was also hot al the time for about a year.
>
> My doctors are takign the approach that they want it
> taken care are now and not waiting months to do so.
> Iwas told that thyroid cancer is slow moving and from
> what I can find it is true.
>
> My mom has thyroid problems also so my is family
> history.  My mom  does not have cancer as far as I
> know but my mom hates going to the so she only goes to
> have her levels checked and what is necessary.
>
> God Bless
> Dawn
>
> --- Beth <eholliday77@...> wrote:
>
> > My name is Beth, I'm 29 and I live in Arizona. I was
> > recently
> > diagnosed with hyperthyroidism and after having a
> > fine needle
> > aspiration, the biopsy came back showing that I have
> > papillary
> > carcinoma as well. From what I've been told by my
> > doctor, it's a rare
> > condition to have hyperthyroidism with thyroid
> > cancer and that it can
> > cause the cancer to be more aggressive. I can't find
> > a whole lot of
> > information on the internet regarding both
> > conditions together, and
> > was hoping maybe someone out there has experienced
> > the same thing. Any
> > information would be helpful, because to be quite up
> > front it's pretty
> > scary to hear cancer and aggressive in the same
> > sentence and be
> > uninformed...
> > Thanks,
> > Beth
> >
> >
> >
> >
>
>
> Dance as if no-one were watching, Sing as if no-one were
listening, Live each day as if it were your last."
>
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