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#1766 From: "madabouteu" <mosasaur47@...>
Date: Thu Jun 2, 2005 11:39 pm
Subject: In denial
madabouteu
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Hi, I just joined in hopes of getting some advice.  My ladyfriend is in
complete denial that she has hyperthyroidism, despite abnormal blood
tests and having all the physical symptoms.  My doctor, looking across
the waitring room at her, was able to tell it!  To make matters worse,
she seems to have some trouble with thyroid - related psychosis in the
form of paranoia.  It has becvome very difficult to deal with her, yet
she flies into a rage if I even mention that she may have a thyroid
problem.  How do I convince her to see a doctor and get treatment,
especially with the paranoia?  Thanks in advance.

#1765 From: "tammynronald" <tammynronald@...>
Date: Tue May 24, 2005 6:28 am
Subject: Re: [ThyroidDisease] thyroid nodule/TSH value
tammynronald
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---Lisa, thank you. I printed some information about a TSH test. I plan
on taking that with me for the next visit. I hope to find out something
one way or the other.

tammy

#1764 From: lisa515ny@...
Date: Mon May 23, 2005 10:00 pm
Subject: Re: [ThyroidDisease] Son has Congenital Hypothyroidism and is struggling with...
lisa515ny
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In a message dated 05/12/2005 10:04:11 AM Eastern Daylight Time,
tammynronald@... writes:

I  suspect
we need  to see an endochronologist rather than a family  practitioner
at this point?




I would say you definitely need to see an endocrinologist and perhaps a
doctor that specializes in sports medicine. Increased musculature effects the
metabolism by speeding it up, as does thyroid medication. While you may be
seeing syptoms of what you suspect to be hypothyroidism, you could actually be
seeing hyperthyroidism symptoms because they are very similar. They both
eventually lead to exhaustion, fuzzy brain, heart palps, etc....I hope you find 
a
good doctor that can help you figure out what's going on.

Lisa C


[Non-text portions of this message have been removed]

#1763 From: lisa515ny@...
Date: Mon May 23, 2005 4:00 pm
Subject: Re: [ThyroidDisease] thyroid nodule/TSH value
lisa515ny
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That's great news Tammy!!! At least she's concerned. Just keep being
proactive and keeping track of everything. I'm hoping you can get some answers 
soon.

Lisa C


[Non-text portions of this message have been removed]

#1762 From: "Nicole Tucker" <nicole.tucker@...>
Date: Sat May 21, 2005 5:41 pm
Subject: new to group and where I am at right now
lucktuck2003
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Hi Group,
   I am new and just wanted to share an update I posted on another
board:
   I went and saw my Endo yesterday.  I wasn't due to see her till a
week from next Tuesday but had had a bit of a flare up the past two
weeks so they had me come in earlier when they got a cancellation.
Two weeks ago I started having rapid heart rate, more agitation, more
labored breathing, more insomnia, shaking hands again etc. and felt
really bad so I called the office.  At first they had me take the
Betablockers I already had for the symptoms, which I just took for
the weekend since I don't like how they make me feel and then they
had me do the Thyroid labs again even though I had just had them done
two weeks before.
    Luckily, my labs show me still in the normal range, which has just
started to happen in the past month on PTU, after having been
diagnosed with Hyperthroidism in Feb.  They also ran a liver enzyme
and blood count test, which I appreciated, to make sure sure I wasn't
having a bad reaction to the meds.
    I had my holistic practioner do two things to try and help.  He
tried to clear an "allergic" reaction to the meds that he was picking
up from Kinesiology testing and tried to rebalance my hormone
levels.  My symptoms get worse at certain times of the month.
    I was pleased with my endo appointment.  She explained that
these "flare ups" could be due to two reasons.  One that even though
the blood is showing fine, my tissues may not be where my blood is
yet.  Meaning it is going to take longer for the rest of my body to
feel better and have all the excess thyroid leave my system.  She
also said that the heart had memory and since it has been reactive
for over a year since my pregnancy, it may just take longer for it to
stop responding in this way.  That all made me feel better and having
her tell me things are looking good and should hopefully be getting
better and better.  She reminded me that my body has been through so
much with my pregnancy and then a year postpartum of this building
terrible Hyper state - oh what a year!  And that it takes time for
everything to get back to normal.  She also encouraged me to rest
more and take better care of myself.  I have been staying up way too
late and need to lower my stress level, eat better and exercise
more!  I am feeling better today after going to bed earlier and
having a massage/cranosacrial treatment last night.
   I was also so happy because I have been wanting to get her to order
a TSI (antibody test) in addition to the T3, T4 and TSH she has been
ordering monthly and she agreed this time - yippee!!!  It was a funny
reason she agreed.  It wasn't because I wanted it to help me see if
this is in fact Graves or not (she is convinced it is/I am still
hoping it is more of a postpartum thyroid problem and not Graves) but
because I said that maybe down the line we want to have more children
she wanted to order it.  She said that I should wait at least 6
months before getting pregnant again and that if my TSI was high she
would more likely want to give me PTU during a pregnancy but if the
TSI was low I could more likely wean off the PTU prior to getting
pregnant.  A lot of autoimmune problems do go into remission during
pregnancies and it is alright to take PTU at low doses during
pregnancy and breastfeeding.
   She also said that if my TSH gets pulled up from the low normal
range to more in the middle over the next few months I could cut my
meds in half again and maybe over more time come off of them and see
if I go into "remission".  I sure hope that is what happens!  She
said that being under 40 and not smoking puts me in a better category
for remission from Graves.
    I did share with her that I had read that in Japan and Europe it
is standard to test TSI and that having the TSI levels drop is a
better indicator than just testing TSH as to whether one has a better
chance at remission.  She wasn't sure about that but (it isn't done
in offices here) but it made sense to me.
   Anyways, just wanted to share as I am excited and more hopeful
(don't want to get my hopes up too much) and I hope that this info
might be helpful to someone else.  I feel lucky that I did end up
with an endo that is nice, takes a lot of time with me and listens to
me.
Nicole

#1761 From: "tammynronald" <tammynronald@...>
Date: Fri May 20, 2005 7:47 am
Subject: Re: [ThyroidDisease] thyroid nodule/TSH value
tammynronald
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---> Yesterday I saw the new doctor who is an endocrinologist. She
thinks I might have Hashi, but she said that at this time she was
concerned about the nodule. She said that only 1 out 10,000 German
women will a problem, but that American women have higher odds that
there is a problem. She performed another ultra sound and then a
biopsy. I couldn't believe that I didn't need four or five
appointments first. That was how it went with the first doctor. She
didn't do any new labs though. She thought the ones that were
performed on Mar. 25 were current enough.

My husband wasn't able to go with me and once again my brain was on
standby. I go back on the 30th and I'm preparing a list of questions
to take with me. I printed the article you recommended and I will
take that with me also. I thought about it once I came home and it
seems as if she should have done a test for Hashi's. I know that I am
producing antibodies that the lab sheet says is high. So, I'm going
to ask that a test be done to find out why.

The American doctors were stating that the nodule was halfway up my
neck on the right outer edge and she showed me exactly where it
was,which is in the middle of the right side of the thyroid. And she
told me that they were wrong when they said that it was a cyst that
needed to be drained. She said that it is solid. She also found
another one on the left side that is very small (5mm). Now I'm
wondering if I will keep getting more as time goes by. So for now,
I'm making a list of questions and waiting for the next appointment.
She did mention that the only way to be 100% sure that it is not
cancer is to have a removal of the thyroid gland, but I think that is
a bit extreme for right now.

Thank you for the article and the advice. There aren't too many
support groups over here. The military does a medical screening
before they allow dependents to go overseas because so many of the
bases are in remote areas without the proper medical facilities.

tammy

#1760 From: lisa515ny@...
Date: Thu May 19, 2005 3:14 pm
Subject: Re: [ThyroidDisease] thyroid nodule/TSH value
lisa515ny
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In a message dated 05/11/2005 3:17:05 AM Eastern Daylight Time,
tammynronald@... writes:

I have  done some research, but my
brain is running on empty so I'm hoping that  someone out there can
give me some type of advice. It would really be  appreciated!






You sound like the poster girl for hypothyroid. With your brain running
slower this must be so difficult to deal with. First of all, I suggest you buy a
journal and write down all your thoughts and any info you find out in the
journal, so that 1) you don't forget what you were thinking about and planning
to do, and 2) you have a central place to put things so you don't forget where
you put soemthing. I remember that feeling all too well.....no wonder you
find  yourself crying!!!! You feel like shit and no one will help you!!!!!

I sounds to me like you are going to have to do all the work, and then go  in
and TELL the docs what you need. Drive them nuts-keep making appointments
until someone will help you. You have to be your own advocate. Are there any
support groups thru a local hospital where you can at least find out more info?
Can you contact the German Endocrine Society for help? How about contacting
the  American Thyroid Association and asking for guidance from them? I found
the  following article at
_http://www.mercola.com/article/hypothyroid/diagnosis_comp.htm_
(http://www.mercola.com/article/hypothyroid/diagnosis_comp.htm)

You might want to print it out and bring it with you to your next
appointment. Please don't let these doctors tell YOU how you are feeling. You 
are sick
and you know yourself better than anyone else. Have you seen an
endocrinologist or just a PC? You don't just get a goiter because nothing is 
wrong!!! It
is because your thyroid gland is overproducing to compensate. The  valid and
normal treatment is to give you thyroid replacement to shrink the  goiter. Why
isn't this being done??!!!! It would kill 2 birds with one  stone-shrink the
nodule and hopefully make you feel better. I would print out  information on the
treatment of nodules for your doctor.
I am so frustrated for you.

Lisa C


Optimum Diagnosis and Treatment of Hypothyroidism With Free T3 and  Free T4
Levels

Diagnosis of Hypothyroidism
The big  myth that persists regarding thyroid diagnosis is that an elevated
TSH  level is always required before a diagnosis of hypothyroidism can be made.
  Normally, the pituitary gland will secrete TSH in response to a low  thyroid
hormone level. Thus an elevated TSH level would typically suggest  an
underactive thyroid.
The traditional tests of thyroid function, the T4  (or total T4), T3-uptake,
FTI, 'T7', total T3, and T3-by-RIA tests should  be abandoned because they are
unreliable as gauges of thyroid function.  The most common traditional way to
diagnose hypothyroidism is with a TSH  that is elevated beyond the normal
reference range. For most labs, this is  about 4.0 to 4.5. This is thought to
reflect the pituitary's sensing of  inadequate thyroid hormone levels in the
blood which would be consistent  with hypothyroidism. There is no question that
this will diagnose  hypothyroidism, but it is far too insensitive a measure, and
the vast  majority of patients who have hypothyroidism will be missed.
The clinical symptoms of hypothyroidism are many.  Perhaps the most common is
fatigue. The skin can become dry, cold, rough  and scaly. The hair becomes
coarse, brittle and grows slowly or may fall  out excessively. There is a
sensitivity to cold with feelings of being  chilly in rooms of normal
temperature.
It is difficult for a person to  sweat and their perspiration may be decreased
or even absent even during  heavy exercise and hot weather. Constipation that
is resistant to  magnesium supplementation and other mild laxatives is also
another common  symptom. Difficulty in losing weight despite rigid adherence to
a low  grain diet seems to be a common finding especially in women. Depression
  and muscle weakness are other common symptoms.
Most patients continue to have classic hypothyroid  symptoms because
excessive reliance is placed on the TSH. This test is a  highly accurate measure
of
TSH but not of the height of thyroid hormone  levels.
The basic problem that traditional medicine has with  diagnosing
hypothyroidism is the so called "normal range" of TSH is far  too high: Many
patients with
TSH's of greater than 1.5 (not 4.5) have  classic symptoms and signs of
hypothyroidism.
The alternative to monitor thyroid disease is to use  the Free T3 and Free T4
and TSH levels and interpret them with new  reference ranges. If one measures
the Free T3 and Free T4 levels the only  accurate measure of the actual
active thyroid hormone levels in the blood,  as well as the TSH, one will find
out
how often a low normal TSH does NOT  exclude hypothyroidism. It is relatively
common to find the Free T4 and  Free T3 hormone levels below normal when TSH
is in its normal range, even  in the low end of its normal range. When patients
with these lab values  are treated, one typically finds tremendous
improvement in the patient,  and a reduction of the classic hypothyroid
symptoms.
There are a significant number of individuals who  have a TSH below 1.5 but
their Free T3 (and possibly the Free T4 as well)  will be below normal. These
are cases of secondary or tertiary  hypothyroidism, so, TSH alone is not an
accurate test of all forms of  hypothyroidism, only primary hypothyroidism.
This revised method of diagnosing and treating  hypothyroidism seems superior
to the temperature regulation method  promoted by Broda Barnes and many
natural medicine physicians.
Treatment of hypothyroidism
After proper  diagnosis of hypothyroidism, the next issue is with what
substance to  treat.. The traditional approach is to use Synthroid/
Levoxyl/Levothroid  (levothyroxine) which is only T4. Natural medicine doctors
tend to use
Armour thyroid which is a mixture of mono and di-iodothryonine and T3 and  T4,
the entire range of thyroid hormones.
If the Free T3 level is significantly lower than the  Free T4 level, it is
next to useless to treat with Synthroid/  Levoxyl/Levothroid (T4) only
replacements. If the patient could not muster  sufficient T3 from their gland
(which
produces some T3 directly), then  they are certainly not going to convert enough
T3 from T4 only.  Traditional medicine assumes that preparations like
Synthroid which are T4  only converts peripherally in the body to T3 in fairly
standard amounts  and at fairly standard rates. Unfortunately, clinical
experience
shows  this is not true for the majority of patients. Consistent measuring of
both free T3 and free T4 blood levels in hypothyroid patients who are on  T4
only therapy will very rapidly dispel this myth. A certain percentage  of
hypothyroid patients do convert enough T4 to T3 at a sufficient rate  for T4
treatment to be adequate as a source of T3; but a substantial  proportion of
patients require some combination of both exogenous T3 and  T4.
Once on hormone replacement, the TSH remains useful  until it goes BELOW 0.4.
Then one has optimized thyroid function by the  TSH yardstick; it then
remains to optimize thyroid function by the  yardstick of the accurate measures
of
the 2 thyroid hormones, the Free T4  and Free T3 levels.
So one should use a combination of T4 and T3 which  compensates for the
inability to convert T4 to T3. This is most frequently  done with Armour
thyroid.
However, Cytomel, which is T3 only, can be used  in combination with one of the
T4 only preparations. It is important to  recognize that T3 should always be
prescribed twice daily due to its  shorter half life. This is typically after
breakfast AND supper for  compliance reasons.
Taking the dose at these times overcomes traditional  medicine's major
objection and resistance to using natural thyroid  preparations - its
variability in
its blood levels. Armour thyroid is  desiccated thyroid and has both T3 and
T4. Most doctors using Armour  thyroid are not aware that Armour thyroid should
be used twice daily and  NOT once a day. The major reason is that the T3
component has such a short  half life and needs to be taken twice daily to
achieve
consistent blood  levels.
Once or twice daily dosing one can then optimize  both the T4 and T3 levels,
with whatever thyroid preparation is required.  This is not possible in most
hypothyroid patients with T4 only  preparations. It is important to use a
preparation with T3 because T3 does  90% of the work of the thyroid in the body.
The only exception to pursue  optimization of the T3 level without using Armour
thyroid is in severe  acute cardio-pulmonary conditions, when the metabolic
slowing effect of a  low FT3 level can actually be life-saving. However, the
vast majority of  hypothyroid patients do not have acute cardio-pulmonary
conditions, such  as congestive heart failure.
The most common starting dose for patients with  hypothyroidism is Armour
thyroid, 90 mg which is cut in half with a razor  blade and half is taken after
breakfast and the other half after dinner.  Taking it after meals also helps to
reduce volatility of the blood-level  of T3. If the patient has any problem
breaking or cutting the pill, they  should purchase a pill-cutter at the
pharmacy. The TSH, Free T3 and Free  T4 are then repeated in one month and the
dose
is adjusted.
In order to optimize the hormone replacement, the  Free T3 and Free T4 should
be above the median but below the upper end of  the laboratory normal
reference range. The goal for healthy young adults  would be to have numbers
close to
the upper part of the range, and for  cardiace and/or elderly patients, the
numbers should be in the middle of  its range. The Free T3 and Free T4 levels
should be checked every month  and the hormone therapy readjusted until the FT3
and FT4 levels are in the  therapeutic range described. A small number of
large, overweight,  thyroid-resistant women may need 6-8 grains of Armour
Thyroid
or the  equivalent of thyroxine per day (counting 0.1mg of T4 as 1 grain of
Armour  Thyroid).
If the patient is currently taking Synthroid  (thyroxine), their Free T4
level is usually at or above the high end of  its normal range and the Free T3
level is below. In this situation, or if  a patient is allergic to Armour
thyroid
or is resistant to taking Armour  thyroid, one may then add 5-12.5 mcg
Cytomel (pure-T3) after breakfast and  supper daily, rather than Armour Thyroid
or
Thyrolar (synthetic T4/T3  combo). It is important to remember that if the FT4
is being raised by a  still-high TSH, the FT4 level will drop some when the
TSH drops when  adequate T3 is added to the hormone replacement.
Patients need to be warned about the overdosage  symptoms which are
frequently only temporary during the adaptation stage.  The symptoms may
include:
palpitations, nervousness, feeling hot and  sweaty, rapid weight-loss, fine
tremor,
and clammy skin. There is one  exception to the 1.5 level of TSH as the
cutoff for treatment. Overweight  patients who have classic symptoms of
hypothyroidism and have made heroic  unsuccessful attempts to lose weight may
benefit
from thyroid hormone  replacement even if their TSH slightly below 1.5 and FT4
and FT3 are not  below their normal ranges
Patients who are already on once daily Armour  thyroid should split their
doses immediately and take half after breakfast  and half after dinner. Since
the
only change will be in the FT3 level,  which has a short half-life, the serum
FT4 and FT3 levels (and TSH, if  indicated) can be measured 48-72 hrs after
the splitting of the doses if  the patient had been on the hormone for 4-6
weeks before the splitting of  the doses. This is because the T4 fraction is the
one that takes a number  of weeks to build up to its steady-state serum level.
_Click  here to read my interview with Mary Shomon_
(http://thyroid.about.com/health/thyroid/library/weekly/aa062600a.htm) , the
Thyroid guide  from
About.com.


[Non-text portions of this message have been removed]

#1759 From: "Kate" <fraserk@...>
Date: Wed May 18, 2005 5:57 pm
Subject: Re: [ThyroidDisease] Digest Number 618
katefraser
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That's great news.  Glad to hear the wellbutrin is kicking in.
I think it must be spring.  I am really running like mad with
gardening...and just enjoying being outside.  And if I'm not outside in the
garden, I'm outside on our local river, paddling or teaching.  But I find I
have down days too and those are the ones where I can't even get out of bed.
I think probably I'm overdoing it when I feel good.
So I'm guessing everyone is about the same...


----- Original Message -----
From: <ThyroidDisease2@yahoogroups.com>
To: <ThyroidDisease2@yahoogroups.com>
Sent: Wednesday, May 18, 2005 8:25 AM
Subject: [ThyroidDisease] Digest Number 618


>
> There is 1 message in this issue.
>
> Topics in this digest:
>
>       1. HI OUT THERE.....................
>            From: "Kimberly" <frkim2u66@...>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
> Message: 1
>    Date: Tue, 17 May 2005 23:23:00 -0000
>    From: "Kimberly" <frkim2u66@...>
> Subject: HI OUT THERE.....................
>
> WHERE, OH WHERE IS EVERYONE? I GUESS EVERYONE MUST BE DOING FINE. THE
> WELLBUTRIN FINALLY KICKED IN, THANK THE LORD FOR THAT. I'M STILL
> EXPERINCING SOME SYMPTOMS, BUT NOW I HAVE ENERGY TO GET UP OFF MY
> ROCKER AND GET SOME THINGS DONE AROUND HERE.IT'S BEEN A LONG TIME.
>
>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
>
>
> ------------------------------------------------------------------------
> Yahoo! Groups Links
>
>
>
>
> ------------------------------------------------------------------------
>
>
>
>
>
> --
> No virus found in this incoming message.
> Checked by AVG Anti-Virus.
> Version: 7.0.322 / Virus Database: 266.11.12 - Release Date: 17/05/2005
>
>

#1758 From: "Kimberly" <frkim2u66@...>
Date: Tue May 17, 2005 11:23 pm
Subject: HI OUT THERE.....................
frkim2u66
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WHERE, OH WHERE IS EVERYONE? I GUESS EVERYONE MUST BE DOING FINE. THE
WELLBUTRIN FINALLY KICKED IN, THANK THE LORD FOR THAT. I'M STILL
EXPERINCING SOME SYMPTOMS, BUT NOW I HAVE ENERGY TO GET UP OFF MY
ROCKER AND GET SOME THINGS DONE AROUND HERE.IT'S BEEN A LONG TIME.

#1757 From: lisa515ny@...
Date: Fri May 13, 2005 10:41 pm
Subject: Re: [ThyroidDisease] no way............................
lisa515ny
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In a message dated 05/13/2005 2:19:24 PM Eastern Daylight Time,
patches_lynn@... writes:

I am new  to the site and I am not sure if this goes
out to everyone but I am trying  to find someone who
knows anything about Thyroid Resistance Syndrom.
My  son is eight and the doctors can not tell how
things will be for him when  he is older so I was
hoping to find someone who would know.
Thanks for  your time.




I'm sorry I can't help you. I hope that you are able to find the  information
you need to help your son.

Lisa C


[Non-text portions of this message have been removed]

#1756 From: Patches Lynn Jones <patches_lynn@...>
Date: Fri May 13, 2005 6:17 pm
Subject: Re: [ThyroidDisease] no way............................
patches_lynn
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I am new to the site and I am not sure if this goes
out to everyone but I am trying to find someone who
knows anything about Thyroid Resistance Syndrom.
My son is eight and the doctors can not tell how
things will be for him when he is older so I was
hoping to find someone who would know.
Thanks for your time.

--- dee <womanly20032003@...> wrote:

> Hello Kim,
>
> This sounds alot like Fibromyalgia.  It will be
> interesting to hear what the diagnosis will be.
>
> Just putting my two cents in.  Hope you find out
> what it is soon.
>
> Dee
>
>
> kim finch <frkim2u66@...> wrote:
> Hello,
>   He doesn't know, that's why he is sending me to a
> specialist. My symptoms are like electrical shocks
> thru my left leg and arm along with tingling and
> aching in my muscles some times I feel heat in
> spots. I told him about the stiffness in my upper
> back, mainly my shoulders. It gets so stiff I can
> hardly bare it.I  thought it was due to my thyroid,
> he said no that's not what it could be from.  I also
> can not relax, I notice when I am not moving, my
> whole body is tense, I tell myself to relax, next
> thing I know is I am all tensed up again. Trying to
> get to sleep at night is hard because I can't relax.
> Plus joint pain, I just about threw up today when I
> tried to straighten my leg out, it felt like someone
> stuck a hot poker in my knee. So life for me is a
> living hell right now. I know things could be worse.
> I am 38 but feel like 80.
>
>
>
>
> THE BEST MIRROR IS A GOOD FRIEND
>
>
>
> ---------------------------------
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#1755 From: beck3g1b@...
Date: Fri May 13, 2005 9:37 am
Subject: Re: [ThyroidDisease] Son has Congenital Hypothyroidism and is struggling with...
nikkismom01
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Dear Mom:
My daughter was diagnosed with Hashimoto's two years ago at the age of 9, for
about a year she had been sleeping almost all day every day with no apparent
diagnosis. I finally got tired of hearing nothing from our general
practitioner and took her to a new general, that doctor was familiar with
thyroid disease
and sent us on to an Endocrinologist. That soon became a life altering visit
for us all!!!! They do nothing but see these people day in and day out and the
information you can gather from them is a life saver.....in short I guess Im
just saying .....please get him to an Endo as soon as possible you will
probably be overwhelmed by the results!
Nikki's MomEndocrinologist


[Non-text portions of this message have been removed]

#1754 From: tammy thompson <tammynronald@...>
Date: Thu May 12, 2005 2:03 pm
Subject: Re: [ThyroidDisease] Son has Congenital Hypothyroidism and is struggling with sports
tammynronald
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Hi, I'm not sure if this will help you or not. I was surfing the net today and
thought about your e-mail. I typed excercise and thyroid and hypothyroidism in
and quite a few sites came up. If no one out there can help you then you may
want to type these words into your browser. I use google.com a lot. You can use
the advanced features and edit out the words you don't want. I wish I could help
more, but I'm new to this stuff myself. Hopefully someone out there can help
you.
tammy

ralifarm <ralifarm@...> wrote:
Hello,

I am new to the list, my name is Melissa. My 19 yr old son has
congenital hypothyroidism. His hormone therapy has been very
successful in the past but this year he's had some real struggles and
I am not sure how to procede.

He is very active, plays 3 high school sports a year and participates
in a weight training program.  This year the weight training got very
intense and so did his participation in football and wrestling. I
noticed a pattern and suspect he is using more thyroid hormone than
he is getting from his meds.  I can see this now that I look back on
the year but it was so gradual we didn't notice it until it was too
late to have him tested. By the time I put 2 and 2 together he'd
already had a week off and was pretty much on his way back to his
normal self. Wait another week for an appointment and he's fine!

Looking back I can see where about 2/3 through a season he starts
slowing down rather than building his endurance. He gets very tired,
seems to slow down and get a little brain fogged.  He never had this
problem until he started the heavy lifting. He hit a major plateau
and his performance bottomed out in wrestling and after just one week
off he was feeling better. 2 weeks off and his bench lifting max went
up 40 pounds all at once. 3 weeks off and his squat max went up 95
pounds!  It looks to me like his body was needing to grow and not
having the thryroid hormone to support it.

Do any of you have any information or experience with this type of
situation? I have been scouring the internet and can find nothing. My
son will be heading off to college next year and will be playing
football which includes a much more intense program and more weight
training.

I am concerned about his health and would like to make sure he gets
the propper hormone therapy to support his body adequately. I suspect
we need  to see an endochronologist rather than a family practitioner
at this point?

Thanks for reading this I know it was a bit long.

Melissa




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#1753 From: "ralifarm" <ralifarm@...>
Date: Thu May 12, 2005 3:11 am
Subject: Son has Congenital Hypothyroidism and is struggling with sports
ralifarm
Offline Offline
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Hello,

I am new to the list, my name is Melissa. My 19 yr old son has
congenital hypothyroidism. His hormone therapy has been very
successful in the past but this year he's had some real struggles and
I am not sure how to procede.

He is very active, plays 3 high school sports a year and participates
in a weight training program.  This year the weight training got very
intense and so did his participation in football and wrestling. I
noticed a pattern and suspect he is using more thyroid hormone than
he is getting from his meds.  I can see this now that I look back on
the year but it was so gradual we didn't notice it until it was too
late to have him tested. By the time I put 2 and 2 together he'd
already had a week off and was pretty much on his way back to his
normal self. Wait another week for an appointment and he's fine!

Looking back I can see where about 2/3 through a season he starts
slowing down rather than building his endurance. He gets very tired,
seems to slow down and get a little brain fogged.  He never had this
problem until he started the heavy lifting. He hit a major plateau
and his performance bottomed out in wrestling and after just one week
off he was feeling better. 2 weeks off and his bench lifting max went
up 40 pounds all at once. 3 weeks off and his squat max went up 95
pounds!  It looks to me like his body was needing to grow and not
having the thryroid hormone to support it.

Do any of you have any information or experience with this type of
situation? I have been scouring the internet and can find nothing. My
son will be heading off to college next year and will be playing
football which includes a much more intense program and more weight
training.

I am concerned about his health and would like to make sure he gets
the propper hormone therapy to support his body adequately. I suspect
we need  to see an endochronologist rather than a family practitioner
at this point?

Thanks for reading this I know it was a bit long.

Melissa

#1752 From: "Kimberly" <frkim2u66@...>
Date: Thu May 12, 2005 2:39 am
Subject: hello out there.................
frkim2u66
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Well, I went to the endo, she lowered my synthroid from 250 to 225, I
guess now my thyroid is running on the high side, I go back in 3
months. I hope this time I can get to a normal level and stay that
way. I am still waiting to go to the neurologist to get a scan of my
brain, this I don't fully understand, my primary doc is sending me
because he thinks I have another autoimune desease, I don't really
understand what a neurologist can do? Can anyone answere that? I am
feeling much better with what ever I have right now, I am only
experiencing the buzzing sensation thru out my body and the ringing
in
my ears also I can't sleep, I know having hyperthroid can cause the
sleep problems but I was was not able to sleep when it was low. My
brain is still wacked out, but no more muscle pain, Thank GOD. So we
will see on the 24th of this month. How is everyone else out there?

I went shopping today and "OH MY GOSH" I saw the back of me in the
mirror and was totally disgusted with what I saw, I can't believe how
huge I am. I"m Starting kick boxing tomorrow., I did kick boxing for 3
years, that was the best shape I have ever been in.

#1751 From: "tammynronald" <tammynronald@...>
Date: Wed May 11, 2005 7:15 am
Subject: thyroid nodule/TSH value
tammynronald
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In Oct. a nodule (2.5 cm by 1.6 cm) was found on my thyroid. Since
that time I have had an FNA in Feb.(inconclusive) and several other
test performed. My husband is in the military and we are stationed in
Germany. The doctors that I have seen are not very helpful. The
American doctors don't seem to have the knowledge and the German
doctors don't seem to have the time. Recently, my current American
doctor ran some more test and for once I was able to get a print out
of the results. My TSH is .79 (it was .44 in Nov.),FT4 is 1.00, T3
Free is 3.35, ANTIMIC AB is <1:100, Thyroglobul AB 1:320, Cholesterol
is 192, Triglyceride is 204 (it was 110 in Nov.). My doctor says that
everything is fine (just lose some weight), but I feel terrible. My
weight is climbing by the hour, my elbows are constantly swollen with
the pain extending down to my hands, the bones and muscles in my legs
ache, my neck is sore in the front and rear, I feel tired all the
time, find myself crying for no reason what so ever and take naps
that last up to 4 hours at a time. To top it off I feel as if I have
the flu or a really bad hangover and these are only a portion of my
symptoms. My husband and I are pushing to find a German doctor that
will answer our questions, find out what the problem is, and to do
another FNA. Our problem is that the American doctors are saying that
I'm fine. He told me during my visit about the antibodies test, yet
said that he wasn't sure what the results meant except that I have
some type of thyroid problem. He then went on to tell me he would
research this and that if a person is producing antibodies there is
no chance of having thyroid cancer. I have done some research, but my
brain is running on empty so I'm hoping that someone out there can
give me some type of advice. It would really be appreciated!

#1750 From: "jpetty1995" <jpetty1995@...>
Date: Tue May 3, 2005 5:17 pm
Subject: Hello?
jpetty1995
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Is anyone here?  Haven't seen any posts since Friday.

Good News!  I think I may have found a good doctor who will be able to
help.  I was diagnosed by an endo who was very unhelpful in offering
info and she had a bad bed side manner.

Anyway, a friend of a friend who has Hashi's was using a family doctor
who helped her tremendously.  I was able to get an appt. for next Wed
and I'm hoping all goes well.

Also, I have started walking every other day and eating a bit
healthier...thanks to Lisa :-) It's helping with depression, which is
a big step.  Still achy, tired, etc but hoping my new doc will get me
on a level of thyroid med that will help.

Keep your chins up...there is hope!
Judy

#1749 From: lisa515ny@...
Date: Fri Apr 29, 2005 2:28 pm
Subject: Re: [ThyroidDisease] To Lisa515
lisa515ny
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In a message dated 04/29/2005 2:08:22 PM Eastern Daylight Time,
jpetty1995@... writes:

Ending  the day with sex would be great for a  change...lol






From your lips to God's ear!!!!!!!!!!! LOL!!!!!!!!

Lisa C


[Non-text portions of this message have been removed]

#1748 From: "jpetty1995" <jpetty1995@...>
Date: Fri Apr 29, 2005 6:02 pm
Subject: To Lisa515
jpetty1995
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Thank you, thank you, thank you for your post!!

I think this is the best common sense advise I've gotten since this
all started.

I started out the day right eating...applesauce, eggs & 1 wholegrain
pc of toast for breakfast & salad and iced tea with artificial
sweetner from wendy's for lunch.  Let's see if I can make it a "gold
star day"!  Ending the day with sex would be great for a change...lol

Judy

#1747 From: lisa515ny@...
Date: Fri Apr 29, 2005 11:30 am
Subject: Re: [ThyroidDisease] Newbie
lisa515ny
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In a message dated 04/29/2005 11:09:19 AM Eastern Daylight Time,
jpetty1995@... writes:

Thinking  about cutting back my hours at work.  It feels like the more
I do, the  worse I feel...tired, achy, headache, etc.  Has anyone  else
experienced this?

Does diet and exercise help at all?  In  the process of finding a new
doc.  Can't get much info from my  endo.






Judy,

Welcome to the group. Sorry to hear about your Dx, but I'm glad you found
your way here for support.

As far as the diet exercise question........YES!!!!!! YES!!!!!! YES!!!!!
Exercise releases endorphins and ups the body's production of seratonin (the
"feel good" chemical in the brain). BTW, sex does this too!!!!! Hope I don't
offend, but the "feel good" effects of sex mimic those of exercise (both last
for hours afterward), and shouldn't be discounted. LOL.

Cutting out as many sugars and carbs to your diet would be very helpful  too.
Because of the exhaustion that comes with our problems, our bodies tend to
crave sugar and carbs for thier effect of giving us a big burst of energy.
Unfortunately, when we come crashing down, our bodies will crave the sugar/carbs
again, and it leads to a vicious cycle of highs and lows that can worsen the
depression so many of us are prone to. Not to mention that sugars and carbs
make  the body more sluggish to begin with. Simply put, sugar/carbs=bad.
Protien/veggies/fruits=good. Try to eat a much higher percentage of the good 
than
the bad, and you'll feel better.

It's also important to note that sleep is our best friend. Even in normal
people, studies have shown that those who tend to sleep less than 8 hours a
night, are much heavier than those who sleep 8 or more hours a night. The lower
you go under the 8 hour mark, the heavier these people tend to be. It all goes
  back to the sugar/carb thing. When people are tired, they crave the
sugar/carbs  for the energy. When you are well rested, you do not suffer those
cravings as  much.

I stopped working before I was Dx because I was so tired, and depressed. I
couldn't handle it anymore. I didn't know what was wrong with me. If you are
able to, cutting down your hours until you are able to get a handle on feeling
better might not be a bad option, since stress in any form can cause a
flare-up  in our symptoms (SEE!!! Another great reason to exercise since it
reduces
the  bodies stress chemicals).

To me, the bottom line is that I consider exercise a medication just like  my
Synthroid that I MUST take on a daily basis in order to feel good. Without
it, I tend to spiral into depression, weight gain, and lethargy.

I hope that my babbling on has at least given you some ideas that you can
use to make your life a little easier. No, this isn't fun, but in order to make
the best of it, you need to do what works for you. The best advice I can give
  anyone newly diagnosed is to not look at how you used to be before getting
sick  as "normal, but to make a new normal for yourself.

Lisa C


[Non-text portions of this message have been removed]

#1746 From: "jpetty1995" <jpetty1995@...>
Date: Fri Apr 29, 2005 2:58 pm
Subject: Newbie
jpetty1995
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Hi all...new to the group, but also new to Hashi (diagnosed a month
ago).  All I can say is this no fun.

Thinking about cutting back my hours at work.  It feels like the more
I do, the worse I feel...tired, achy, headache, etc.  Has anyone else
experienced this?

Does diet and exercise help at all?  In the process of finding a new
doc.  Can't get much info from my endo.

Judy

#1745 From: "namaste1031" <namaste1031@...>
Date: Tue Apr 26, 2005 4:19 pm
Subject: Re: [ThyroidDisease] Hashimoto's disease
namaste1031
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I have been on these particular meds for several years - 5-6.  I
still feel like I am not at my peak. This is all very frustrating.
Thanks for the warm welcome!.

--- In ThyroidDisease2@yahoogroups.com, kim finch <frkim2u66@y...>
wrote:
>
>
> Hi,
>
> I have never heard of the meds your on either. Some of your
symptoms will subside, I know for me I never got over being tired.
The aching it comes and goes. How long have you been on your meds?
>
> Welcome to the group, here you find people who totally understands
what you are experiencing, because you'll come to find your family
and friends just don't understand how crappy you feel. Like having no
energy for anything. I know I just don't want to go out any where
unless I have to.
>
>
>
> THE BEST MIRROR IS A GOOD FRIEND
>
>
> __________________________________________________
> Do You Yahoo!?
> Tired of spam?  Yahoo! Mail has the best spam protection around
> http://mail.yahoo.com
>
> [Non-text portions of this message have been removed]

#1744 From: "namaste1031" <namaste1031@...>
Date: Tue Apr 26, 2005 4:17 pm
Subject: Re: [ThyroidDisease] Hashimoto's disease
namaste1031
Offline Offline
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I had been exercising up until about the last six months (cardio), I
have plantar faciatis and a sore back.  I still teach and do yoga,
but sometimes walking hurts.  I can't believe that it doesn't get
better than this. *sigh*.

--- In ThyroidDisease2@yahoogroups.com, leah ackerman
<howdyduty2@y...> wrote:
> Hi,
> My doctor told me the same thing! They found mine when I went into
the hospital for a racing heart. I have not heard of unithyroid...I
have heard that kelp sometimes helps. I am still achie though...I
have not felt like me for some time. The best thing is to exercise, I
don't do that though...lol
> Leah
>
> namaste1031 <namaste1031@y...> wrote:
>
> I was just diagnosed, although I know i have been hypo for over 10
> years.  Where do I start? Anyone use natural meds? I am on
unithyroid
> 0.088.  Does anyone feel better? I am tired, achie, and have a lot
of
> the symptoms still even though my doctor tells me thyroid labs are
> *perfect*.
>
>
>
>
>
> ---------------------------------
> Yahoo! Groups Links
>
>    To visit your group on the web, go to:
> http://groups.yahoo.com/group/ThyroidDisease2/
>
>    To unsubscribe from this group, send an email to:
> ThyroidDisease2-unsubscribe@yahoogroups.com
>
>    Your use of Yahoo! Groups is subject to the Yahoo! Terms of
Service.
>
>
> __________________________________________________
> Do You Yahoo!?
> Tired of spam?  Yahoo! Mail has the best spam protection around
> http://mail.yahoo.com
>
> [Non-text portions of this message have been removed]

#1743 From: kim finch <frkim2u66@...>
Date: Tue Apr 26, 2005 3:20 pm
Subject: Re: [ThyroidDisease] Hashimoto's disease
frkim2u66
Offline Offline
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Hi,

I have never heard of the meds your on either. Some of your symptoms will
subside, I know for me I never got over being tired. The aching it comes and
goes. How long have you been on your meds?

Welcome to the group, here you find people who totally understands what you are
experiencing, because you'll come to find your family and friends just don't
understand how crappy you feel. Like having no energy for anything. I know I
just don't want to go out any where unless I have to.



THE BEST MIRROR IS A GOOD FRIEND


__________________________________________________
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#1742 From: leah ackerman <howdyduty2@...>
Date: Tue Apr 26, 2005 3:07 pm
Subject: Re: [ThyroidDisease] Hashimoto's disease
howdyduty2
Offline Offline
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Hi,
My doctor told me the same thing! They found mine when I went into the hospital
for a racing heart. I have not heard of unithyroid...I have heard that kelp
sometimes helps. I am still achie though...I have not felt like me for some
time. The best thing is to exercise, I don't do that though...lol
Leah

namaste1031 <namaste1031@...> wrote:

I was just diagnosed, although I know i have been hypo for over 10
years.  Where do I start? Anyone use natural meds? I am on unithyroid
0.088.  Does anyone feel better? I am tired, achie, and have a lot of
the symptoms still even though my doctor tells me thyroid labs are
*perfect*.





---------------------------------
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    To unsubscribe from this group, send an email to:
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#1741 From: "namaste1031" <namaste1031@...>
Date: Tue Apr 26, 2005 2:26 pm
Subject: Hashimoto's disease
namaste1031
Offline Offline
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I was just diagnosed, although I know i have been hypo for over 10
years.  Where do I start? Anyone use natural meds? I am on unithyroid
0.088.  Does anyone feel better? I am tired, achie, and have a lot of
the symptoms still even though my doctor tells me thyroid labs are
*perfect*.

#1740 From: kim finch <frkim2u66@...>
Date: Tue Apr 26, 2005 4:14 am
Subject: Re: [ThyroidDisease] Digest Number 609
frkim2u66
Offline Offline
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I totally get you!!!!! LOL.I could of easily been a Nun! I'm sorry to hear about
you not having insurance.I've been there.

THE BEST MIRROR IS A GOOD FRIEND



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#1739 From: lisa515ny@...
Date: Mon Apr 25, 2005 11:21 pm
Subject: Re: [ThyroidDisease] Digest Number 609
lisa515ny
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In a message dated 04/25/2005 8:02:40 PM Eastern Daylight Time,
frkim2u66@... writes:

Great to  know you don't loose the sex drive. Because with Paxil, I lost it
totally.  Wow, I can't believe how much you pay out for Wellbutrin, did that
price  include your synthyroid? I hope so.





Not to be too personal.....but on the Prozac, if I didn't have sex for the
rest of my life, it would have been too soon. With the Wellbutrin, I don't know
  if it UP'S my sex drive or what the heck is going on, but once a day seems
to be  too little!!!! LOL. I told DH I need a second husband.

The $330 is just for the Wellbutrin. It really hurts paying it, but what  can
I do. No insurance right now, and even when I get it in June, they'll
consider it a pre-existing condition for a year anyway. <sigh>

Lisa C


[Non-text portions of this message have been removed]

#1738 From: kim finch <frkim2u66@...>
Date: Tue Apr 26, 2005 12:01 am
Subject: Re: [ThyroidDisease] Digest Number 609
frkim2u66
Offline Offline
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Phen Phen, Oh how I miss Phen Phen, I kept my weight off and had so much energy
I'd clean 2 of my friends houses all the time. 50% Bitchiness, I think I am
going to up my Wellbutrin to 450, see how if it helps. Than have the doc
prescribe a higher dosage.

Great to know you don't loose the sex drive. Because with Paxil, I lost it
totally. Wow, I can't believe how much you pay out for Wellbutrin, did that
price include your synthyroid? I hope so.


THE BEST MIRROR IS A GOOD FRIEND


__________________________________________________
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Tired of spam?  Yahoo! Mail has the best spam protection around
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#1737 From: lisa515ny@...
Date: Mon Apr 25, 2005 6:42 pm
Subject: Re: [ThyroidDisease] Digest Number 609
lisa515ny
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I've never heard of Wellbutrin helping regulate a thyroid, but it does  treat
the depression symptom of low thyroid. Wellbutrin does however  help with the
PMS-it doesn't make it go away totally but I'd say, for me, it  cuts down on
the bitchiness about 50%. I also get severe PMS so I know how you  feel-I have
a 23 day cycle and have 2 weeks of PMS, so it really impacts my  family. I
went off the Wellbutrin a couple of months ago because we have to pay  for it
out of pocket at $330/month, and DH begged me to go back on. He said he'd  even
refinance the house!!!! LOL. I started out at 150mg, and noticed no
difference. At 300mg, I felt better but didn't feel quite "there" if you know 
what I
mean. At 450mg, it was like the clouds opened up, the angels started  singing,
the sun started to shine........ahhhhhhhhh. Finally, I felt like the  old me
again. BTW, Wellbutrin is also given to people as a smoking cessation  aide,
and one of the side effects is that it helps in weight loss (although the  FDA
has specifically told doc's to no longer prescribe it only for weight  loss).
It increases the body's production of seratonin, like phen-phen used to.

Lisa C


[Non-text portions of this message have been removed]

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