I'm off all meds now. Stopped everything four days ago. I stopped
taking my Synthroid after the surgery on the 28th of February, but
continued to take Cytomel which is a short-acting hormone. It should
drop out of my body fairly quickly, I am already noticing a little
drop in energy. But I have had no energy for three years now - so
I'm pretty used to it by now.
My RAI is on the 18th of April. On the fifteenth they will give me a
small dose of iodine, and then I go in on the 18th for a scan. Using
the results of the scan - they can see how much iodine was absorbed -
they will calculate the exact dose for ablation, and I will take it
on the same day as the scan. So I don't know what my dose will be
yet.
Maybe they will give me different instructions after they see how
much I need to take. I wonder about the difference in "quarantine"
time. I know that no two doctors will handle things the same way -
but still...... There's a lot of differences in our post-dose
instructions - the tech says I have a window of 6 hours before the
iodine is absorbed in my bloodstream - so that it will be safe for my
husband to drive me home from the hospital. I have *no* time in a
lead room (at least not that they've mentioned), and a 8-foot for 5
days quarantine. Not supposed to share utensils, wash my laundry
separately, sleep separately, flush the toilet twice and rinse out
the tub thoroughly after a shower. They seem more concerned about
people absorbing the iodine through my body fluids than anything
else. But if that's the only thing to be worried about - then why
the 8-foot rule? Hmmm - maybe I need to research this a little.....
My boys are 6 and 9. I've had more energy in the last week or so
than I've had in a long time. They seem kind of happy to have me
back. It's hard to realize I'm going to be losing it again - even
for just a short time.
I did a little something *like* kayaking along the ocean once - but
have never actually kayaked. So I would have to learn first..... :)
I guess when you get past forty, you begin to realize some dreams are
just pipe-dreams. But who knows....maybe I *will* do it.
I've been diagnoised with this illness for a little over a year now and i have had the radioactive iodine treatment and have gained about 20 lbs i've have been...
I was diagnosed last week with thyroid cancer and am scheduled to have a thyroidectomy. I have been suffering from debilitating fatigue for over three years,...
Hi Frankie, I'm Chrissy from the uk. I had thyroid cancer in 1990. and yes you do need to see a oncologist for a follow up. when the thyroid is removed and the...
Hi Frankie, Welcome to our group :-) I was diagnosed with papilliary thyroid cancer in February 02, and had my thyroid removed three weeks later! I was...
Dear Deborah, I live in Pennsylvania (near Pittsburgh), and my endocrinologist has mentioned having a single RAI after the surgery, as well as a body scan....
Hi Frankie, Your endocrinologist sounds very much like mine, and I think my doc is wonderful. But I know EXACTLY how you feel! I had the same patronizing...
Debbie, Thanks for taking the time to answer my questions. I don't know if I mentioned that I have papillary cancer too, so it sounds like I will be following...
Deb, Had my thyroidectomy a little over a week ago, and am noticing a real improvement in the symptoms that have been bothering me - fatigue is easing off,...
Hi Frankie, Reading your posting, brought back so many memories, I had forgotten I had!!! You should have been warned prior to your surgery that because your ...
Thank you both for taking the time to write back. You have really set my mind to rest. I don't know why my doctor acted so concerned, except she seems like a...
Hi Frankie, Just got back from a few days in San Fransico with my hubby. Fantastic place - we loved it. I can honestly say, apart from the expected husky,...
Deb, Glad you enjoyed your trip to San Francisco. It was once a dream of mine to kayak the pacific coast and stop at all the cities along the way - all the...
Hi Frankie, I worked in a National Mountain Center in Wales (UK)for 10 years, I used to love kayaking around the lake that the Center was built next too, but I...
Deb, I'm off all meds now. Stopped everything four days ago. I stopped taking my Synthroid after the surgery on the 28th of February, but continued to take...