Hi all THIS WEEK is Jeans for Genes week , where the public awareness is raised on Genetic illnesses , people can visit the website and buy badges or other...
Thank you to you Philippe and Laurie for your letter of support , this will definately strengthen our campaign to get research started in Australia and help...
Hi Maria, sorry its taken so long but hope this is of some use. My son's name is James and he is 7 years old. After a very difficult pregnancy he was born at...
Sharon Slender
silverdalelawnies@...
Aug 6, 2004 11:08 pm
778
Re: [TTD-support] The Importance of researchHi Michelle, thank you for making us so welcome when we visited. It was so could to meet and talk. The photos we...
Sharon Slender
silverdalelawnies@...
Aug 6, 2004 11:09 pm
779
Thank you Sharon for the letter of support I will pass it on to The Federal Minister as we are now compiling to take this issue to the Minister of Health. I...
Dear everyone I have posted Sammy-Joes story to the editors of health medial press release , so that 20,000 non doctors and 40,000 doctors will have a read...
Dear Maria~ I read what you wrote on the websites and it was like you took the words right out of my mouth. My husband and I were reading it and kept laughing...
Dear Julie, Yes we do have hard days and very emotional days , I have them every time we near his birthday , cos I think of how he may have been and what he...
Just a word to say I put a photo of Andréa on the site. Can anyone tell me if you can see it, because I am not sure I did it correctly. Thanks Laurie...
She is a gorgeous little girl with a beautiful smile ,Laurie , how hold is she in that photo? She is really cute Maria andrea_alet <philippe.alet@...>...
Laurie, you mentioned that Andrea has the photosensitive skin like Sammy-Joes , her skin does resemble Sammy-Joes alot , how old is she in that photo ,?...
Hi Laurie! Your daughter is beautiful! She has such a wonderful smile. I hope that you don't mind my asking--but where did you find the "hat" that she is...
Dear Bonnie I really enjoyed reading your email , the children have so many similarities , like for instance Sammy-Joe loves lounging around in his pyjamas all...
Dear Amy, Do keep intouch what ever the outcome is , I believe that some of those scarves are available through wigs for kids there is a link in the links...
This photo was taken last month during holidays. Andréa will be 4 in october. She has photodendibility. We protect her with cream for sun (100), she keep a...
Dear Laurie, There are so many similarities , my son Christian plays the guitar and Sammy-Joe absolutely loves singing along with him , at school also he loves...
Hi Julie The photos of Collin look great !!keep em coming . Maria COLLINPRESLEY@... wrote: Hi everyone~ I posted some pictures of Collin on the website. I...
Hi everyone Sammy-Joes story went on air last night with Today Tonight , I was a little disappointed cos they got his age wrong and some other details , about...
Dear Maria, I am sorry for you that they got the story so wrong. And for us all. That is terrible, they obviously didn' t listen to watch you said.Thank you...
Hi Ronda yes I was disappointed that they mucked up the story on TTD , but that has only strengthened my determination to correct things here in Australia and...
Dear Ronda and everyone I recieved another letter from the doctor which I wrote to from the Netherlands I have pasted it below , hope this helps to strengthen...
Hi everyone , Just letting you know that my letter to the Health Minister Tony Abbott has been recieved along with some of your support letters , they are...
Hello, I have a question for the group regarding vaccine... Every year it's a challenge for us to make sure Andrea is not infected by chickenpox (I hope it is...
Dear Laurie and Philippe Sammy-Joe had all his vacinations but had to have them much later than the required time , he had gamma globulin transfusions and so...
Dear Philippe & Laurie, James has had every vaccination that he is able to get. He never got the chickenpox vaccine because he came out in spots a week before...
Sharon Slender
silverdalelawnies@...
Aug 19, 2004 8:29 pm
803
Both of our girls have TTD....but we just found this out this past February. They have both had the chickenpox vaccine and I did not see any adverse reactions...
