Dear Maria, So glad to hear from you. I am happy for you that things are going great. We are well in sunny Brisbane. I bet you will be so glad to get home and...
Some news from Andréa. We went last week to control her eyes. Every things is getting well, no more cataract. Andréa look after the objet better and follow...
Hello there, My son sammyjoe has very dry skin also and we tend to use a variety of creams and lotions I usually use emu oil but in the states was able to get...
-I just wanted to let you know that my son too had immunity problems and was given gamma globulin for 7 years of his life he is 14 now and his immunity...
I just wanted to let you all know that Sammyjoe was very vitamin d deficient and calcium deficient and alot of this is due to the lack of sun that our children...
have you all had your children tested for vitamin d and calcium or iron please let me know as I am interested to hear from anyone else that has given their...
Hi Laurie My son Jake is also 3 years old. He currently weighs in at 9.75 kg, and is about 31" in length. Jakes skin is very dry at times depending on the...
kelly
kelly.osborne@...
Dec 15, 2003 3:33 am
644
Hi everyone! As it has been a long time since I have posted a message, I will give you just a little update. My name is Lisa Stewart and I have a brother...
Lisa~ You sound like a very sweet sister. I agree we have no idea what the future holds. I think the doctors always tell us the worse to cover themselves. My ...
-Dear Lisa Hi this is Maree and my son sammyjoe is 15 years old on March of this year you can see photos of him on his web page and read more about him...
-Dear Julie Christian wanted to reply to your letter and has asked me to write for him so here goes he says Being the brother of a special needs child is...
-i JUST WANTED TO TELL EVERYONE I CRIED WHILE WRITING THIS FOR Christian and his response was "AH MUM YOU ALWAYS CRY!" ANYWAY HE wanted to say that I made a...
Dear Christian~ Thank you so much for telling me in your own words what it is like to be the little brother of Sammy-Joe. I know that Sammy-Joe is very special...
Dear Maria Hope you are all well. We are doing great. It is lovely to hear from you and the letter from Christian was beautiful.( i wish you would stop making...
Dear Ronda. How are you I am glad you have decided to write to the doctors over seas that is great I am sure they would be interested in seeing Kimberlee and...
Dear Ronda FORGOT TO MENTION that if you do decide to go you are able to stay at all Ronald Macdonald Houses and in Maryland you will stay at The Childrens Inn...
Hi everyone, My daughter Amy will be 20 on 24 May this year she is a wonderful young lady and delights everyone she meets.In general her health is great but...
DARRAN PROSSER
darran.prosser@...
Jan 14, 2004 11:32 am
654
hi Jocelyn I am sorry to hear about AMY s problems with her hips please do keep us in touch , has Amy been tested for vitamin d deficiency and calcium cos...
Maria~ We were at NIH for one week. We also stayed at the Children's Inn and loved it! They did several tests and x-rays on Collin and his bones but nothing...
Hello everyone. I am not sure if my last email went through, i tried to send a photo, but didnt realize how big the file was until too late. A couple of...
kelly
kelly.osborne@...
Jan 15, 2004 10:14 pm
657
Dear Kelly SammyJoes nails are exactly the same and are very brittle and curve , I just use nail moisture creams and oils for ointment and this usually softens...
Hi Maria Jake has not been tested for anything regarding vitamin d. The irony is that my mom has been at me to ask my paediatrician if he can be put on it....
Hi kelly What a cute little boy Jake is he looks very happy and healthy. Madeline has always had fingernail problems her nails a very thin and brittle and if...
Dear Michelle Great to hear from you !how is everyone? Hope all are well ? Madeline must be growing and Tate must be big also now ? How are you and Tim we...
Maximum daily intake (from all sources) unlikely to pose risk of side effects : 2,000 IU or 50 mcg/day Food sources include: Vitamin D-fortified milk, vitamin...
Being the sister is a lot of fun. It will be different for the baby you have on the way though. I am older than Travis by about six years. I am 22 and he is...
This is a letter which i would like to share with the group . from Dr James Cleaver take care Maria Note: forwarded message attached. ... Yahoo! Greetings Send...
My name is Kassandra Appel and my family lives in Indiana in the United States. My daughters..Alexandria and Zoe were both recently diagnosed with TTD. After...
Hi Kassandra, I'm glad that you found this group, this is a place that you can ask any question and someone will have been in the same situation. My name is...
