Dear Jerry The doctor I am seeing in Minnesotta is DOCTOR Mark Pittlekow you can call him on 475 830 280 Valerie Natalie recomended I get him to see Sammy-Joe...
Hello everyone. It has been a long time since i have sent any mail out. Whew, life has gotten pretty hectic in the last couple of months. My computer has...
kelly
kelly.osborne@...
Oct 11, 2003 11:56 pm
589
Dear Kelly, It's lovely to hear from you. I have missed talking to you online. Glad to hear the Jake is doing so well. I wanted to let you know that Kimberlee...
... I am doing fine in the USA unfortunately I am not sure if I am able to meet up with anyone due to the high costs of flights I am going to Minnesotta on the...
and i meant to write Unanswered questions not answered ,,gee I can be a goof ball at times , thats an American term for all the Aussie members Maria--- In...
Hello, We are new members of this group. I joined yesterday. My name is Laurie, I am a french mother, our daughter Andrea is 3 years old. She was diagnosed as...
Maree, I'm relatively new to the group - so I apologize if you've already addressed this question. What, exactly, are the unanswered questions that you are...
Maria~ I am sorry that it took me so long to write. It has been crazy. San Jose is seven or eight hours away from here. I am not sure if that would even be ...
Hi Julie, How are you feeling? I hope everything is going well. More good news on James' eyes . He has had the second operation and everything went as well as...
HI Kelly, how is Jake? James has the IOL implants. He has been fairly good with the drops and doesn't complain much. He is getting a bit sick of them now but...
Hi Maria, hope everything is going well with the trip. I bet you will be glad to be home though. James is doing fine and had successful eye surgery over the...
Sharon~ THAT IS AMAZING!!!! I am so excited for you. I look forward to the day that we can experience the same thing with Collin. Enjoy every second of this...
Welcome Laurie & Family, You will find this support group a great source of comfort & information! My name is Karen, my daughter is Tara, she is nine years old...
I am a french mother and is new on your forum My best friend Laurie has a daughter who suffer from trichothiodystrophy with UV-sensitive. ANDREA is almost 3...
Florence~ Welcome to the group. Hopefully you will be able to have all of your questions answered. What are you wanting to know? My son Collin is dx with TTD....
Hi everyone~ I just wanted to share some great news with everyone! Last week Collin started walking with a walker all by himself! He still can't turn it but he...
Hello, Julie, Thank you for your welcoming message. As I write in my message, I'm not the mother of a TTD child but I am the friend of Laurie who is the mother...
Hello there, My name is Ronda and I have a 9 year old daughter, Kimberlee who has ttd. It is funny that you say Andrea looks like Colin as I thought the same...
Hi Rhonda, My name is Jerry Lopez and I'm from the United States. I too have a 4 yr old daughter with TTD. Fortunately, she is a very healthy child, eats very...
Hi Laurie, welcome to our group. We have a son James who is 6 years old. James has many of the problems as the other children. He used to have cataracts...
HI Julie, the picture is gorgeous. When it came on the screen my eldest son Aaron said is that James? Colin looks like James very much. Did you have fun at...
Hi Florence, My name is Chris. I have a 5 y o daughter, Talitha, with TTD. She has been lucky to have no cataracts. She is quite tiny, 12 kg. She has the...
Hi Sharon, I was interested to read about James being on the growth hormones. I mentioned it to Talitha's paediatrician last time we saw him, and he did not ...
Hi Julie, Collin looks soooo cute. And I think there's similarity with my daughter Talitha too, see attached pic. Glad to hear your pregnancy is going well....
Chris~ Talitha is so beautiful! I think all of these little ones have similar traits. It is almost scary. I hope all is going well with you and your family. ...
Sharon~ I don't know if I have seen a picture of James before. If you have one please e-mail it to me. I know that a lot of these little ones look a like. That...
Hi every one, Thanks a lot for your answers. It is very important for us to know we are not alone with this problem. My friend florence join the group last...
Hi Laurie. My name is Kelly, and my son is Jake. Jake just turned 3 in Sept. He was very similiar as Andrea when it came to his birth. He was 1330g (I...
