hEY HELLO EVERYONE WE ARE IN AMERICA NOW!! its lovely here and everyone is so friendly , I am amazed at how well Sammyjoe coped with all the flights , if...
HI everyone, I just wanted to share our good news with everyone. James had the first of the cataracts off his eyes last week. He went back on Friday for a...
Hi Maree and Sammy-Joe just wanting to know how everything is going in America, hope all is well and you are both enjoying yourselves, can't wait to here from...
Re: [TTD-support] I AM IN AMERICAHi Michelle, How are you all? We are well and looking forward to the holidays next week. I seem to be having trouble getting...
Sharon~ That is so exciting to hear about James. You will see such a difference over time. How old is he? Collin was five months old when he had his first ...
Hi Michelle and everyon we are in Idaho and having a great time Saint Lukes HOspital was very nice and although we were there for a short time the staff there...
Hi Maria, Glad to hear that you are having a great time and things are going well. We are all thinking of you. Love Ronda Ronda ... Chat via SMS. Simply send...
... I think I will be in california towards the end of october I will contact you then are you able to call me at 208 436 1984 , I will be going to the mayo...
Maria, I didn't receive that e-mail of the doctors that you are seeing here in the states. Please resend it whenever you have a chance. Thanks Jerry ... From:...
Dear Jerry The doctor I am seeing in Minnesotta is DOCTOR Mark Pittlekow you can call him on 475 830 280 Valerie Natalie recomended I get him to see Sammy-Joe...
Hello everyone. It has been a long time since i have sent any mail out. Whew, life has gotten pretty hectic in the last couple of months. My computer has...
kelly
kelly.osborne@...
Oct 11, 2003 11:56 pm
589
Dear Kelly, It's lovely to hear from you. I have missed talking to you online. Glad to hear the Jake is doing so well. I wanted to let you know that Kimberlee...
... I am doing fine in the USA unfortunately I am not sure if I am able to meet up with anyone due to the high costs of flights I am going to Minnesotta on the...
and i meant to write Unanswered questions not answered ,,gee I can be a goof ball at times , thats an American term for all the Aussie members Maria--- In...
Hello, We are new members of this group. I joined yesterday. My name is Laurie, I am a french mother, our daughter Andrea is 3 years old. She was diagnosed as...
Maree, I'm relatively new to the group - so I apologize if you've already addressed this question. What, exactly, are the unanswered questions that you are...
Maria~ I am sorry that it took me so long to write. It has been crazy. San Jose is seven or eight hours away from here. I am not sure if that would even be ...
Hi Julie, How are you feeling? I hope everything is going well. More good news on James' eyes . He has had the second operation and everything went as well as...
HI Kelly, how is Jake? James has the IOL implants. He has been fairly good with the drops and doesn't complain much. He is getting a bit sick of them now but...
Hi Maria, hope everything is going well with the trip. I bet you will be glad to be home though. James is doing fine and had successful eye surgery over the...
Sharon~ THAT IS AMAZING!!!! I am so excited for you. I look forward to the day that we can experience the same thing with Collin. Enjoy every second of this...
Welcome Laurie & Family, You will find this support group a great source of comfort & information! My name is Karen, my daughter is Tara, she is nine years old...
I am a french mother and is new on your forum My best friend Laurie has a daughter who suffer from trichothiodystrophy with UV-sensitive. ANDREA is almost 3...
Florence~ Welcome to the group. Hopefully you will be able to have all of your questions answered. What are you wanting to know? My son Collin is dx with TTD....
Hi everyone~ I just wanted to share some great news with everyone! Last week Collin started walking with a walker all by himself! He still can't turn it but he...
Hello, Julie, Thank you for your welcoming message. As I write in my message, I'm not the mother of a TTD child but I am the friend of Laurie who is the mother...
Hello there, My name is Ronda and I have a 9 year old daughter, Kimberlee who has ttd. It is funny that you say Andrea looks like Colin as I thought the same...
