Hello Everyone! I just wanted to let everyone know I have had the absolute pleasure of meeting Maria Liistro and her wonderful family. They were in Queensland...
Rhonda So glad you got to meet Maria, Sammy-Joe and family they are such nice people, I would love to catch with you when you are in NSW. We live in Albury...
Hi Everyone We are back from our holiday and I must say the weather is terrible here in Melbourne I wanna go back to Queensland where its nice and warm and...
Hi Michelle, Your are right Sammy-Joe and Maria and family are wonderful. I haven't been able to stop thinking about them! Kimberlee and Sammy-Joe are so...
Maria~ That is so fun! I am so excited for you. I have not been able to meet (in person) another parent of a child with TTD. It has got to be reassuring to see...
Dear Julia and everyone, it was a great feeling to meet up with Ronda , Kimberlee and Melinda it felt like I was going thru all the emotions again once I had...
Hi Ronda, We live in Sydney and would love to meet you when you are in NSW. We are going away on the 7th July to Batemans Bay on the south coast for 4 days so...
Hello everyone. I hope all is well with everyone. Things are doing good here, although Jake is in the middle of a cold. Nasty one to, i was in the worst of...
kelly
kelly.osborne@...
Jun 9, 2003 7:02 pm
521
Sign language is a great idea. Don't worry about the fine motor, you just may need to adapt the signs. Even if he develops a "dialect" that only your family...
Dear Everyone sign language is the greatest tool to help in any communication We used sign language for four years before Sammyjoe spoke a single word and i...
Hi Ronda Iam so excited that we are finally going to meet, I will speak with Maria and see if they can make it to Albury, she has has said that they would come...
Hello Kelly, We are all well here. Kimberlee started at early intervention at 2and a half. She went to a centre for speech delayed and hearing impaired...
Hi Kelly~ We have been working with Collin on sign language for a little while. At his little preschool they sign a lot. It has helped us. Collin does not have...
Hi kelly Good to hear from you I hope Jake is over his nasty cold. On sign Language, we have tried to teach it to Madeline but she can't seem to grasp it, she...
Hi Michelle , I think we are able to make it to Albury but won't know for sure until around 24th June. Can I have your phone number and address so I can get...
HI Sharon, We will be in Sydney from 4th July to the 8th July. We will be staying at Paramatta with friends. Where abouts are you? It would be great to meet...
Dear Kelly: We enrolled Tara at 3 years old to the same nursery school that my son attend (partially because I was still in denial) anyway she did OK. Then...
SnackGirl9@...
Jun 17, 2003 1:24 am
530
Wishing you all a great visit together! It sounds wonderful! I hope it all comes together, what a great treat! Karen...
SnackGirl9@...
Jun 17, 2003 1:32 am
531
Hi everyone How are you all going? I have some news to share ,,I am hoping to get to visit friends in Idaho Boise ,, they have offered to pay for my stay , and...
Hi everyone~ We are so excited on Saturday we are going to the NIH (National Institute for Health) in Bethesda Maryland. Monday, Tuesday, and Wednesday they...
Hi Julie, I want to wish you the best of luck at NIH. We were there two years ago, and at the Children's Inn too. We saw both Dr. Krammer and Dr. DiGiovanni...
Hi everyone- I am in Maryland right now at the National Institute for Health. They are doing research on TTD. They have been doing testing on Collin, Jason and...
Hi Julie, I hope you and your family are doing well. I had spoken to Dr.Kraemer at NIH and had sent him hair samples and doctor's records from my 4 year old...
Smazz6@...
Jul 15, 2003 1:43 am
536
Julie Happy to have Caitlin's details provided and any information they may have. Let me know what details are needed. Regards Paul ... From:...
Dear Julia I wrote to Dr Kraemer letting him know that i am going to be in America in september 5th for 3 months and was hoping to get sammyjoe as part of his...
-Dear everyone I Have written to all doctors involved with TTD and they are all keen to see Sammy-Joe , I have managed to get some sponsorship for myself and...
Hello, Who is the Dr you will be seeing in Mayo..Rochester MN? ... -Dear everyone I Have written to all doctors involved with TTD and they are all keen to see...
... Hi i have only just rec'd your message and was wondering whether you are still in contact with the research doctors? If so i would really like to know if...
Hi Maree, We would love to have am oppotunity to speak to or better still see doctors who can help more towards helping our son and all others with TTD. If...
