Sorry its been so long but I have been very busy with my art work you can now check out some of my work at www.artnaive.co.uk my postal address is Jocelyn...
darran.prosser@...
Dec 3, 2002 1:45 pm
324
Hi Everyone, I am not sure whats happened, it must be my server again, this will be the third email i have sent to the group in the last two days without...
Parenthood is an everlasting and changing mystery.Sammy Joe never ceases to amaze me with his wonder and Christian too with his sense of knowing what to say...
Medical Genetics Research, School of Biomedical Science, Faculty of Health, The University of Newcastle, Australia The University of Newcastle - Australia...
Hi all, I never really introduced my son Kevin and his family to the group. (Actually, I tried, but my message bounced, and I forgot to follow up. I work with...
HELLO ALL. I AM TRYING TO COMPILE ALL THE INFORMATION FOR MY DOCTORS ON THE SYMPTOMS THE KIDS HAVE. IF EVERYONE COULD REPLY TO THIS EMAIL, THAT IS THE SAME...
kelly
kelosb@...
Dec 6, 2002 1:43 pm
330
Kevin Crowley (at 4.5 years): Brittle hair Ichthyosis of the skin Bi-lateral lens cloudiness (not cataracts, yet) Extreme myopia (legally blind) Nystagmus ...
Hi Kelly, My name is Suzanne and my husband Tony & I have a 3 1/2 year old daughter named Marissa. She was diagnosed with TTD 3 months ago by a dermatologist...
Smazz6@...
Dec 7, 2002 1:37 am
332
Hi Kelly, Here's the info: Kimberlee was born 12 April 1994. She was 10 weeks early and weighed 1020grams. I also have another daughter, Melinda who is 6 years...
Dear Maria: I think you already have our address but I will send it anyway. Karen & Michael O'Donnell 63 Jakes Lane Calverton, NY 11933 USA Tara was born on...
SnackGirl9@...
Dec 8, 2002 1:03 am
334
Dear Kelly My Name is Maria and am Married to Joe Liistro and I have two children , Sammy-Joe aged 13 and Christian aged 10 Sammy-Joe was born on the 2nd of...
Hello Everyone, I agree with Maria that the brothers and sisters of our children with ttd are very special in their own right. Melinda is 6 years old but is...
hi everyone have a read of this Maria DNA Repair, Cancer and Aging by J.H.J. Hoeijmakers J.H.J. Hoeijmakers, G. Weeda, G.T.J. van der Horst, J. de Boer, K....
Hello everyone. Hope you are all well? Just letting you know that the draft for The SAMMY-JOE TRUST FUND is nearly finalized , hopefully we will get some...
kelly I put the message in the guest dook for you but it didnt do the whole thing so I will add the other bit in tonight when it decides to work for us again ...
Have you seen this site http://www.hedfoundation.org/other_disorders.htm It has an interesting suit for kids to go out into the sun. Hope all is well for...
Thank you Angie I hope all is well with you and your family I have written to the site and have asked that Trichothiodystrophy be added to the list of related...
Hey Kelly, Just read your "Christmas letter." Right now I'm trying to read e-mail with Tara talking nonstop!!! I can totally relate to what you are saying!!...
SnackGirl9@...
Dec 30, 2002 2:56 am
347
Dear Maria: Hope your Holidays were merry. Everyone here is doing well this season. Is there a fund set up for donations for TTD? I'm sure you are running a...
SnackGirl9@...
Dec 30, 2002 3:07 am
348
Hi everyone. I am new to this group. I have a 2 1/2 year old daughter who was diagnosed 14 months ago with trichothiodystrophy (tay syndrome). Most of the info...
Hi Sharon I have a 2 year old son, who has been diagnosed with Trichothiodystrophy. He was born 33 weeks gestation, and weighed only 2lbs 14 oz, and was about ...
kelly
kelosb@...
Dec 30, 2002 5:11 pm
350
Hi Kelly, My daughter Brianna is 2 1/2. She was actually diagnosed 14 months ago with this it has just taken this long for me to find this group. She was born...
Hi Sharon I am glad you found us here I have sent you a private email inviting you to join us but I see you found us yourself. I am happy to help in any way...
Dear Karen I have set up a Trust Fund called the 'Sammy-Joe Trust'this is to help us with the running costs of the support network and inorder for us to meet...
Hi Sharon Welcome to our group. Maria Liistro has worked very hard to keep us informed and educating all of us about TTD. I have a 3 yr old daughter and a 7 yr...
Dear Maria Hope your Christmas was special for the whole family, Caitlin knew how to open presents this year (well at least tear paper) and had lots of fun. I...
Paul Howden
Paul@...
Jan 1, 2003 9:38 am
355
please have a read of this http://cancerweb.ncl.ac.uk/cgi-bin/omd?query=DNA+damage...
