Dear Suzanne I remember when Sammy-Joe was three years old I took him to a physic healing church , I found it very interesting and I believe it worked to an...
Hi Maria, Both Bonnie and I hope and pray that Sammy Jo is doing well. And again, are very thankful for all the insight you have given us in regards to TTD. It...
Dear Maria, Amy has mild photosensitivity,brittle hair and nails she used to be addmitted in to hospital approx twice a year but things have improved greatly...
darran.prosser@...
Nov 4, 2002 9:52 am
266
Clear DayDear Maria Sorry for delay in responding to all your emails, Caitlin is doing fine, I have provided a breif summary below of her history born 1/5 2000...
Paul Howden
Paul@...
Nov 5, 2002 10:32 am
267
Hi Maria and everyone else! Jordon is doing very well since this PDA surgery. We went for his seven week post-op appointment yesterday. Great news the plug...
Sharon Zehr
s_zehr@...
Nov 5, 2002 7:33 pm
269
Hi Kelly, How long ago did they do your son's eye surgeries. Jordon is now down to every six months for his eyes. I sure can relate to the follow ups on that....
Sharon Zehr
s_zehr@...
Nov 18, 2002 4:32 pm
271
Kelly, I would love to contact the support group. With all of Jordon's trials, this is the one that bothers me the most right now. No one around here has even...
Sharon Zehr
s_zehr@...
Nov 18, 2002 6:14 pm
272
Glacier ... From: Maria Liistro To: TTD-support@yahoogroups.com Sent: Tuesday, November 19, 2002 6:57 AM Subject: dear everyone Dear Everyone Sorry you all...
Hi Sharon The groups email address is PGCFA-support@yahoogroups.com . Probably the best way to become a member, is to write down the address, and then go to...
kelly
kelosb@...
Nov 18, 2002 10:54 pm
274
Hi Maria, Great to hear from you, it's been a while. I rang he Starlight Foundation in Brisbane and was told we could only be nominated by a doctor. Is that...
Dear All, Just a few words. Amy had an operation last week to remove some ectopic teeth from her palate. She is still very tired from the operation which has...
darran.prosser@...
Nov 19, 2002 7:55 pm
278
Hope she it doing well! What type of teeth did or does she have? For lack of better word---normal? Nathan's teeth are pointed. And his permanent teeth appear...
Hi Maria, Thanks for your input on growth hormone. Tara went for a physical last week and was 44 lb., 48 inches tall. She has grown a lot this past year, for...
SnackGirl9@...
Nov 20, 2002 2:04 am
285
GlacierHi Everyone How are you all going? How are the children? I was thinking the other day how wonderful it is that we were able to form this group and how...
Dear Maria, That was the most beautiful letter. Thank you. Emails from the group make my day brighter because I know that I am not the only one going through...
Karen, Thanks so much, everyone here is so sweet I love all of you guys. I wish it were possible for all of us to meet someday. I have learned alot from...
Sharon Zehr
s_zehr@...
Nov 20, 2002 2:12 pm
289
Dear Angie, Amy had nearly all her first teeth extracted at the age of 9. However, her second teeth are stronger but her lower jaw is under grown so she awaits...
darran.prosser@...
Nov 20, 2002 9:45 pm
291
Hi Kelly, good luck with Jake's surgery. We'll be thinking of you. James has one lot of srugery when he had the grommets put in his ears. they made and are...
Hi everyone, just to let you know James has been on the injections for about 5 weeks now and is doing well. There has been no problem with fluid retention...
Hello there Just a quick note re the growth hormones: Kimberlee was on them for about 9 months. I don't think they did much for her. She didn't grow at an...
Hello everyone. We are obviously back from Toronto. Actually we were sent home the same day. Jake's surgery was on Tuesday. It was a long day, but he did...
kelly
kelosb@...
Nov 21, 2002 1:31 pm
295
Hi Maria, Our Home address is Karen & Michael O'Donnell 63 Jakes Lane Calverton, NY 11933 Thanks for the information, you are an inspiration! Karen...
SnackGirl9@...
Nov 22, 2002 1:05 am
296
Hi Ronda, I read with interest your note on growth hormone. Did anyone indicate that the chest & lungs might improve with growth hormone? Karen...
SnackGirl9@...
Nov 22, 2002 1:25 am
298
... Hi Kelly and everyone I am so happy to hear that Jake is doing well and has a lot of spirit in recovering quickly, It would be good to ask Kelly ,how this ...
Hi everyone I'm glad to be finally back on line I have missed you all heaps. My email programme crashed and I lost all my addresses and couldn't email anyone...
Hi Karen Jake had undescended testicles. They were still pretty much in the abdomine. IF they have not dropped by the age of one, then there is a high risk...
kelly
kelosb@...
Nov 22, 2002 1:29 pm
301
Hi Karen, No there is no documented research that the growth hormone helps with the lungs etc. but it is certainly a good side effect. Ronda ... STOP MORE SPAM...
Hi Everybody! Kelly , it's wonderful that Jake came through the operation so well. You are so right about how these kids are troopers. Kimberlee usually comes...
Dear Kelly, Hope Jake is doing well we are thinking of you. Best Wishes to you both. I notice the information about dental work and I do not know if I...
darran.prosser@...
Nov 24, 2002 9:16 pm
310
this is a message I sent to another lady that I correspond with from the XP list I wanted to share it with all of you too. Hope you are all well? Maria ... ...
