I am the father of 3 kids that all have TTD. My daughters are 7 snd 5 and my son is 19 months. We just came back last week from the NIH (National Institute of...
I have 3 children that all have TTD and none of them sweat. It is hard for us seeing as we live in Texas, but we are very careful during our hot months. Two...
I have 3 children that all have TTD and none of them sweat. It is hard for us seeing as we live in Texas, but we are very careful during our hot months. Two...
Hi Maria, I have two daughters who are 7 and 5 and a son who is 19 months. The crazy thing is that all 3 have TTD. Thanks for the email and I look forward to...
Hi All Hope you are all well! Thank you for your response on my 'sweat' question. I have a few more questions: 1. Hearing Impairment - my 6 1/2 year old has a...
Hi there , yes Sammy-Joe had a peg put in also and he too experienced the chronic diahorea at first , it took a while to adjust and then he got severely...
Hi Andy what are your childrens names , I would really love to see photos , have you had a chance to see the photos section of this group , we have many photos...
hello to everyone , please do voice how you all feel about having this group and also please introduce yourselves to all our new members ,, touch base with all...
dear extended family, it's been a while so i thought i'd give you an update on tyler. we are extremely busy with his special olympics. we just completed his...
WOW ,, that sounds fantastic ,, do you mean for October or for Sept next year , cos your email states sept ,, nethertheless we are very very proud please send...
maria, both events are October 2007. i will send more pictures after he competes. i hope all is well with you and your family. till next time, terri ...
Hello Everyone: My name is Katie and to all the new members, I have been a member of this group for about 3 years. My beautiful little girl Megan was 4 when...
Hi TTD, I've requested to add you as a friend on Facebook. You can use Facebook to see the profiles of the people around you, share photos, and connect with...
Hello please continue to email through the group , your experience with us has been something that I can never forget and thank you for all the kind words , I...
Hey Maria, Wow since I found this web page it has been so interesting to hear what other people are saying about their children. Having 3 kids with it they ...
Sydney is 4 and has TTD, diagnosed at 6 months. She had a blood stream infection in July but is doing well now. She has her fair share of challenges but has...
Dear Andy and Amy and our beautiful family I think you guys are amazing ,, do you both work also? I find what I do so time consuming , althou I enjoy every...
Sydney has hearing loss also but I would not put implants in her due to her immune deficiency problems. She has had a PEG since 6 months of age. We do not...
hi Jodi Great to hear that Sydney is doing much better , I agree with you our kids do have a beautiful smile , Sydneys smile reminds me of Sammy- Joes , our...
Hello everyone: I wanted to share this poem with you all that I wrote after Megan died. It helps me when times get really hard for me, and I hope that maybe...
Hello everyone It has been awhile since I last posted, but you are all in my thoughts. I would like to welcome all new families to the group. We are so glad ...
Kelly MacLeod
kmacleod@...
Oct 13, 2007 10:57 pm
1753
Hi Andy and Amy I love the photos of your family ,, thank you for sharing , you are all just so beautiful , thank you so much ,, if Amy wants to set up a ...
dear kelly, we would love to meet you if you have time during your trip to the NIH. we live about an hour away and cold take the time at either end of your...
Hello beautiful Kelly and family it was wonderful to hear from you I enjoyed reading your email , I am so glad you are getting to go to the NIH , it will be...
Hi Everyone~ ?It is great to see how everyone is doing. I am so sorry for my lack up e-mails. Things are busy like always and Collin does not like to let me...
Hi Julie Glad to hear from you , I am so sorry you are having trouble with the school district , what type of problems are you facing ? I am glad to hear that...
Thank you for your email. I was trying to connect to the links below to post but can't seem to figure out where to ost anything now after my last post. I am...
Hi everyone, Welcome to all the new families!!!! This group is so lovely to be involved with. I have learnt so much over the years through this group and met...
