Hallo Mark, we are one Family from Kosovo .our daughter Lize (4 year) having TTD PIBIDS syndrome .She became diagnose FRom Doctors in Holland .if you like u...
Hi All My 6 1/2 year old daughter has TTD, she was diagnosed at 8 weeks old. I have a question regarding sweat. Does your little darlings sweat? I was...
Ho Megan When Sammy-Joe was little he never actually could sweat , but now that he is eighteen he does swear alot , the doctors asked me the same question , I...
Hi Megan, Talitha doesn't sweat either, I think. She just goes very red in the face. Would you mind e-mailing you offline, I have a question for you re ...
My daughter Evee doesn't sweat, either. She's almost 3 now. She gets really red and her skin feels like she's running a fever. Eventually she gets a rash....
Hi Megan , please accept my appology for my typing errors , I had a horrible time with my computer key board , hopefully now there will be hi 's , hello 's ,...
Hi Rhonda, Chris and I haven't forgotten, we're still disorganised. I didn't answer your dermatologist question. It's Dr Mercer. Talitha was an IVF baby,...
i hope this find everyone well. i know it's been awhile. we are extremely busy with tyler. he is playing to sports right now with special olympics and wanted...
Hi there everyone, I wrote to the Docs at the NIH and this is the reply I received , please feel free to write to them yourselves as they are great at ...
I am the father of 3 kids that all have TTD. My daughters are 7 snd 5 and my son is 19 months. We just came back last week from the NIH (National Institute of...
I have 3 children that all have TTD and none of them sweat. It is hard for us seeing as we live in Texas, but we are very careful during our hot months. Two...
I have 3 children that all have TTD and none of them sweat. It is hard for us seeing as we live in Texas, but we are very careful during our hot months. Two...
Hi Maria, I have two daughters who are 7 and 5 and a son who is 19 months. The crazy thing is that all 3 have TTD. Thanks for the email and I look forward to...
Hi All Hope you are all well! Thank you for your response on my 'sweat' question. I have a few more questions: 1. Hearing Impairment - my 6 1/2 year old has a...
Hi there , yes Sammy-Joe had a peg put in also and he too experienced the chronic diahorea at first , it took a while to adjust and then he got severely...
Hi Andy what are your childrens names , I would really love to see photos , have you had a chance to see the photos section of this group , we have many photos...
hello to everyone , please do voice how you all feel about having this group and also please introduce yourselves to all our new members ,, touch base with all...
dear extended family, it's been a while so i thought i'd give you an update on tyler. we are extremely busy with his special olympics. we just completed his...
WOW ,, that sounds fantastic ,, do you mean for October or for Sept next year , cos your email states sept ,, nethertheless we are very very proud please send...
maria, both events are October 2007. i will send more pictures after he competes. i hope all is well with you and your family. till next time, terri ...
Hello Everyone: My name is Katie and to all the new members, I have been a member of this group for about 3 years. My beautiful little girl Megan was 4 when...
Hi TTD, I've requested to add you as a friend on Facebook. You can use Facebook to see the profiles of the people around you, share photos, and connect with...
Hello please continue to email through the group , your experience with us has been something that I can never forget and thank you for all the kind words , I...
Hey Maria, Wow since I found this web page it has been so interesting to hear what other people are saying about their children. Having 3 kids with it they ...
Sydney is 4 and has TTD, diagnosed at 6 months. She had a blood stream infection in July but is doing well now. She has her fair share of challenges but has...
Dear Andy and Amy and our beautiful family I think you guys are amazing ,, do you both work also? I find what I do so time consuming , althou I enjoy every...
Sydney has hearing loss also but I would not put implants in her due to her immune deficiency problems. She has had a PEG since 6 months of age. We do not...
hi Jodi Great to hear that Sydney is doing much better , I agree with you our kids do have a beautiful smile , Sydneys smile reminds me of Sammy- Joes , our...
