Hello everyone in the group I hope you are all doing well? our group has been a little quiet lately and was wondering how everyone is . Sammy-Joe has managed...
Maria, Honey i am sorry that things are so tight.Have you considered maybe contacting tv talk shows such as Oprah,Maury,Montel,Geraldo ?It would be a good way...
Hello Trish That is a great idea , I would love to contact them and see what happens , I think alot of the families in the group would come along also and...
Maria, I am doing better honey and once the cast comes off i will be even better.I will do some research and find you hopefully e-mail and a snail mail address...
Maria, Sydney has been doing well, so infections since October! She still continues to have pain, that is very significant at times. I am sorry to hear bout...
Thank you Jodi for responding to my email , I am sorry to say also that we wont be able to get to the Mayo Clinic this time round we had to really cut our trip...
Hello Trish that sounds great , Sammy-Joe s story and about TTD has been in alot of Australian news articles , but hasnt been in any of the USA papers , I...
Hello everyone: It was nice to hear from you all again. Maria I am so sorry for the problems that you are having, people don't realize how mentally exhausting...
Hello Everyone, I am still glad to hear from you all and I love to hear how the kids are doing. We are doing OK over here. We are coming up pretty soon to...
Maria, It would be great if more of the TTD families get involved and can tell their story.I am working on coming up with some e-mail and snail mail addy's for...
Melissa, Congratulations honey.I am thrilled for you and i love the name Kaylee! This July will be the first year anv.of our daughter Brenda' going to...
Hi Eveyone~ I am sorry that I have not written in a while. Things are crazy. We are getting ready to move and last week Collin had a hard week. We did have a...
Hello Katie I am aware that some children with TTD have seizures and diazapam is a drug that has been used , Sammy-Joe is on one diazapam a day as he has a lot...
Katie , I forgot to mention also Sammy-Joe also went through a stage where he would hold his breath and faint , I am not sure whether this is also common in...
Hello Melissa , I am so excited for you congratulations on the good news , I love her name Kaylee , that is a sweet name , I am so sure your angel Makenna has...
thinking of you also Trish , I remember that sad time in July when Brenda passed away so suddenly , I will pray for you and your family love and hugs Maria ...
Hello Julie nice to hear from you , you must be very excited about moving into your home , its been a while hasnt it , you wont know yourself , how wonderful...
Hi everyone Things here at home are pretty good right now. We are currently fighting another cold in the house, so I am keeping a close eye on Jake and the...
Kelly MacLeod
kelly.macleod@...
Feb 14, 2006 7:55 pm
1388
Hello Kelly great to hear from you , Ashley sounds so gorgeous , Jake and her sound like they are bonding , that is so good . Also ,, how exciting about the...
We are in the midwest near Minneapolis MN or Omaha NE. So we are not near your locations. Have you found out anything more about immune globulin therapy for...
Sydney has seizures. She was about 15 months old when she had the first one and it would not stop. She ended up on a ventilator because she had to be so...
Hi Maria Denise Katies sister had lot of problems when she was about 6 years and went to councilling and was told that the way she was feeling was normal and...
Hi Maria Denise Katies sister had lot of problems when she was about 6 years and went to councilling and was told that the way she was feeling was normal and...
Hello Irene Thank you for your email , It helps me to know that Christian is also not alone in what he goes through , today we are going back to see his Child...
Hello Everyone I just wanted to let you all know that Sammy-Joe had his birthday on the 2nd of March , please take a look at all the photos and see how happy...
HAPPY BIRTHDAY SAMMY JOE!!! It looks like you had a great time! Many, many more. Maria thanks for the pictures, you all look great. Love, Karen & Tara ... ...
Happy Birthday!! It is so nice to see the kids happy. Jodi ... From: MARIA LIISTRO To: TTD-support@yahoogroups.com Sent: Friday, March 03, 2006 5:47 PM ...
Hi there everyone , its been a while since I have written , please accept my appologies , I have been pretty busy with Sammy-Joe as his health has been up and...
HI EVERYBODY HOPE ALL IS WELL. NOT MUCH HAS BEEN GOING ON HERE, KATIE HAS FINALLY SEEN THE DENTAL PEOPLE AND WE ARE NOW WAITING FOR AN APPOINTMENT WITH THE...
Hello: Did Katie always have dental problems, I am asking because Megan is almost 7 and her baby teeth haven't even started to loosen yet, they are however...
