Julie, For us it was an easy decision. Sydney has very poor veins after so many IVs that it would have been almost impossible to get an IV started every 3...
Jodi I am so sorry Sydney is back in hospital again , I will be praying hard for her and storming heaven everynight with prayers until I hear from you again . ...
Hello everyone: I just wanted to let everyone know that we just got back from NIH late last night. Thank you everyone who helped me in getting in contact with...
Hello Everyone, Well, we have a question? We want to try and have another baby. We are just really scared to have another child with TTD. I know that a lot...
Katie~ That is wonderful!! YEAH!! I new that you would love them as much as I do!! They have helped so many of us out. The Children's Inn is such a warm and...
Melissa~ That is wonderful and so scary all at the same time. It took us four years to have another child. I felt like there was another child waiting in...
Your chance with each and every pregnancy is 25% chance for TTD, 50% for a carrier (like you) and 25% to not have the gene at all. The odds start over with...
Dear Melissa, I am now waitting for a baby, he his healthy. We had a lot of exam to do the antenatal diagnosis. Andréa has a photosansitive TTD, so they can...
Hello Melissa How are you ? It was so good to hear from you .I am sorry it has taken me so long to respond to you I am happy you have asked this question ,if...
How is everyone ? Hope everyone is doing well and all or beautiful children are smiling and full of love , I would love you all to welcome our newest members...
Hello everyone: We are all doing well, we loved all of the people at NIH, but it is still nice to be back in our own home. I agree with you whole heartedly...
Hello Katie Thank you for your email and your response , I would like to say how wonderful I think you are , you are amazing what you are doing for Megan , I...
Good news, Sydney is off the vent today!!! The whole tonsil thing has been a long road. We hope she will be able to come home soon. Jodi ... From: Maria To:...
suni_nanda@... Hi all and my special hello and kisses to all wonderful kids I am Sunitha. I am a new member in your group. I have two sons the older one...
hi all This is Sunitha again. I forgot to mention the names of my husband and my Sons. My husband's name is Nanda. My Sons names are the elder one is Shreyas...
Hellow Sunitha: Welcome, I too live in Michigan, close to Big Rapids area. My daughter is 6yrs and has been diagnosed for not quite 2 yrs. We were just at...
Hey there it is nice to meet you my name is Tracy and my child name is Ashlyn and she is 6 years old i hope that u can find what u are looking for good luck ...
Hello and welcome to our group Sunitha , and also welcome to your husband and children , I am so happy you have written to us and have become a member , I am...
Hello to everyone , Hope you are all doing well? I have recently updated Sammy-Joes journal and I Sammy-Joe s original webpage has been all revamped by the...
Hi everyone i hope very one is well, I have had a lot of comments about Katie and her hair from about age 1 Katie has always had a lot of hair but it looks...
Hello Irene , Children with TTD often do have overcrowding of teeth and also extensive hair problems due to the sulphar content in their hair , their hair...
Hi Maria Thankyou for replying and yes i would love to speak to you,are phone no is New Zealand 60064 04 4783785.I work Mondays to Fridays until 3.00 PM Mon...
Hello Everyone I would like to touch base with everyone and see how everyone is doing ? Sammy-Joe is well and truelly over his pneumonia , on Friday we will be...
Maria, Everyone is fine over here in ou part of the world. I'm glad to hear Sammy is over his ailments. When will you be at NIH or are you already there? ...
Hi Jerry and Bonnie thank you for your reply , How are the children doing ? How is Bonnie and how are you ? I am hoping to make the NIH trip in July next year...
Hello Everyone , I just wanted to let you know that I have been in hospital with Sammy-Joe , he has been in hospital for the last five days and has been on a...
I am sorry to hear that he is ill. Sydney finally got home a week ago from her last illness. She has spent about 6 weeks in the hospital in the past few...
Hi maria and sammy-joe I'm sorry to here sammy-joe is sick i hope everything will be ok and he comes home very soon my thoughts and loves are with you. katie...
Maria, Please know that we are praying for you and for Sammy-Joe. You will be in our thoughts and prayers. Please let us know as soon as he gets out and how...
