Hi Everyone! Sorry it's been a while. Kimberlee is doing great at the moment. She is getting so independent! It's very scary. She had her 11th birthday a...
Hi Ronda , Thank you for writing to us , I loved hearing the story about Kim trying so hard to hang upside down , that is so gorgeous , she is so determined ,...
Hi Ronda~ I am so happy to hear that things are going so well for your little family. I look foward to the day that Collin tries to hang up side down from a...
Hi Julie , that is a great Idea , Sammy-Joe is a size 16 boys or a small man size now , he has grown alot in the last two years !!! I love all of those , I...
Maria~ I am so sorry that you have not been feeling well. You will be in our prayers. Which one do you like the best? Which one phrase should we use and would...
I would love one as a parent I am size 14 women s size , I will let you decide on the phrase , let me know how much they are and Ican send you a money order ,...
Hi Everyone~ Well, like usual thing have been crazy in the Presley house hold. Regan is getting so BIG. She thinks that she is to big for her britches! She...
Dear Maria, Sorry to hear that you have been sick. Hope the boys don't get it too. It is starting to get into that lovely time of the year though. Hi Julie The...
Hope all goes well. Maybe he will finally sleep better if he can get things fixed. It is so hard when the kids can not tell us what is wrong. Jodi ... From:...
hello everyone , I would like you all to welcome Melissa to our group , Melissa wrote to me recently letting me know about her beautiful Angel Makenna that...
Note: forwarded message attached. ... Find local movie times and trailers on Yahoo! Movies. Maria, Thank you so much for writing us back with this info. We...
Please note this group has been listed in http://dmoz.org/Health/Conditions_and_Diseases/Gen etic_Disorders/Trichothiodystrophy/ additional web sites may be...
The following TTD-support poll is now closed. Here are the final results: POLL QUESTION: Is the Group helping you with information , support and comfort with...
TTD-support@yahoogrou...
May 15, 2005 10:16 pm
1126
Hey just wanted to let everyone know that matthew is on his trip at the N.I.H. He dose not see the doctors until tomorrow and we will go back home Sat night.I...
Hi everyone~ I am so excited to tell everyone that Collin's web page has been updated and looks GREAT!!!! Tuesday's child made a custom back ground just for...
Hi guys~ I wish you a wonderful and safe trip. I hope that you have a wonderful time. Be sure to take time to play. You will be seeing the doctors a lot so it...
good luck kristy and have a wonderful trip , please say hello to all the doctors at the NIH and I am sure they will help you to understand alot of what is...
Hi Julie Collins webpage is absolutely gorgeous , can you pass on all the links to where you got the background done and the little thingy that follows the...
Hi Julie, Colin's webpage is fantastic. I read a few of your journal notes. It still amazes me how alike these beautiful children are. Kim often has...
Maria~ It is Tuesdays Child. If you go to Collin's page there is a link now. I hope all is well with Sammy-Joe. You are all in our thoughts and prayers! Thank...
Rhonda , that is amazing , thats what happened to Sammy-Joe also when he was eight and intergrated into a regular school , he wandered away from the class and...
Hello everyone , I wanted to touch base and see how everyone is doing? How are all the families and please do keep our group active , please let me know if...
Enter your vote today! A new poll has been created for the TTD-support group: would you like to have a more active support group? o yes o no o not sure o...
TTD-support@yahoogrou...
May 31, 2005 10:03 am
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HI Maria and everyone~ Things have been pretty good. It seems like Collin has had more bad days than good lately BUT we are enjoying every second of the good...
Hello Everybody, We are sincerely sorry if we did not really send news from us and Andrea for weeks now . It does not mean nothing happened (far from that...)...
The following TTD-support poll is now closed. Here are the final results: POLL QUESTION: would you like to have a more active support group? CHOICES AND...
TTD-support@yahoogrou...
Jun 13, 2005 4:15 pm
1140
Hello Everyone: My name is Katie Miller, and my 5yr old daughter was diagnosed with TTD last year. First of all I would like to say thank you to Julie, after...
Welcome to our group! We have a daughter who is 2. We have had her diagnosis since she was born (almost). She is currently struggling with pneumonia, but so...
Dear Katie~ I am so glad that you joined the group!! It is so wonderful to know that there are people out there that understand how you feel. I know that I...
