Hey was just going to let everone know Matthew's N.I.H. visit has been set up.It is fly out may the 15th and come back the 18th or 19th.I was going to drive...
Kristy, We just got back from NIH and everything went well. I'm sure you and Matthew will enjoy your trip. If you are meeting with Debbie Schmidt, she is the...
Kristy, By the way, we were just out there on March 22 thru the 26th, so please give our regards to Debbie and the rest of the staff. Thanks, Jerry ... From:...
Hi Kristy , I am so happy for you , I am glad this is happening early in Matthews Diagnoses , dont worry about flying Matthew will enjoy it , we took eighteen...
Hi everyone~ I have not written in a while and for that I am sorry. Things have been a bit crazy around here. Collin has been in a lot of pain. I just wanted...
Hi Krisy~ I am sure you will have lots of fun! We loved our visit when we went. We are going to go back to NIH in August. The Children's Inn is lots of fun as...
Hi Julie and everyone, , I think its a great idea what you and I are doing with sending cards and photos , gifts and stickers to the children , we could call...
Just wanted to let everyone know that Sean had a great time spending Easter break in Las Vegas. He absolutely loved the airplane. I'm sure you will all get a...
Could everyone please fill in the Database folders , one is for Siblings in the group and the other is for the child that has TTD , XP or cs , please fill in...
Enter your vote today! A new poll has been created for the TTD-support group: Do you think the medical systems in your country offers and provides enough...
TTD-support@yahoogrou...
Apr 13, 2005 6:56 am
1084
please vote in our polling section , I am interested to listen to your views on each choice . Maria...
Hi Tammy~ I wish I would have known that you were so close. I am glad to hear that you all had a wonderful time. There is a TON to do there. Did you take Sean...
Hi Everyone~ I just wanted to drop a quick note to tell everyone how grateful I am for each one of you and for this support group. It is so great to know that...
Sorry that it has been so long since I last posted but just wanted to tell every one what has been happening with Brianna. She has come a long way. She will...
Hi Sharon! It sounds like Brianna is doing really well! I hope that you don't mind my asking, but what things are you doing for Brianna's hair to help it not...
Sharon~ That is so wonderful that Brianna is doing so well! I am so happy for you. I know that you must be so proud of your sweet daughter! WAY TO GO...
I am so pleased to hear from you again , it has been awhile , it is so great that Brianna is doing so well , I hope when you write to us (often ) it will...
Hi Julie , add your details to the Database files and please everyone dont forget to include postcode when you would like your children to receive Happy Mail ....
I have been using a product called Nioxin. They use it for people with thinning hair. It can be expensive but you only need a little bit goes a long way. My...
Hi everyone It has been awhile since i have been online. Just thought i would send a quick noteto get everyone up to speed on what is going on these days. ...
Kelly MacLeod
kelly.macleod@...
Apr 17, 2005 12:51 am
1094
Hi kelly , I am so sorry to hear you have had such a horrible time lately and that Jake and you were both so sick , I hope and pray that things improve for you...
Hi Sharon , could you please give us the detail s to where we can write to the company to order some of the product , I dont think it is available here in...
Hi Mandy, Have you had the childrens hearing tested? My daughter Tara, aslo at times seems confused and unattached from the group. I belive this is because...
Hi Maria, Sorry it has taken me so long to write back...life sometimes gets crazy. Tara is still doing well, but my father is not, I spent the past week in...
Hi Karen , I am so sorry to hear about your dad , hope things are on the improve . The National Institute of Health is in Maryland Bethesda and the contact...
Hi Jodi , thank you for your email , I loved the photo of Sydney she is absolutely gorgeous , please send it to my private email so I can save it in my...
I forgot to add that I also use an overnight repair treatment about once a week on her hair. I use Pantene PRO-V overnight repair, intensive treatment. It...
Hi Everyone~ Jodi~ Thank you for the information about all of the hair products. We will have to try some of them. We have been using dove shampoo. His...