Hi Megan

Your timing is perfect. Jake just got home from the
hospital Yesterday (sun). Last Tues (the 20th) Jake
underwent a right proximal femur varus osteotomy and
adductor release.

He is a fair amount of pain, but it is being managed
reasonably well. The doctor did not use a spica cast. AT
the time the hospital used a wedge, which did not work, as
he twisted himself so that the right leg was not adducted.
At home for the last year and a bit, we have been using a
rhino brace at night. Jake has not been able to tolerate
the brace for more than a couple of hours. The hospital has
taken that brace and made a couple of modifications, to it,
and we are using that for him.

The pro to this is that he was already familiar with it, the
con is that it has to be removed everytime we have to do a
diaper change. That being said, i think with the diapering
it gives him an opportunity to move his limbs (we do it) to
put him in and out of the brace, maybe allowing for some
muscle movement.

We were to stay in the hospital for only a couple of days,
but he needed oxygen until Sat, and he really didn't eat or
drink until Sun.

You may want to look up Maple leaf brace, that was the brace
the doctor prefered to use, but was not available at the
hospital we were at. Good luck to you, i will keep everyone
up to date.

Kelly

> Hi All -  hope you are all well!
>  
> My 8 year old daughter Arabella (who has TTD) is having
> 'bilateral varisingde-rotation osteotomy of proximal
> femur' in November. (which means her hips are dislocated
> and they have to cut the bones and place steel pins and
> plates in, to keep them in place).  
> Has any of your wonderful darlings had this surgery
> before?  Since the Doctors confirmed
leukodystrophy/ white
> matter disappearing  last year she has regressed her
gross
> motor skills and her hips have slowly dislocated.  The
> surgery apparently takes 4 hours and she will be in pain
> for sometime.  They don't think they will put her in a
> body cast (spica), I hope not because it will be bad for
> her skin.  
> If anyone has experienced this I would love to hear how it
> all went.  
> Thank you.
> Kind Regards
> Megan
> (Brisbane Australia)
>
>
>
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