This is a place for families as well as patients who are looking for information, contact and support for people living and dealing with trichothiodystrophy. This group is founded by parents of children living with this disorder and would like to share and support other families living with the same. As well we would like provide any helpful information to those who provide care or interact with any persons facing this disorder. We are not doctors or specialists, we are concerned parents who want to provide the best we can for our children.