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TMAUcure · Australian Trimethylaminuria Foundation
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Messages 136 - 165 of 165   Newest  |  < Newer  |  Older >  |  Oldest
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165
Hi Kim, I'm sorry to hear that Kylie had Kawasaki Disease. That must have been so scarry for you. My son didn't have this, but he did have a cyst under his...
mpdela
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Nov 21, 2009
11:43 pm
164
i'm not sure where to start... my daughter kylie will be 1yo in a few days and she is a pretty stinky little girl. i first noticed it when she was 7 mos old...
onesmellybaby
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Nov 10, 2009
9:19 pm
163
Hello Australian members, Have you heard of the TMAU Store yet? At no cost to you , you can support the Australian Trimethylaminuria Foundation simply by...
Blue Sky Collector
blue_sky_col...
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Oct 1, 2009
10:41 pm
162
Hi Maggie Sorry I haven't got around to answering your previous email. I've been away on business up in far north Queensland near Cairns. The dust followed me...
Rob Brown
robbrownsyd
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Sep 29, 2009
1:07 am
161
Thanks Maria for your support. I had good old fish and chips from the local last night and I thoroughly enjoyed it (sorry to rub it in). I was also able to...
Aussie
aussiefamilyof4
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Sep 29, 2009
12:38 am
160
Hi Rob   A while back someone requested information about the  Sheffield Hospital in England UK where they test for tmau. I email Dr Gillett asking if I...
maggie
maggs141
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Sep 28, 2009
7:02 pm
159
That's OK, any test is better than no test at all. You are very brave to go through the process of testing even though it makes you feel nervous. GOOD LUCK! ...
mpdela
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Sep 28, 2009
10:37 am
158
Hi Aussie, Best of luck to you. I understand your ambivalent feeling about testing and receiving a diagnosis either way. This condition is most certainly...
mpdela
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Sep 28, 2009
10:35 am
157
Sorry, I meant to say urine sample not blood sample. I'm sooo nervous :) Aussie...
Aussie
aussiefamilyof4
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Sep 28, 2009
7:53 am
156
OMG!! I just got a call from Dr McGill's assistant. He has just got back from overseas and is booked up for the next 9 months. So, rather than wait that long...
Aussie
aussiefamilyof4
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Sep 28, 2009
7:12 am
155
Okay, thanks Blue maggie ... From: Blue Sky Collector <blue_sky_collector@...> Subject: Re: [TMAUcure] Philanthr. AU: 11 of the grants are attached here...
maggie
maggs141
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Sep 27, 2009
2:12 pm
154
HI Maggie, Just need to get a running list of which ones are applicable by reading the details of each. Basically run through the search on the website...
Blue Sky Collector
blue_sky_col...
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Sep 27, 2009
2:08 pm
153
Hi Blue Sky Sorry, but I'm not quite sure what this is all about. Do you want us to email these organisations and ask them for grant money to go towards Dr...
maggie
maggs141
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Sep 27, 2009
10:55 am
152
This looks like a possibility: Australian Rotary Health Research Fund Address PO Box 779 Parramatta NSW 2124 Australia Contact Person Ms Joy Gillett CEO Phone...
Rob Brown
robbrownsyd
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Sep 26, 2009
5:57 am
151
This is easier, just to get an idea. Just a quick look at 11 grants which searched using "medical research Sydney" PDF is attached. Please make sure to start a...
Blue Sky Collector
blue_sky_col...
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Sep 26, 2009
5:35 am
150
Maybe too general? The Raymond E Purves Foundation Address Suite 4, Bennelong Office Suites, 3B Macquarie Street, Sydney NSW 2000 Australia Contact Person Mr...
Blue Sky Collector
blue_sky_col...
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Sep 26, 2009
5:08 am
149
Blue: This one is in Victoria but a good match else-wise. Are the areas that mutually exclusive? My notes in this color. L.E.W. Carty Charitable Fund Address...
Blue Sky Collector
blue_sky_col...
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Sep 26, 2009
5:05 am
148
listed as Victoria, wonder if its limited to there only... Rose L McGauran Charitable Trust Address Perpetual Trustees Australia Limited, GPO Box 4172 ...
Blue Sky Collector
blue_sky_col...
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Sep 26, 2009
5:04 am
147
2. Ronald Geoffrey Arnott Foundation Address Perpetual Trustees Australia Limited, GPO Box 4172, Sydney NSW 2001 Australia Phone (02) 9229 3951 Mobile Phone...
Blue Sky Collector
blue_sky_col...
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Sep 26, 2009
5:04 am
146
Hello fellow TMAU cure seekers. The ATF now has access to the "Philanthropy Australia" directory of Australia-focused grants, located at: ...
Blue Sky Collector
blue_sky_col...
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Sep 25, 2009
3:05 am
145
Hi Rob Yes, Brown is a very popular name but there are some really good web sites where you can plan your family tree-some sites are free and some you have to...
maggie
maggs141
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Sep 23, 2009
5:57 pm
144
Hi Maria Thanks for your kind words and ditto!   I enjoyed our conversation. I think you and I are on the same wavelength regarding protecting our children...
maggie
maggs141
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Sep 19, 2009
12:02 pm
143
Yeah, that's right, Blue. And this project could help ameliorate global warming. Did you know that methane is a much more pppppotent greenhouse gas than CO2?...
Rob Brown
robbrownsyd
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Sep 19, 2009
7:23 am
142
Hi Maggs Yes, I'm sure there are some Browns in England and Scotland to whom I'm related but goodness knows how one would go about finding them because it's...
Rob Brown
robbrownsyd
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Sep 19, 2009
5:07 am
141
Hi Maria, I thought you came across so nicely on the video and I'm looking forward to meeting you and the others in person. I have now made a commitment to be...
Rob Brown
robbrownsyd
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Sep 19, 2009
5:04 am
140
What a nice way of putting it Blue! :) Aussie...
aussiefamilyof4
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Sep 18, 2009
10:36 pm
139
Ingesting Methylophilus methylotrophus is probbbbbbably best to be initially done in the ATF study under Dr. C's care. However, I have to be honest, I...
Blue Sky Collector
blue_sky_col...
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Sep 18, 2009
5:46 pm
138
Hi Maggie, Rob, Blue, Aussie, and all! Yes, I also still have a high from the meet-up, and it feels great! Even though there were only 5 of us who attended...
mpdela
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Sep 18, 2009
1:40 pm
137
Hi Blue  I remember those chocolate bars. The were quite difficult to eat because of the shape, the points used to hurt the top of my mouth so I gave up...
maggie
maggs141
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Sep 18, 2009
12:00 pm
136
Hi Rob Well, I’m definitely going to hold you to that!  In fact I’m keeping your email and I’m going to sent it to you next year just to remind you how...
maggie
maggs141
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Sep 18, 2009
11:45 am
Messages 136 - 165 of 165   Newest  |  < Newer  |  Older >  |  Oldest
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