Hi Kim, I'm sorry to hear that Kylie had Kawasaki Disease. That must have been so scarry for you. My son didn't have this, but he did have a cyst under his...
i'm not sure where to start... my daughter kylie will be 1yo in a few days and she is a pretty stinky little girl. i first noticed it when she was 7 mos old...
Hello Australian members, Have you heard of the TMAU Store yet? At no cost to you , you can support the Australian Trimethylaminuria Foundation simply by...
Hi Maggie Sorry I haven't got around to answering your previous email. I've been away on business up in far north Queensland near Cairns. The dust followed me...
Thanks Maria for your support. I had good old fish and chips from the local last night and I thoroughly enjoyed it (sorry to rub it in). I was also able to...
Hi Rob  A while back someone requested information about the  Sheffield Hospital in England UK where they test for tmau. I email Dr Gillett asking if I...
That's OK, any test is better than no test at all. You are very brave to go through the process of testing even though it makes you feel nervous. GOOD LUCK! ...
Hi Aussie, Best of luck to you. I understand your ambivalent feeling about testing and receiving a diagnosis either way. This condition is most certainly...
OMG!! I just got a call from Dr McGill's assistant. He has just got back from overseas and is booked up for the next 9 months. So, rather than wait that long...
Okay, thanks Blue maggie ... From: Blue Sky Collector <blue_sky_collector@...> Subject: Re: [TMAUcure] Philanthr. AU: 11 of the grants are attached here...
HI Maggie, Just need to get a running list of which ones are applicable by reading the details of each. Basically run through the search on the website...
Hi Blue Sky Sorry, but I'm not quite sure what this is all about. Do you want us to email these organisations and ask them for grant money to go towards Dr...
This looks like a possibility: Australian Rotary Health Research Fund Address PO Box 779 Parramatta NSW 2124 Australia Contact Person Ms Joy Gillett CEO Phone...
This is easier, just to get an idea. Just a quick look at 11 grants which searched using "medical research Sydney" PDF is attached. Please make sure to start a...
Maybe too general? The Raymond E Purves Foundation Address Suite 4, Bennelong Office Suites, 3B Macquarie Street, Sydney NSW 2000 Australia Contact Person Mr...
Blue: This one is in Victoria but a good match else-wise. Are the areas that mutually exclusive? My notes in this color. L.E.W. Carty Charitable Fund Address...
listed as Victoria, wonder if its limited to there only... Rose L McGauran Charitable Trust Address Perpetual Trustees Australia Limited, GPO Box 4172 ...
2. Ronald Geoffrey Arnott Foundation Address Perpetual Trustees Australia Limited, GPO Box 4172, Sydney NSW 2001 Australia Phone (02) 9229 3951 Mobile Phone...
Hi Rob Yes, Brown is a very popular name but there are some really good web sites where you can plan your family tree-some sites are free and some you have to...
Hi Maria Thanks for your kind words and ditto!  I enjoyed our conversation. I think you and I are on the same wavelength regarding protecting our children...
Yeah, that's right, Blue. And this project could help ameliorate global warming. Did you know that methane is a much more pppppotent greenhouse gas than CO2?...
Hi Maggs Yes, I'm sure there are some Browns in England and Scotland to whom I'm related but goodness knows how one would go about finding them because it's...
Hi Maria, I thought you came across so nicely on the video and I'm looking forward to meeting you and the others in person. I have now made a commitment to be...
Ingesting Methylophilus methylotrophus is probbbbbbably best to be initially done in the ATF study under Dr. C's care. However, I have to be honest, I...
Hi Maggie, Rob, Blue, Aussie, and all! Yes, I also still have a high from the meet-up, and it feels great! Even though there were only 5 of us who attended...
Hi Blue I remember those chocolate bars. The were quite difficult to eat because of the shape, the points used to hurt the top of my mouth so I gave up...
Hi Rob Well, I’m definitely going to hold you to that!  In fact I’m keeping your email and I’m going to sent it to you next year just to remind you how...