Hi Everyone, I've been reading with great interest the posts of late. A lot of people here have the mind that SJS or TEN is an "allergic reaction". Although...
Hi Woody! Thanks for explaining. /Elisabeth ... reaction". ... stimulates ... into ... in ... chemicals – ... symptoms, ... the ... even ... one ... eyelid. ...
Yes thanks so much! For everyone's comments on here! We certainly need to get the word out about SJS......!! Cheri ... From: Elisabeth from Sweden To:...
Hey! Sorry that I haven't posted much these last few months - but I have kept up with reading the posts. I'm sorry that you are still having promlems -- I'm...
... thanx Deanna ... reaction". ... stimulates ... into ... in ... chemicals – ... symptoms, ... the ... even ... one ... eyelid. ... and ... your ... ...
Herpes Simplex Virus One. There are many types of the herpes virus, and by age fifty, 90% of the population in the United States have it. ... then ... Those ...
... herpes virus and he said yes it came back negative. So now I am really confused. Any suggestions as to what I should be asking his pediatricin? thx...
Hi Deanna and Woody, I agree that herpes virus can be a contributing factor in SOME cases but it is not the trigger as many SJS patients are negative for this...
... though. If Braydon tested negative is that a for sure or do the tests also give false negatives? thx Deanna ... contributing factor in SOME cases but it...
I have been reading all the posts lately & have seen that some people are allergic to Sulpha. My son has been having homoeopathic Sulphur Iodatum for years,...
I hear what you are saying - and I understand your need for concrete answers. There are no concrete answers - and even the physicians stress that they don't...
I know I called and asked our pharmacist a lot of these questions.........if you don't get your answer here they are pretty good at filling you in! Cheri ... ...
Thanks Woody - I'm not disagreeing with you when I say Herpes is a factor and not the only cause. I do know that Acyclovir is extremely successful in treating...
Just reading "and I understand your need for concrete answers" is comforting for me. If just one doctor had said those words, in that way. . .well, it would...
Woody, Are you saying that anyone who has SJS has herpes? ... From: Woodrow <cooltampasir@...> Subject: [StevensJohnsonSyndromesupport] Re: Herpes / SJS ...
If you have ever taken a logic class in college - it's the old word problem that I used to hate; Problem: True or false: SJS survivors have herpes / Timmy is a...
Thank you for all your knowledge! We are just home a week from the hospital.....my sons blisters are all starting to fade and he is slowly gaining his...
I agree with you. That was the first time I have heard of Herpes being involved and it surprised me. I know with my second time I cried because I knew what was...
Woody- I have had 3 bad attacks of shingles since age 18, and had chickenpox as a child. No wonder I have SJS if the two are linked, as shingles is also...
My son test for herpes was Negative but the pneumonia was positive........does that mean we don't need to worry so much about the herpes? Cheri ... From:...
My second was less severe because I knew what it was and had a better doctor. I had a shot of augmentin and within 24 hours I was hospitalized. I believe it...
HI Cheri, I am so glad Seth is home. I know that Seth's ophthalmologist is experiencec with SJS so the main symptom to watch for in Seth's day to day is...
oh thank you so much for this info! his nails are 'blistered' right now and we are watching for that.......good to know they DO grow back if he looses them!...
... adults anyone over age 30 has probably had chicken pox as a child. Now in Canada our children are immunized for chicken pox as baby's. Braydon I beleive...
It is so hard having to deal with a doctor who knows absolutely nothing about sjs. I just went to this rheumatologist, my primary doctor referred me to, she...
My daughter's rheumatologist has seen cases of SJS and he actually told her to "get a second opinion" for her daughter Valerie's lung condition. He knew a lot...
My son, Jake had Aciclovir & responded very well to it. I did post a reply the other day, concerning that I have read that people are allergic to sulpha. I was...
to answer your question. Yes, that  drug is a sulfa based drug. My niece works in a pharmacy, and I just phoned and asked her. I hope that helps you.  ...
