Dear Spenser and Debbie, Thank you so much for your advice. I will keep in touch. Regards Gaurav [Non-text portions of this message have been removed]...
The SAA is producing an educational video for training EMS and other "First Responders" to better deal with people with AS. They are looking for real pictures...
Wow, it's almost February!! Come join your fellow Spondyvilleans for a couple of friendly, supportive chats this (and EVERY) Saturday at 10AM Eastern time (7AM...
Hi Gaurav! Alcohol consumption should be limited while on Remicade. It is allowed, but not encouraged or recommended. People can sometimes develop antibodies...
I am 46 years old and on January 2nd I had my 34th dose of Remicade. I get it every 5 weeks and I do very well for about 4 weeks. The last week is a little...
Dear Friends, I am a 44 year old male diagnosed with AS 13 years back. I got my first dose of Remicade in Nov 08 and immediately felt miraculous relief and was...
I will pass on the jra-list. They did get the diagnosis from a pediatric rheumatologist. Even the doctor wrote me thanking me for getting the child to her....
jra-list@yahoogroups.com This is a wonderful list for parents of kids with Juvenile Arthritis. My son has spondy, diagnosed at age 12. Onset was in one hip....
Hi all. I was looking for some possible help for a mother with a 5 year old just diagnosed with JRA. They came to my perthes group a few months ago after one...
Spondys slip and sliding daily, Icy sidewalks, snowy melee, Careful strides though Spondys make, Sometimes end as a mistake, But if you fall down, right to the...
Come join your fellow Spondyvilleans for a couple of friendly, supportive chats this (and EVERY) Saturday at 10AM Eastern time (7AM Pacific) AND/OR at 5PM...
LOL, Michael. I'll put on my thinking cap and see if I can come up with a few nominees for the Whackys this year. Anyone else have someone they're iching to...
Yes, it's that time of year again. Time for the 2nd Annual Spondyville Whack-a-Doc Awards!! These awards, also known as "The Whackys" are given to deserving ...
Tyler, the link was a bit long and the second line of it wasn't highlighted. Try this: www.phillymag.com/articles/top_doctors_my_daughters_29000_appendectomy ...
Michael, I could not get the article to come up either via the link or by cut and paste. Could you check the URL? I'm interested in reading this article but...
Spondyvilleans, change is coming ... and so are this weekend's chat sessions! Come join your fellow Spondyvilleans for a couple of friendly, supportive chats...
I did a little freshening up of the Spondyville Main Street page. Please take a look and let me know what you think: http://spondyville.com/Page14.html ...
I finally added a webpage to the Spondyville.com website for the "Spondyville is a State of Mind" map that Tyler started a while back. It's now embedded on our...
Yes, you're right....the type of shipping container and contents vary with the seasons in your area. The medication must be refrigerated, but not frozen. The...
Hi Vickie~ Absolutely call your insurance provider. You may want to also ask the pharmacy if this is a six months Rx instead of three. I know that I've heard...
... get an injection every 2 weeks so the 3 boxes lasts 3 months. When its time to refill, I call the pharmacy and then the pharmacy calls my rheumy for...
How many injectors did they give you the first time compaired to the secound. I was told it would cost me 1500 per kit and my insurance would cover the first...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
