Y'know, even when I suspect a person who has recently joined is a spammer, I try to give them the benefit of the doubt. After all, even a spammer could get AS....
Hi all, I've been here before...about two years ago. My doctors at that time suspected that I had AS - but now it's been confirmed by fusing of my sacroiliac...
Great news Faith! We all get busy in amongst having our bad days! So no worries on the time between updates! The important thing is you're updating us and...
Woo hoo!!!!! :) We want pictures! :) Samantha spenser23as <no_reply@yahoogroups.com> wrote: Don't look now, but a Snowspondy may be coming to help you...
And that you did Ty! :) Boy, these e-mails gave me a good laugh too! We know how to start a chain reaction, huh?! LOL!!! :) This ran like a freight train!...
Hi Gundy! Welcome back. The emotional roller coaster you describe is one a lot of us have been on, so we can relate to what you're going through. Dealing with...
Just venting some. Everything that could go wrong did. No MRI thanks to my insurance. No Brace thanks to my insurance. Both are not medicaly needed. Boy did...
gundy, at least now your pain is confirmed. you knew it all along, but now that the doc's are finally caught up you have proven to them that your pain was...
Insurance companies ... GRRRR. Sorry you had such a vexing day. Tyler mentioned "letter(s) of medical necessity" in her post the other day. That is something...
I wonder if pain in my neck and right side of my chest are all part of this. It seems when my neck gets stiff, the right side of my chest hurts bad along the...
Brian, ouch. I understand your frustration. These people who do not have these problems can really upset those of us who have these conditions. Now I...
OK, since we're on the subject of tailbone fractures, I did it twice. Took a long time to heal and not hurt anymore. The first was when I was 8 and the...
Linda, a bone scan of the area might be quite interesting. Mine has finally settled down. When it happened the second time around I knew more about doing...
and that is what I experienced this time around after the second coccyx fracturing. Man oh man it has been really horrible, with just one tiny bump..... Maggie...
Hi all, Just wondering how common this disease is. I know the website said something like 0.01 or something like that - but I'm horrible at math and can't...
Figures vary, of course, but ... according to the SAA, there are about a million people in North America with Spondylitis. While nowhere near as common as...
Thanks, Maggie, I just don't understand why it didn't hurt for so long and started again. Definitely something to mention to the Dr. tomorrow. Had a bone...
Linda is the weather in your area suddenly humid? That might be a reason for the change. Maggie From: Linda Estes Sent: Wednesday, June 04, 2008 4:11 AM To:...
Wow! Very interesting. Hopefully this will force a change in the awareness level of our doctors of this disease, the many facets of it and treating us....
Oh, yes, but lived most of my life in this general area. Yesterday was 80 and not humid and I felt great. Today is 60 with rain and what a huge difference!...
Normally I notice the difference prior to the rain and the rain normally brings relief. From: Linda Estes Sent: Wednesday, June 04, 2008 8:01 AM To:...
That did feel better today, but my knees are worse. Can't win. I remember one med student asking, "Aren't pain free days great?" I looked at him and said I...
Spondylitis Educational Seminar in Denver, CO A Free SAA Patient Seminar will be held on Saturday, June 21, 2008, in Denver, CO, at the Doubletree Hotel...
Hey I am still waiting after 20 years From: christina price Sent: Tuesday, June 03, 2008 11:40 AM To: Spondyville@yahoogroups.com Subject: Re: [Spondyville]...
Spencer - I have learned a great deal from this site since I joined 4 months ago.. Im the lady with psoriatic arthritis and spondolosis and have been on...
... joined 4 ... and ... should ... but I ... to ... Hi Vicki, I know this was addressed to spencer - but I found this site that you might find helpful:...
Thanks Michael, I've been waiting for the date & location for this seminar, since the SAA sent us a letter saying it was happening--sometime--lol Well we're...
Hi Vicki. Well, now that Gundy has provided the one link that I was going to offer, I can only add that I know there is a very small support group specifically...
I think I'm in the same boat as you. AS has been ruled out but psoriatic arthritis and spondylitis is confirmed. The main difference is exercise. I've been...