Ah, where do I start? I guess with Hello, I just joined the group, hoping to get some first hand accounts of living with AS. My son, who is 15 years old, has...
Hi Karen, Welcome to Spondyville. Sorry to hear about your son, but glad you found us. About 10% of people with AS are HLA-B27 negative. If you feel your son...
One more thing; A lot of people have had good results from Enbrel and the other biologic drugs. Sometimes one works better for an individual than another. I...
Hi Karen! Welcome to the group. I'm 37 and I started having problems as young as 13. I'm glad you found this group because everyone is so very helpful....
Hello All, First I want to say thank you to everyone who responded to my e-mail. I haven't been able to type until today. Yeah!!!! I'm feeling a lot better...
I just joined the group and thought I should introduce myself. My name is Lisette and I was diagnosed with AS when I was 27. It seems my SI joint issues were...
Hi Lisette. Welcome to Spondyville. Sorry to hear about your experience with the chiropractor. I had a similar one many years ago before I knew I had AS....
Hi Lisette...welcome to the group. Sounds like you know how to have fun (LoL) I love that you were on a fox hunt, but sorry about the accident!! I'm an animal...
Hi Karen: I can't imagine worring about this disease with your child...It's bad enough that we as adults have to deal with it. I wish you guys luck with the...
Hi Lisette, My name is Carla Im a 44 yr old female diag with AS just recently but had symptoms about 4 yrs. Or more. It all kinda started after surgeries...
I want to add my greeting to Lisette. I probably had symptoms as a teenager but was not diagnosed until I was 51 years old. Like Carla I was fobbed off and...
I have AS, as does my 17 year old daughter. We are both HLA-B27 positive. She frequently wants me to massage her back; we use a moist heating pad, and lidoderm...
hi Karen- I am newly diagnosed with AS and fairly young (24). I have had a significant improvement from not eating foods in the nightshade family (tomatos,...
Food allergies, (such as reactions to the nightshade family), are quite separate from AS, although sometimes people can have both. Avoiding nightshades when...
Karen V HI... my son was diagnosed at age 12 with spondyloarthopathy. SI joint involvement is a late sign of the disease. Most kids present with large joint...
Nightshades are inflamatory. People with many forms of arthritis may react to the alkaloids causing more inflamation. Diet is connected to how the rest of your...
Hi KNB Some of us have reactions to items in the nightshade group but for reasons other than inflammation. I do not know of any study that has proved that...
Thanks Maggie, that was my point. I don't deny some people get relief from avoiding nightshades. However, there is no scientific evidence that avoiding...
hey there- You're putting words in my mouth. I never said nightshades cause arthritis, I said "people with many forms of arthritis may react to the alkaloids...
"For years, there has been a myth that states the elimination of nightshade vegetables such as tomatoes, potatoes, eggplant, and peppers will cure arthritis....
People can have food allergies AND have AS. Some people have AS and no food allergies, some people have food allergies and don't have AS. Your food allergy is...
Hi KNB Quite simply, I am one of the people who cannot eat either tomatoes or cucumbers because of the high acid content. They make me vomit. Food allergies...
I appreciate all the feedback including a few who contacted me privately regarding my son's recent diagnosis with AS. I DO understand that what may work for...
Karen, you sound like a wise woman. :-) You've perfectly described the problem with anecdotal evidence. The ebb and flow nature of this disease makes using...
Oh Karen! I got a REALLY good laugh out of this! I agree with you wholeheartedly! So succinct! :) I wish you and your son all the best! What Spenser...
Hi Karen, I say a big welcome for your healthy skepticism of the diet that is promoted on the KickAS website. I have severe doubts about the corelation between...
If everyone will look back at knb1228's first email you will see that he/she DID NOT ONCE say these items caused arthritis or AS, nor did he/she in anyway...
It was not meant as an attack, nor should it be perceived as one. It was meant simply to clarify that in the context of AS, nightshades have no proven effect. ...
I have finally figured out why I could receive your posts, even reply to them but never begin one. So here I go.I was wondering if others have run into the...
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