Just a reminder, the SAA is holding Free Educational Seminars in New York City on Sept. 29th, 2007, Seattle on October 13th, 2007 and in Atlanta on Feb. 9th...
Hi all, I'm taking remicade for Ankylosing Spondylitis, however, I've not had any fusion yet. I've been experiencing harsh, dull headaches on the top of my...
My first impression as I was reading your post was that the problem might be of a neurological nature. Unfortunately, your neurologist's opinion seems a bit...
Hi Everyone! I'm having some serious problems with eating and pain in my stomach, chest & back. I just had an endoscopy done (they did a biopsy and I'm...
Hi there, I have been experiencing the same thing and what I noticed is the effect of light and stress on my eyes and in life that cause it. The pain becomes...
Hi Andy~ I do not experience exactly the same thing you are referring to (I also take Remicade), but for the past several months I have been experiencing ...
I will be at the New York Seminar on Sept 29, 2007. If any of you want to meet up before and go together.. I'm game. E-mail me if anyone is interested! See...
Hi Samantha. The esophagus can be involved in Inflammatory Bowel Disease, which is one of the Spondylaorapathies. Often the diseases in this category of ours...
It would be fun if we all sat together as the Spondyville contingent ... like at a political convention only with a Spondyville sign ... or buttons. LOL ...
Yeah The Turtle or something like that should be our symbol or just a big "!" for all our frustrations witht the medical community lol Any ideas for our THEME...
Hummm had exactly the same symptoms. Would come off the road and all I could eat was toast and a mild vegetable soup for 3 or 4 days. Then I didn't want to eat...
Hi all, I have read many posts about people having Humira or Enbrel not last. I was wondering if there is anyone that one of these has lasted for more than a...
Yes I have been on Enbrel for 3 years now and it is still working great for me I am doing better all the time. I do have sometimes like this weekend that I run...
I've been on Enbrel for over 3 years. It's a very individual thing--I don't know why it works for me and not others, I'm just glad it at least works for some,...
Hello everyone, I would love to go to the seminar. NYC is only a short hop from Bermuda, so flying there would be no problem. However, the cost of a night at...
This IS a wonderful topic. Thank you, Spenser23as, for giving us the opportunity to explore it. I must agree with the points raised do far, especially about...
"Does anyone know the specific route I'd have to take to get there?" Yes I do. Email me privately and I will send you some options. ( Spenser23@... ) ...
Laurie Savage left for Prague last Friday, I believe, but she took as her travelling companion, our own roving Spondyville Ambassador (and 2008 Presidential...
I'm so impressed with everyone in here's ability to continue living, going to work, etc! It's rough sometimes, and I am in the beginning stages of AS, so I...
Yes, people can be cruel sometimes. Mostly out of ignorance, as opposed to intentional cruelty. You learn to deal with them. I use humor, or, depending on the...
Thank you all for the answers. My doctor has wanted me to go on one of them for almost a year. But I wasn't sure I was ready for only one "golden" year. But...
I agree with the PT ....a tomato. ;) But seriously, you will find some amazing people here. I found Spondyville...Wow..about 2yrs ago or so now. Newly...
After being on Enbrel for 10 months my doctor decided to add Arava, which is in the same family with MTX. I am finally getting some relief. The pain is still...
SEPTEMBER 8 ... On this day 33 years ago, President Gerald Ford pardoned Richard "I'm Not a Crook" Nixon for his part in the Watergate affair. You don't need a...
Hi Samantha: I have lots of stomache problems that cause collicky type pain. I'm not sure that it's the same thing you're having or not. My discomfort started...
A tomato would be good.... Also, maybe next time you can look him square in the eye and say something like, "aren't you grateful you don't have an auto-immune...
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