hi kelly, i know what you mean. since i gave birth to my second baby, 2 years ago, my flares have gotten consistently worse. i also have fibromyalgia, and it...
Hey all, I want to know if any of you have fusing in your teeth/root area? After a long bout of infection (the infection is in my lower jaw area sitting on top...
Wow, Gigi, now that's a new one on me. I know that I have had to undergo several roots canals in the past couple of years, much to my dismay and discomfort,...
Tyler, I couldn't, wouldn't, believe it until my dentist showed me on the xray. You can definitely see the bone growth. He told me it is "normal" to have bone...
hi kelly, i have been in a flare for well over a year. it is the longest one to date. the fatigue is consistently high while the pain level and location of the...
Mar 2 - Banana Cream Pie Day Mar 3 - Holi Day (Indian Festival of Colour) Mar 4 - Hug a GI Day Mar 4 - Purim Mar 5 - Say Hi to Mom Day Mar 5 - Shushan Purim ...
Well gosh, Gigi, if you have bone growth maybe you'll never need bridges! Wait long enough and all your teeth will growth together and you'll have really...
Last call for Spondy musicians and songwriters for inclusion in our first Podcast, which I am putting together in the next couple of weeks. I'm going to...
Gigi, I have never heard of that condition either, and if long-time ASers like Tyler and myself have never heard of it, it MUST be rare. I will go look it up...
The first weekend in March?! Well, before you get to March forth, you have to get past March third, and that's a Saturday, and if it's Saturday, it's the...
The SAA has just launched a new website for teens with spondylitis. It's just starting up, but the SAA hopes it will become a place online where teens dealing...
Hi everyone Jake and I went to camp Boggycreek last weekend ( a holeinthewall camp) and it was wonderful. Jake was in a lot of pain but was singing dancing,...
I was on the same boat too. About the meds. I was on Feldene, he double the doesage for me. Then on Bextra, that was wonderful until that was pulled. My rhemy...
Thanks for the response. I have been away from the computer alot lately, so if I'm slow getting back, please forgive me. Been very busy. I'm hoping the...
That is so great Stacy!!! Pia stacy wexler <stacywexler@...> wrote: Hi everyone Jake and I went to camp Boggycreek last weekend ( a holeinthewall camp) and...
WOW! That is good news indeed, Stacy. I'm so glad to hear Jake had a great time and was able to participate in fun activities just like other children!! That...
Let me add my congrats as well, Stacy! Finding other kids his age who share the same challenges, should make Jake feel a little less alone in his struggles and...
Please understand that MRI's don't tell the doctors much about AS. Bone Scan do! MRI are very expensive. tests. But a total Bone Scan will tell the doctor what...
That is AWESOME stacy!!! Jake seeing and being able to associate with children with the same problems will be great for him... Just like us adults having a...
Hi I'm new here. I was diagnosed with AS a few months ago and just recently started on Enbrel. Since I can't find a support group locally thought I would try...
Hi I'm new here. I was diagnosed with AS a few months ago and just recently started on Enbrel. Since I can't find a support group locally thought I would try...
Welcome to the group. You will find a lot of supportive persons with great information. Enbrel has made a significant impact on my AS, and I am hopeful it be...
Welcome to Spondyville, Bklyngirl, I'm glad you found us! You're right, at the moment there is no support group in New York City, (that I know of), although...
The weekend's chat is dedicated to Spondyville Town Handyman, "Pops" DeMauppassant, who, this weekend, will, for the umpteenth time, be climbing that rickety...
... locally ... Hi..I'm new, too. I will take my fourth autoinjector shot tomorrow. There is no support group in my area, but I hope to start one soon with ...
Thank you all for you posts. I should tell you first I'm originally from Brooklyn..will always be a Brooklyn girl at heart. I now live in Brick, NJ. I am...
I felt the same way about medications and Enbrel, in particular. But after talking with several folk involved with the Spondylitis Association, I anxiously...