yeah-me, too. and i'm in the process of getting diagnosed with both crohn's and
as.
   -w

David <dnarun2@...> wrote:
   I've heard the exact opposite.  In fact, one of the rhumys most noted
in the field says that there's close to a 50 / 50 chance.

David

--- In Spondyville@yahoogroups.com, nemo <katnemo@...> wrote:
>
> Hello everyone,
>
>   My rheumy is not sure about me having AS - although I am showing
all the symptoms. He said that it is really rare to have Crohn's and
AS at the same time. As long as he does not see any fusion, he is not
going to call it AS, but still wants to put me on Remicade. For now
on, I have Reactive Arthritis, until progression of the disease. I am
very confused.
>
>   Can someone help please? Thanks.
>
>   -H
>
>
> ---------------------------------
>  Nouveau : téléphonez moins cher avec Yahoo! Messenger ! Découvez
les tarifs exceptionnels pour appeler la France et
l'international.Téléchargez la version beta.
>
> [Non-text portions of this message have been removed]
>






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[Non-text portions of this message have been removed]

Hi Curtis. Welcome to Spondyville.  Did your rheumy give you any meds
to take?  Anti-inflammatories, for example, or Dmards?

Some drugs take a short time before they kick in.

There are a couple of ways to deal with pain.  There are painkillers,
which block the pain, and anti-inflammatory drugs which decrease the
inflammation in the joints, which, in theory, should lessen the pain
and stiffness.

There is a heart problem which is sometimes associated with AS.  Best
to see a cardiologist about it.

Also, there are pain management specialists, which can help with
chronic pain. Your rheumy should be able to give you a referral.

Tell us more about what kind of regimen the rheumy prescribed for you.

Spenser23as

I have been in pain for 20 years and finally went for help friday. I
saw a great rhumy doc. but I'm still hurting. Who do I see for pain
relief? Where do you go for relief, what do you do, this has been a
devestating finding. I also have heart problems that need to be
diagnosised she said.

Okay, here are the Ground Rules for the Semi-Annual Spondyville Gripe-
Fest:

The Gripe-Fest is simple, yet its effects can be profound.  All you
do is type simple statements about what you hate about having AS ...
Try to type as many statements as you can ... for an entire hour.
That's it.  (It's harder and more tiring than it sounds.)  No need to
comment on other people's statements, although you can take someone
else's statement and re-state it in your own way.

To help the evening go smoothly, here are some ground rules:

1) Try to stay in the moment. This is NOT about things that USED to
annoy you and which you have since come to terms with. This is about
listing what annoys you NOW about having AS.

2) Don't get caught up in telling stories, just write succinctly what
you hate about AS, then find something else you hate, and write
that. Keep going until the hour is up, even if you have to repeat
some of the things. (I think for a lot of us, the list is long enough
not to have to repeat. LOL)

3) Our group's wonderful sense of empathy is a given. It has been
shown and proven time and again over the decade  we have been in
existence. So for this one night, try to resist the impulse to "make
things better" for other people, or demonstrate that you care. We all
know that we all care about each other. That is our ground of being.
So, for the sake of the outcome, let other people, for that one
night, have their anger, outrage, annoyance, upset etc. You can offer
them your empathy AFTER the chat has ended.

4) Try to avoid expressing any judgments about where someone else is
with their feelings. I think that sometimes when we deal with a
problem ourselves and move on, we tend to have less patience with
others who may be just starting to come to grips with that same
problem. So try to be patient where other's feelings are concerned.
In other words, don't trivialize another member's statement of
annoyance.

And finally, 5) Give other people AND yourself permission to express
what is REALLY going on underneath the "make nice" facade that we all
use in our everyday lives.  Don't stop at your usual comfortable
level of expression... It's okay to really let go...

If you try to do all those things, and keep going for as long as you
can, (It can be quite an exhausting process), I promise you the
cathartic result you will achieve will surprise and maybe even amaze
you.

Those of us who have participated in the past can attest to the power
of this process.

I hope to see you there, Thursday March 2nd, at 10PM EASTERN
time.  Try to be prompt.

Thanks.


Spenser23as

The topic for March's Monthly Online Evening meeting will be:

The Semi-Annual Spondyville GRIPE-FEST!!

(aka) "AS you DON'T like it!!

(aaka) THAT'S what I hate about having AS!!

That's right,it's back!!

It's time for our Exclusive Totally Politically Incorrect

Spondyville Gripe-Fest!!

Come share your pain, your annoyances, your grief. Come spill your
bile, unload your frustrations and vent, vent, vent!!  Come and
relieve yourself of all the anger, bitching, moaning and complaining
that we usually politely supress ... So, for that one night, we'll
try NOT to be exceedingly positive, try NOT to make the best of the
situation, try NOT to keep our negative feelings in check ... in
other words, we'll gripe and complain about things non-stop for an
entire hour AND achieve a fabulous catharsis!!

It's a Fact!!

Those that have participated in our previous gripe-fests can attest
to how good it felt to let go and purge all those negative feelings.
(I know I have felt the positive effects for days afterwards)

There are, of course, some ground rules for the evening, which I will
post later. Please read them and try to follow the ground rules to
the best of your ability and I guarantee you will feel better for it.

Join us Thursday evening March 2, 2006 at 10PM EDT right here in the
Yahoo Spondyville chat room for this unique event.

I hope to see YOU there.


Spenser23as

This Week at the Spondy Cafe: Ham and Cheddar Cheese Omelets!! (Yum!)

Join a splendiferous spasm of 'specially sporty Spondys for not one,
but TWO friendly, supportive chats EVERY Saturday morning at 10AM
Eastern Time (7AM Pacific) and 1OAM Pacific time (1PM Eastern) in the
well-lit Spondy Cafe chat room right here on the Yahoo Spondyville
Home Base ... (Those in the Central and Rocky Mountain time zones,
please make the necessary adjustments.)

FREE bottomless mugs of cyber-coffee or cyber-tea!

The Spondy Cafe, where the refills are on the house and NOT in your
lap ... (Unless we forget to take our meds, then extra cyber-napkins
are also available ... )

To get to the Spondy Cafe Chat room, just click on the Chat button on
the left side of the Spondyville Yahoo Home Base page ...

OR - If you're feeling a little more adventurous, you can follow
these simple cyber-directions:

To get to the Spondy Cafe, simply turn left at the intersection of
Inflammation Ave. and Autoimmune Blvd., then go straight for a mile
and a half, past the hollowed out tree stump, which is actually quite
close to the legendary thorny briar patch of idyllic happiness,
which, ironically, is only a few short steps above and beyond the
festering quagmire of lost hopes from which rises dramatically, the
majestic purple mountain of steely resolve and waving wheat of
accomplishment under the bluest of dream-laden skies ... Keep going
till you get to the beautiful art-deco Spondyville Bijou - Now
Showing: The voice of Will Ferrell in: "Curious Spondy (Monkey See,
Monkey Stiff" ... then take a very HARD right and follow the big
gaudy billboards to the dark and scary sinkhole of outrageous idiocy,
this week featuring: Who else? ... The United Arab Emeritz
Harbormasters ... Of course, you can shake your head in utter
disbelief and then avoid getting involved in that whole mess by using
the secret door behind the sinkhole's southwest brick wall and
proceed directly to the Alpha Gore Memorial Information Superhighway
overpass and filibuster your way to the newly revamped Howard Dean
Last Gaffe Cafe, turn left onto the Democratic Blue Highway Bypass to
America's Coastlines and make your way to a secret undisclosed
location in Washington D.C., where the neo-con refugees are still
trying to avoid the rising floodwaters of voter outrage by trying to
spin recent events like an Olympic figure skater and then falling on
their triple axels ... then go straight till you get to Pete the
Papparazzi's Absolutely Authentic Real Genuine photo museum,
this week featuring candid pics of those feuding speed skaters being
taken on a quail hunt with Dick Cheney ... WAIT A MINUTE!! Those
pictures are REAL!?? ... Then go straight for a mile and three
quarters, turn left at the second traffic light, then take your coded
restraining order to the Letterman Bypass, swerve to avoid a napping
Commander-in-Chief ... then, keep going all the way to the
littered empty lot which has been magically transformed into
Spondyville.com, It's completely Spondylightful AND Spondylicious ...
but still in need of YOUR creative input! ... then, hang a right at
the bronze plaque which marks the EXACT spot where American Idol
became completely ludicrous ... and you'll sing with delight when you
purchase your very own Spondyville Fuser Baseball caps and 11oz.
ceramic Spondyville mugs! Even though the mugs are now limited edition
collectibles and their sale is restricted to twenty-three (23) per
family!!  But wait! If you GET YOUR ORDERS IN NOW, you can take
advantage of our February President's clearance sale! Buy 23 mugs and
get the 24th one FREE! (only until the February 28th, so act
NOW!) ... But, once again, back to the directions ... keep going
until you see the friendly, blinking neon signs for the Spondylitis
Association Home Page. Then park your vehicle in the only lot where 9
out of 10 spots are marked "If you can turn your head, you CAN'T park
here!", whisper "Marie Strumpell sent me", and then take the
flagstone path that leads around the backand look for the enormous
non-toppled statue of the Insane Terrorist Suicide Bomber with the
fused spinal column ... and ... you've made it!!

Remember, since 1995, if it's Saturday, it's the Spondy Cafe.

Spenser23as

And one in New Zealand

	 Message: 2
	    Date: Fri, 24 Feb 2006 10:21:33 +1100 (EST)
	    From: Margaret OHearn <australie4life@...>
	 Subject: Re: Re: Relief At Last!

	 You also have one in Sydney, Australia.

	   Maggie from Oz

	 spedmus <no_reply@yahoogroups.com> wrote:



	 Gosh- had no idea we had a Spondy citizen in Bermuda- I vote that's
	 where we go for our get together!



	 [Non-text portions of this message have been removed]




	 Yahoo! Groups Links





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you receive it in error: (i) you must not use, disclose, copy or retain
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Bill,

   very funny, and serious. The Middle Eastern types actually invaded my suburban
shopping centre and they injured a man who was sitting in his car. The shopping
centre is known as Castle Towers.

   Great to hear from another Aussie. ;-)

   MaggiefromOz

Bill Bovill <bovill@...> wrote:
   And Queensland - there's less riots here

-----Original Message-----
From: Spondyville@yahoogroups.com
[mailto:Spondyville@yahoogroups.com] On Behalf Of Margaret OHearn
Sent: Friday, 24 February 2006 9:22 AM
To: Spondyville@yahoogroups.com
Subject: Re: [Spondyville] Re: Relief At Last!


You also have one in Sydney, Australia.

Maggie from Oz

spedmus wrote:



Gosh- had no idea we had a Spondy citizen in Bermuda- I vote
that's
where we go for our get together!



[Non-text portions of this message have been removed]




Yahoo! Groups Links









---------------------------------
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Yahoo! Music: Watch Gorillaz perform live with Madonna at the
Grammys

[Non-text portions of this message have been removed]




SPONSORED LINKS
Ankylosing spondylitis
g+spondylitis&c=1&s=28&.sig=_4qRjO8J3clcRM4RZgvpNw>

________________________________

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* Visit your group "Spondyville
" on the web.

* To unsubscribe from this group, send an email to:
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* Your use of Yahoo! Groups is subject to the Yahoo!
Terms of Service .


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[Non-text portions of this message have been removed]




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[Non-text portions of this message have been removed]

I've heard the exact opposite.  In fact, one of the rhumys most noted
in the field says that there's close to a 50 / 50 chance.

David

--- In Spondyville@yahoogroups.com, nemo <katnemo@...> wrote:
>
> Hello everyone,
>
>   My rheumy is not sure about me having AS - although I am showing
all the symptoms. He said that it is really rare to have Crohn's and
AS at the same time. As long as he does not see any fusion, he is not
going to call it AS, but still wants to put me on Remicade. For now
on, I have Reactive Arthritis, until progression of the disease. I am
very confused.
>
>   Can someone help please? Thanks.
>
>   -H
>
>
> ---------------------------------
>  Nouveau : téléphonez moins cher avec Yahoo! Messenger ! Découvez
les tarifs exceptionnels pour appeler la France et
l'international.Téléchargez la version beta.
>
> [Non-text portions of this message have been removed]
>

And Queensland - there's less riots here

	 -----Original Message-----
	 From: Spondyville@yahoogroups.com
[mailto:Spondyville@yahoogroups.com] On Behalf Of Margaret OHearn
	 Sent: Friday, 24 February 2006 9:22 AM
	 To: Spondyville@yahoogroups.com
	 Subject: Re: [Spondyville] Re: Relief At Last!


	 You also have one in Sydney, Australia.

	   Maggie from Oz

	 spedmus <no_reply@yahoogroups.com> wrote:



	 Gosh- had no idea we had a Spondy citizen in Bermuda- I vote
that's
	 where we go for our get together!



	 [Non-text portions of this message have been removed]




	 Yahoo! Groups Links









	 ---------------------------------
	 Do you Yahoo!?
	   Yahoo! Music: Watch Gorillaz perform live with Madonna at the
Grammys

	 [Non-text portions of this message have been removed]




	 SPONSORED LINKS
Ankylosing spondylitis
<http://groups.yahoo.com/gads?t=ms&k=Ankylosing+spondylitis&w1=Ankylosin
g+spondylitis&c=1&s=28&.sig=_4qRjO8J3clcRM4RZgvpNw>

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________________________________




[Non-text portions of this message have been removed]

You also have one in Sydney, Australia.

   Maggie from Oz

spedmus <no_reply@yahoogroups.com> wrote:



Gosh- had no idea we had a Spondy citizen in Bermuda- I vote that's
where we go for our get together!



[Non-text portions of this message have been removed]




Yahoo! Groups Links









---------------------------------
Do you Yahoo!?
   Yahoo! Music: Watch Gorillaz perform live with Madonna at the Grammys

[Non-text portions of this message have been removed]

Gosh- had no idea we had a Spondy citizen in Bermuda- I vote that's
where we go for our get together!



[Non-text portions of this message have been removed]

Gigi, you made me cry.    Congrats and thanks for sharing your success.


Spenser23as

In a message dated 2/22/2006 4:23:37 PM Eastern Standard Time,
australie4life@... writes:

In other  words menopause had been affecting my condition.




ohhhh   I call it  "meanie pause"   cause I feel mean and if I don't pause
and think...I'm liable to knock somebodys  block off!  lol


[Non-text portions of this message have been removed]

Hello everyone,
I haven't been able to log in for several weeks, so it's been great
to go back and read the posts I missed.  I'd been struggling for
several months, trying to cope with life in general, despite
increasing pain.  Although I had been on Enbrel for a couple of
years, it never really helped with the pain, but my SED rate went
down to about 50 for a while. My hope was that it was at least
slowing down the AS progression.

When I saw my Rheumy in early Dec. she decided to switch me from
Enbrel to Remicade.  BUT I had to wait for a new supply of Remicade
to arrive. The only pain med I was on in December and January was
Tylenol!  My knees and ankles were competing to see who was going to
hurt the most each day. Physio helped temporarily but within a few
hours the pain was back. (Come to think of it, the physiotherapist
was a hunk.  I wouldn't have minded having him on call to massage my
legs whenever I wanted!)  There were times when I could only get
around by using two canes because each step was like having needles
stabbed into my knee joints. Going down stairs was particularly
agonizing.  I held on, but just barely. Knowing that I was not alone
and could vent here if it got too much REALLY helped, believe me!

FINALLY, on Feb 6 I received my first infusion of Benadryl and
Remicade.  I woke up late the next morning and had to make a mad dash
for work.  It wasn't until I arrived there that I realized I'd not
only forgotten my cane (which I never go anywhere without) but I'd
also forgotten to take my meds that morning!  I WAS FINE THE WHOLE
DAY!!!

I just had my second infusion last Sunday and I can honestly say that
for the first time ever, I was looking forward to getting a needle!
Going from a pain level of about 8.5 to a 2.5 - 3 has been so
incredible.  I can function again!!!  Life Is So Wonderful!!!

I just had to tell somebody who would really understand.  Non-AS'ers
say "Good for you.  I'm happy for you." which is great of course, but
only someone with AS will actually know just what a big deal it is!
I just pray that it continues to be this effective....!

Wishing you all a pain-free evening!
Gigi
in Bermuda

Well, the answer for me has been taking 600mg of Neurontin prior to going to
bed. If I also take the Celebrex I can guarantee that I will not end up aching
so much. Now that I have started treatment with estrodial (an estrogen tablet
that is directly treating a certain spot) I have been able to sleep more
peacefully. In other words menopause had been affecting my condition.

   In the morning,upon waking up, I have commenced doing certain very simple
exercises. They include partial sit-ups, arm exercises, the use of my toning
balls, and some for my legs. This routine is proving very beneficial. I see the
improvement in my arms and bust, and yes there is a small amount of improvement
in my legs. The aim is to improve muscle tone so that my muscles and ligaments
can cope with the strain of trying to proect my spine.

   Maggie

onefineseamstres@... wrote:

In a message dated 2/21/2006 3:35:53 AM Eastern Standard Time,
australie4life@... writes:

these nerves is the sciatic nerve. I get affected by the other nerve in the
lumbar spine.



i am quite familiar with that type of pain.. Nothing helps that short of
being "knocked out completely"


[Non-text portions of this message have been removed]




Yahoo! Groups Links









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   The New Yahoo! Movies: Check out the Latest Trailers, Premiere Photos and full
Actor Database.

[Non-text portions of this message have been removed]

Dwayne,
     I was once on Imuran, MTX, and prednisone at the same time. I got very
sick. So I can sympathize with you. Glad that you got better.

Jane


[Non-text portions of this message have been removed]

DITTO!!

Bill and Ann <annee@...> wrote:  Hello Spenser,

If opinions count..  mine is, membership should be open.  Sometimes when
people are searching they need to access support   Now.. not when the
owner/manager of a list is checking emails.

I have no complaints about spammers, you do a good job at getting them out
of here when you find them.  Every now and then one is going to slip
through.  That's life.  oh well.  Keep up the good work.

Ann
----- Original Message -----
From: "spenser23as" <no_reply@yahoogroups.com>
To: <Spondyville@yahoogroups.com>
Sent: Tuesday, February 21, 2006 1:02 PM
Subject: [Spondyville] Spam deleted, Author banned


> Hi. I deleted the spam message and the replys since they both contained
> the original spammer's message. I try to be vigilant in dealing with
> spammers, in that as soon as I see a spam message, I delete it and ban
> the author.  So far, we have been rather lucky as spam has been fairly
> rare. Spammers are NOT welcome here and their messages will not be
> tolerated.
>
> As far as limiting membership, that is a difficult matter.  I would
> prefer to have membership remain open, so that people can join easily.
> However, if spammers become rampant, I will consider taking the
> group "private" and make new people have to apply for membership.
>
> Spenser23as
>
>
>
>
>
>
> Yahoo! Groups Links
>
>
>
>
>
>



   SPONSORED LINKS
         Ankylosing spondylitis

---------------------------------
   YAHOO! GROUPS LINKS


     Visit your group "Spondyville" on the web.

     To unsubscribe from this group, send an email to:
  Spondyville-unsubscribe@yahoogroups.com

     Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.


---------------------------------





---------------------------------
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  Use Photomail to share photos without annoying attachments.

[Non-text portions of this message have been removed]

Hello Spenser,

If opinions count..  mine is, membership should be open.  Sometimes when
people are searching they need to access support   Now.. not when the
owner/manager of a list is checking emails.

I have no complaints about spammers, you do a good job at getting them out
of here when you find them.  Every now and then one is going to slip
through.  That's life.  oh well.  Keep up the good work.

Ann
----- Original Message -----
From: "spenser23as" <no_reply@yahoogroups.com>
To: <Spondyville@yahoogroups.com>
Sent: Tuesday, February 21, 2006 1:02 PM
Subject: [Spondyville] Spam deleted, Author banned


> Hi. I deleted the spam message and the replys since they both contained
> the original spammer's message. I try to be vigilant in dealing with
> spammers, in that as soon as I see a spam message, I delete it and ban
> the author.  So far, we have been rather lucky as spam has been fairly
> rare. Spammers are NOT welcome here and their messages will not be
> tolerated.
>
> As far as limiting membership, that is a difficult matter.  I would
> prefer to have membership remain open, so that people can join easily.
> However, if spammers become rampant, I will consider taking the
> group "private" and make new people have to apply for membership.
>
> Spenser23as
>
>
>
>
>
>
> Yahoo! Groups Links
>
>
>
>
>
>

Hi. I deleted the spam message and the replys since they both contained
the original spammer's message. I try to be vigilant in dealing with
spammers, in that as soon as I see a spam message, I delete it and ban
the author.  So far, we have been rather lucky as spam has been fairly
rare. Spammers are NOT welcome here and their messages will not be
tolerated.

As far as limiting membership, that is a difficult matter.  I would
prefer to have membership remain open, so that people can join easily.
However, if spammers become rampant, I will consider taking the
group "private" and make new people have to apply for membership.

Spenser23as

Hello there,

My name is Dwayne and I have Crohn's and AS at the same time.  I was
diagnosed with Crohn's DX about age 11 and AS at 19.  My doctors told me
here in Texas that it is very common to have both of the diseases at the
same time.  I know when one flares up; the other is not too far behind.  I
am a nurse, and found that both are auto-immune disorders, so they both
belong to the same family of diseases.   If you want to talk or have any
questions about both diseases', please feel free to email me at
dwayne-allison@....  I would be glad to help you.  I know how
debilitating it can be having both diseases at the same time.  The problem
with me is that I cannot take Humira, Remicade, or any other anti-TNF
factors.  My body went into a severe case of pneumonia and almost died when
they had me on Humira, Remicade, and Prednisone at the same time.  Oh, I was
also on Methotrexate at the same time too.  It immunosuppressed my immune
system so much that I was so susceptible to infections.  So I got PCP
pneumonia.  Usually PCP pneumonia is only seen in AIDS patients, and I do
not even have AIDS.  That’s how these medications can work against you, if
you are on them at the same time and it immunosuppressess your immune
system.  I hope this helps.  If you have any other questions, please don't
hesitate to email me.  We are a good group of knowledgeable people and can
help with whatever you are dealing with, because we have been there!

Have A Great Day
Dwayne Allison, MA


-----Original Message-----
From: Spondyville@yahoogroups.com [mailto:Spondyville@yahoogroups.com] On
Behalf Of nemo
Sent: Monday, February 20, 2006 8:22 PM
To: Spondyville@yahoogroups.com
Subject: [Spondyville] AS and Crohn's

Hello everyone,

   My rheumy is not sure about me having AS - although I am showing all the
symptoms. He said that it is really rare to have Crohn's and AS at the same
time. As long as he does not see any fusion, he is not going to call it AS,
but still wants to put me on Remicade. For now on, I have Reactive
Arthritis, until progression of the disease. I am very confused.

   Can someone help please? Thanks.

   -H


---------------------------------
  Nouveau : téléphonez moins cher avec Yahoo! Messenger ! Découvez les tarifs
exceptionnels pour appeler la France et l'international.Téléchargez la
version beta.

[Non-text portions of this message have been removed]




Yahoo! Groups Links

In a message dated 2/20/2006 11:20:57 PM Eastern Standard Time,
tylerchyder@... writes:

It is  possible to have AS and Crohn's. In fact, it is not all that uncommon
for  people with AS to have an additional type (or types) of inflammatory
conditions as well.
I've been diagnosed w/AS, FM, Crohn's and  OA.

Tyler



Yes... it seems to me you get one, you get a little of  each.   I also have
OA, PA, FMS
(my fms was diagnoised much later  on)


[Non-text portions of this message have been removed]

In a message dated 2/21/2006 3:35:53 AM Eastern Standard Time,
australie4life@... writes:

these  nerves is the sciatic nerve. I get affected by the other nerve in the
lumbar  spine.



i am quite familiar with that type of pain.. Nothing helps  that short of
being "knocked out completely"


[Non-text portions of this message have been removed]

I am talking about neuropathic pain, not the autonomic nervous system. I am
talking about the areas where nerves are compressed. To give an example the
nerve that runs from the elbow to the wrist is the ulnar nerve. It can be
compressed when we consistently put pressure on the forearm, by leaning the
forearm on the desk as we write and type. This compression causes pain that
stems from the elbow, into the wrist and the fingers.

   Another example is that of the nerves that are under the gums of our teeth.
These nerves can be murder when they become irritated. Also in the face is the
trigenemial (sp) nerve. Neuralgia can be set off by an irritation to the nerves
caused by compression of the nerve by a disc in the cervical spine. The other
nerve that is found in that region can and does cause as much pain as the
trigenemial (sp) nerve. These nerves send out a signal to the brain that is
saying "pain" and that pain is very hard to bear.

   There are two other major nerves that cause problems with they are compressed.
Both of these are to be found in the region of the lumbar spine and the
buttocks. The first of these nerves is the sciatic nerve. I get affected by the
other nerve in the lumbar spine.

   The nerves in the feet that can end up being irritated is the cause of
Morton's neuroma. Again the usual cause is pressure in the area. I am very
familiar with this problem.

   There are other neuropathic difficulties that are experienced by people with
diabetes.

   Neurontin works to ease the pain that is caused by the compression of nerves.
I know from my own experience that I get a lot of lumbar pain at night. It is
difficult to sleep in most sleep positions. When I combine Neurontin with
Celebrex at night I manage to keep the nerve pain under control and I actally
manage to get a peaceful night's sleep. I have noticed that one area where the
nerve gets compressed is my right shoulder. When that happens I end up with pins
and needles in my hand.

   Since I have had grave doubts about any dx of fms, I have researched the
subject and I am not convinced that the pain that I have experienced is in fact
due to FMS and it is definitely not a primary condition. When my muscles spasmed
to the point that I began this saga I had been doing work that was repetitive
and on top of that I had experienced more than one work injury that ha
contributed to my pain. A dx of FMS at that early stage was a lazy dx because
the rheumy did not fully investigate the cause of the muscle spasm. I was given
a pamphlet on the condition, a prescription for a drug that made me extremely
drowsy and washed out, and told to go exercise (ta ta I do not want to see you).
The sore feet and the sore back were literally ignored when I was given the dx
of FMS.

   When I first began with the Neurontin the first thing that was relieved was
the pain that goes from my lower back and into my legs. As far as FMS was
concerned it seemed strange that the Neurontin worked. It was strange that I
respond so well to the NSAIDs. Until now, no one has checked out these peculiar
observances. Even more peculiar was my response when I combined Neurontin plus
Celebrex in the evening.



onefineseamstres@... wrote:

In a message dated 2/20/2006 2:50:48 AM Eastern Standard Time,
australie4life@... writes:

I agree that it is possible to have FMS but Neurontin treats neuropathic
pain and FMS is associated with the muscles and the ligaments, not the nerves.


not so.

What is the autonomic nervous system ?

The autonomic nervous system works below the level of consciousness to
maintain the body's equilibrium. It regulates blood pressure, pulse and
breathing
rates among many other variables. It assures the normal function of all of
our internal organs. The autonomic nervous system also responds instantaneously
to any type of stress. (stress should be understood as any physical or
emotional stimuli that threatens the balance of our body). There are close
connections between the autonomic nervous system and the endocrine system that
regulates hormone secretion.

In clinical practice, the function of the autonomic nervous system was
difficult to assess up to the introduction in recent years of heart rate
variability analysis
_http://www.fms-help.com/nervous.htm_ (http://www.fms-help.com/nervous.htm)
_http://serendip.brynmawr.edu/bb/neuro/neuro98/202s98-paper2/Christensen2.html
_
(http://serendip.brynmawr.edu/bb/neuro/neuro98/202s98-paper2/Christensen2.html)
What Causes Fibromyalgia?
• The cause of fibromyalgia is unknown. There may be a link between
fibromyalgia and sleep disturbance, since most patients have disruptive sleep
patterns. Other factors that may contribute to the development or perpetuation
of
fibromyalgia are psychological stress, immune or endocrine abnormalities, or
biochemical abnormalities in the central nervous system.
(from the Americian College of Rheumatology) Rhemotology.org
_http://www.rheumatology.org/publications/primarycare/number1/hrh0002-98.asp_
(http://www.rheumatology.org/publications/primarycare/number1/hrh0002-98.asp)




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The circles are interesting but do they relate solely to the people who happen
to be HLAB27 positive, or does that include the subset that is HLAB27 negative?
The reason that I am asking is that without a doubt I match most of the criteria
for AS, which includes an earlier dx of sacroiliitis, as well as mention of
slight sclerosis on the right sacroiliac joint as far back as 1994, plus plantar
fascitis as well as enthesitis.

   It is much harder for women to get a dx of AS, but not so hard to get a dx of
something like Crohns or even PA. It boils down to how we present when we notice
the first symptoms of the disease. In my case the dx has come because my x-rays
indicate the growth of osteophytes plus there is some narrowing of discs.

   I have AS (the low grade inflammatory arthritis), plus enthesitis, plus
allegedly FMS. My RF is at 39, ANA 1:80 and CRP is 19. I suffer from bouts of
cystitis, which is probably due to changes since undergoing the menopause. My
low positive ANA has been changing over time. A previous study had shown it to
be at 1:40. All it is showing is that I am reacting to something,  I guess that
is the fun of having an auto-immune disorder.
spenser23as <no_reply@yahoogroups.com> wrote:

As you can see from the responses, it is not only possible, but not
uncommon. One rheumy explained it to me once by drawing a bunch of
circles that overlapped, and saying that each one represented one of
the Spondylaorapathies, and that sometimes people can have overlapping
symptoms from different diseases in this family. For example, an
individual could have symptoms of AS and Crohn's, while another
individual could have AS, Reiter's and Psoriatic spondylitis, etc.

Spenser23as






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As you can see from the responses, it is not only possible, but not
uncommon.  One rheumy explained it to me once by drawing a bunch of
circles that overlapped, and saying that each one represented one of
the Spondylaorapathies, and that sometimes people can have overlapping
symptoms from different diseases in this family. For example, an
individual could have symptoms of AS and Crohn's, while another
individual could have AS, Reiter's and Psoriatic spondylitis, etc.

Spenser23as

It is possible to have AS and Crohn's. In fact, it is not all that uncommon for
people with AS to have an additional type (or types) of inflammatory conditions
as well.
I've been diagnosed w/AS, FM, Crohn's and OA.

Tyler

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About rib cage, bo one seem say there is anything that could be done, Duh! I
know what could I say,see this site
http://www.internethealthlibrary.com/Health-problems/Ankylosing%20Spondylitis%20\
-%20researchDiet&Lifestyle.htm#Deadly%20nightshade%20plants

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That is very serious with the chest. Is there any physiotherapy that can help?

   Maggie

Aday4me@... wrote:
   1. Inflammatory back pain-2 pts
2.Unilateral buttock pain-1pt
3.Alternating buttock pain-2 pts
4 HLA-B27+



Shoulder against wall----head 8 inches away from wall
Chest Expansion 1/2 in.( danger of rib cage closing down on lungs.

Bend over hands to floor 1 and 1/2 feet

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[Non-text portions of this message have been removed]

1. Inflammatory back pain-2 pts
2.Unilateral buttock pain-1pt
3.Alternating buttock pain-2 pts
4 HLA-B27+



Shoulder against wall----head 8 inches away from wall
Chest Expansion  1/2 in.( danger of rib cage closing down on lungs.

Bend over hands to floor  1 and 1/2 feet

[Non-text portions of this message have been removed]